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6 Year old now in mental hospital. Need advice.
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<blockquote data-quote="buddy" data-source="post: 511230" data-attributes="member: 12886"><p>oh I see, I must have read your post too fast, I thought it said they found spots... My son (years after seizures had stopped--so we thought--) had a long in pt. evaluation with a nationally known clinic and they said there was nothing. a few years later, and the wrong medication for years (they said it must be anxiety) and our neuro put him to another hospital with a friend of hers and this lady added leads in the areas that matched the symptoms he was reporting and ta da! night and day he was having tons of electrical activity that was very abnormal. He was diagnosis with simple seizures starting in the rt. temporal lobe and going to the lt. SO frustrating when they dont hear our concerns and I am sure it is frustrating to them too when they dont find things, but the difference with these docs was they really believed my son. They were going to treat even if they had not found something... it was too suspicious.</p><p></p><p>I have also been to a variety of Occupational Therapist (OT) clinics. Not all are the same. Some are pretty basic and others really think outside the box. Just sharing from a mom who has had the very same kid treated totally differently by different docs of the same specialty, different therapists of the same specialty etc.... Just have to keep searching till you find the best fit. And if it does not make sense to you...go with your gut.</p><p></p><p>If she does not have an IEP then yes, do what TeDo said. By putting it in writing it starts a mandated time line and they MUST respond and get the testing done within a certain time. Make sure they dont put you off saying she is doing ok academically. It is absolutely not true that they have to be behind in academics...there are other areas of school that qualify them and your daughter certainly falls into those behavioral/social/emotional areas. Autism Spectrum Disorders (ASD) is one of the educational categories so with your medical diagnosis to back you up she should fall into that category. Do not let them put her in an Emotional/Behavioral category with her Autism Spectrum Disorders (ASD) diagnosis, because the EBD programs can be wonderful for kids with those types of issues, but for kids with Autism Spectrum Disorders (ASD) they miss out then on a lot of research based teaching methods and interventions that are well known to support kids with Autism. They may be more familiar with watching for repetitive behaviors that are self destructive as well. I hope they cooperate with you and give her the support she will need because as you suggested in your first post, this is just the beginning. Things can get SOO much better when you meet and connect with the right people though. Your daughter sounds quite bright and I imagine there will be people out there, but it really stinks having to start and stop until you find the right ones. Hang tough, it is worth the effort.</p><p></p><p>Again, welcome to the warrior mom ranks on the CD board! You sound like you earned your Warrior Mom stripes long ago!!!!</p></blockquote><p></p>
[QUOTE="buddy, post: 511230, member: 12886"] oh I see, I must have read your post too fast, I thought it said they found spots... My son (years after seizures had stopped--so we thought--) had a long in pt. evaluation with a nationally known clinic and they said there was nothing. a few years later, and the wrong medication for years (they said it must be anxiety) and our neuro put him to another hospital with a friend of hers and this lady added leads in the areas that matched the symptoms he was reporting and ta da! night and day he was having tons of electrical activity that was very abnormal. He was diagnosis with simple seizures starting in the rt. temporal lobe and going to the lt. SO frustrating when they dont hear our concerns and I am sure it is frustrating to them too when they dont find things, but the difference with these docs was they really believed my son. They were going to treat even if they had not found something... it was too suspicious. I have also been to a variety of Occupational Therapist (OT) clinics. Not all are the same. Some are pretty basic and others really think outside the box. Just sharing from a mom who has had the very same kid treated totally differently by different docs of the same specialty, different therapists of the same specialty etc.... Just have to keep searching till you find the best fit. And if it does not make sense to you...go with your gut. If she does not have an IEP then yes, do what TeDo said. By putting it in writing it starts a mandated time line and they MUST respond and get the testing done within a certain time. Make sure they dont put you off saying she is doing ok academically. It is absolutely not true that they have to be behind in academics...there are other areas of school that qualify them and your daughter certainly falls into those behavioral/social/emotional areas. Autism Spectrum Disorders (ASD) is one of the educational categories so with your medical diagnosis to back you up she should fall into that category. Do not let them put her in an Emotional/Behavioral category with her Autism Spectrum Disorders (ASD) diagnosis, because the EBD programs can be wonderful for kids with those types of issues, but for kids with Autism Spectrum Disorders (ASD) they miss out then on a lot of research based teaching methods and interventions that are well known to support kids with Autism. They may be more familiar with watching for repetitive behaviors that are self destructive as well. I hope they cooperate with you and give her the support she will need because as you suggested in your first post, this is just the beginning. Things can get SOO much better when you meet and connect with the right people though. Your daughter sounds quite bright and I imagine there will be people out there, but it really stinks having to start and stop until you find the right ones. Hang tough, it is worth the effort. Again, welcome to the warrior mom ranks on the CD board! You sound like you earned your Warrior Mom stripes long ago!!!! [/QUOTE]
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6 Year old now in mental hospital. Need advice.
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