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General Parenting
20/20 last night...Autism
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<blockquote data-quote="Marguerite" data-source="post: 78780" data-attributes="member: 1991"><p>It is a danger with any disorder or medical condition, where someone finds something that helped them and declares that they have the answer for everybody.</p><p></p><p>I used to do a lot of volunteer work for an organisation dealing with Chronic Fatigue Syndrome. I saw a lot of people with a lot of suffering but I also saw a lot of people who had (in my opinion) been given the label too readily and often inappropriately. Several doctors became known as specialists in this, even though they were only GPs, because amazingly, every patient they saw came away with a CFS diagnosis. One bloke went to a support group meeting telling everyone that the secret to getting cured was a combination of vitamins, gluten-free diet and positive thinking. After really insisting that he was already feeling so much better and this was helping him, someone finally managed to ask him how long he had been ill. "Six weeks," he replied. "And they were the longest six weeks of my life."</p><p>We gently pointed out that according to the Diagnostic Criteria, CFS cannot be diagnosed in under six months. A tentative diagnosis only can be given, and recovery within six weeks by definition can not be CFS.</p><p>He was still insisting, "If you all do what I have done, you all will be well too, in just a matter of weeks."</p><p></p><p>People like this do a great deal of harm.</p><p></p><p>However, this doesn't mean we should hold back from sharing what works for us - we just have to keep things in perspective and let people take for themselves what we say, use what they want and discard what is not relevant. Anybody using emotional blackmail in sharing their information has some vested interest in 'selling' their ideas. Perhaps they have a book deal, or are trying to sell you some obscure health supplement. Always look for the hidden traps.</p><p></p><p>I will look forward to seeing this program come to Australia.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 78780, member: 1991"] It is a danger with any disorder or medical condition, where someone finds something that helped them and declares that they have the answer for everybody. I used to do a lot of volunteer work for an organisation dealing with Chronic Fatigue Syndrome. I saw a lot of people with a lot of suffering but I also saw a lot of people who had (in my opinion) been given the label too readily and often inappropriately. Several doctors became known as specialists in this, even though they were only GPs, because amazingly, every patient they saw came away with a CFS diagnosis. One bloke went to a support group meeting telling everyone that the secret to getting cured was a combination of vitamins, gluten-free diet and positive thinking. After really insisting that he was already feeling so much better and this was helping him, someone finally managed to ask him how long he had been ill. "Six weeks," he replied. "And they were the longest six weeks of my life." We gently pointed out that according to the Diagnostic Criteria, CFS cannot be diagnosed in under six months. A tentative diagnosis only can be given, and recovery within six weeks by definition can not be CFS. He was still insisting, "If you all do what I have done, you all will be well too, in just a matter of weeks." People like this do a great deal of harm. However, this doesn't mean we should hold back from sharing what works for us - we just have to keep things in perspective and let people take for themselves what we say, use what they want and discard what is not relevant. Anybody using emotional blackmail in sharing their information has some vested interest in 'selling' their ideas. Perhaps they have a book deal, or are trying to sell you some obscure health supplement. Always look for the hidden traps. I will look forward to seeing this program come to Australia. Marg [/QUOTE]
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