Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
6 Year old now in mental hospital. Need advice.
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="buddy" data-source="post: 511221" data-attributes="member: 12886"><p>OH bless your heart. Your poor little girl. I am sure you are very worried. Sounds like she has so much going on. She must have an incredibly high pain tolerance (my son has that to some degree and actually pulled off a toe nail too.... he also pulls hair out and scratches himself really hard, sometimes hits his head with his fist when upset). Did they do an inpatient eeg then? I sure would in part wonder about seizures with her. Where is the spot they found? Is it in an area of the brain that can be associated with this? Are they going to monitor to see if there are more that develop? Do they know what the spot is??? There are so many neurological conditions that can look like autism and Obsessive Compulsive Disorder (OCD) etc. I wonder too if they would consider genetic testing for her to make sure there is not some spontaneous genetic mutation that happened. (just throwing ideas out for you, but you probably have considered these things I realize ). </p><p></p><p>Did any of this get worse on any of the medications you have tried? </p><p></p><p>As I read your post I could actually relate to a little bit of it, though certainly I think your situation is pretty unique in many ways. But I can see how the (what in my mind anyway is...) autism part could trigger the Obsessive Compulsive Disorder (OCD) part (like you can really divide things up but just how my mind sorts it out). I remember when my son's school did their preschool mail unit.... that started collecting of envelopes, stealing mail, hoarding paper, gathering pamphlets etc... and he is 15 and just today at the store he came to me with about 10 pamphlets from all over including the in store bank, maps of the store, etc. When they did the tooth unit, he started brushing so much and flossing so much that his gums would bleed. Even with a sore mouth he would still do these things. He also picks his cuticles. He does not do as much damage as it sounds your daughter does, but it can make it so he can't function some days because once he has an itch or sore he is so distracted and bothered by it that he becomes aggressive and can't do school work or follow directions.</p><p></p><p>I pray they find some answers and you are helped to a better resource for working through these behaviors given her neurological issues too. Are there any autism treatment centers near you? Just wondering if any of their day treatment or residential treatment could be of more benefit to her? Is this new therapy center familiar with both developmental conditions as well as the Obsessive Compulsive Disorder (OCD) stuff? It is wonderful you are working with an Occupational Therapist (OT), she sounds especially like she has pretty intensive sensory integration issues...just my impression, I am not an Occupational Therapist (OT)...just going by what you are describing. I hope your insurance will cover some intensive work with them. </p><p></p><p>I know it is hard to start that realization of what kind of journey our very involved kids will have. The grief comes in waves. Sometimes I get so excited, we are on a good roll and he seems like he might be able to do some sort of independent living and other times I wonder too, will this kid end up in a residential placement with a ton of acute stays for medical intervention??? IT is really sad because under this, there is such great potential for a well adjusted life. </p><p></p><p>In your case, I just wonder if they are going to find something that will really give you some answers with those brain scans or with seizures. Is she on any anti-epileptic medications?? (many are used for multiple purposes including mental health, pain management along with seizure control). Just curious.</p><p></p><p>I am glad you found us, sorry we can't fix things as we all would love to be able to do that for each other but rest assured, many of us do know what it is like to have a kid who confounds many of the doctors and therapists as well as not having an easy ride in school. A child who breaks your heart because it is clear something is going on way beyond their control but that makes it so they just can't get along well. You are not alone.</p></blockquote><p></p>
[QUOTE="buddy, post: 511221, member: 12886"] OH bless your heart. Your poor little girl. I am sure you are very worried. Sounds like she has so much going on. She must have an incredibly high pain tolerance (my son has that to some degree and actually pulled off a toe nail too.... he also pulls hair out and scratches himself really hard, sometimes hits his head with his fist when upset). Did they do an inpatient eeg then? I sure would in part wonder about seizures with her. Where is the spot they found? Is it in an area of the brain that can be associated with this? Are they going to monitor to see if there are more that develop? Do they know what the spot is??? There are so many neurological conditions that can look like autism and Obsessive Compulsive Disorder (OCD) etc. I wonder too if they would consider genetic testing for her to make sure there is not some spontaneous genetic mutation that happened. (just throwing ideas out for you, but you probably have considered these things I realize ). Did any of this get worse on any of the medications you have tried? As I read your post I could actually relate to a little bit of it, though certainly I think your situation is pretty unique in many ways. But I can see how the (what in my mind anyway is...) autism part could trigger the Obsessive Compulsive Disorder (OCD) part (like you can really divide things up but just how my mind sorts it out). I remember when my son's school did their preschool mail unit.... that started collecting of envelopes, stealing mail, hoarding paper, gathering pamphlets etc... and he is 15 and just today at the store he came to me with about 10 pamphlets from all over including the in store bank, maps of the store, etc. When they did the tooth unit, he started brushing so much and flossing so much that his gums would bleed. Even with a sore mouth he would still do these things. He also picks his cuticles. He does not do as much damage as it sounds your daughter does, but it can make it so he can't function some days because once he has an itch or sore he is so distracted and bothered by it that he becomes aggressive and can't do school work or follow directions. I pray they find some answers and you are helped to a better resource for working through these behaviors given her neurological issues too. Are there any autism treatment centers near you? Just wondering if any of their day treatment or residential treatment could be of more benefit to her? Is this new therapy center familiar with both developmental conditions as well as the Obsessive Compulsive Disorder (OCD) stuff? It is wonderful you are working with an Occupational Therapist (OT), she sounds especially like she has pretty intensive sensory integration issues...just my impression, I am not an Occupational Therapist (OT)...just going by what you are describing. I hope your insurance will cover some intensive work with them. I know it is hard to start that realization of what kind of journey our very involved kids will have. The grief comes in waves. Sometimes I get so excited, we are on a good roll and he seems like he might be able to do some sort of independent living and other times I wonder too, will this kid end up in a residential placement with a ton of acute stays for medical intervention??? IT is really sad because under this, there is such great potential for a well adjusted life. In your case, I just wonder if they are going to find something that will really give you some answers with those brain scans or with seizures. Is she on any anti-epileptic medications?? (many are used for multiple purposes including mental health, pain management along with seizure control). Just curious. I am glad you found us, sorry we can't fix things as we all would love to be able to do that for each other but rest assured, many of us do know what it is like to have a kid who confounds many of the doctors and therapists as well as not having an easy ride in school. A child who breaks your heart because it is clear something is going on way beyond their control but that makes it so they just can't get along well. You are not alone. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
6 Year old now in mental hospital. Need advice.
Top