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General Parenting
A few questions re: changing a Pervasive Developmental Disorder (PDD) diagnosis
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<blockquote data-quote="trinityroyal" data-source="post: 193725" data-attributes="member: 3907"><p>Hello Hex,</p><p></p><p>I think that what the docs are seeing are the gradual signs of maturity. Over time, people on the Autism Spectrum Disorders (ASD) spectrum learn how to adapt behaviour to make it seem more "normal". The underlying issues are all still there, but they're not quite as obvious as they are when the child is younger and less able to maintain.</p><p></p><p>As his mom, you're seeing ALL of difficult child 2's behaviour. You also have close familiarity with his stims and other behaviour, so you recognize them as stims whereas the doctor is probably looking for something more obvious.</p><p></p><p>Can you document the way in which your difficult child typically manifests Pervasive Developmental Disorder (PDD) behaviour? If the evaluators have some idea of what they're looking at? That when your difficult child flaps or rocks it looks like Y rather than X? I don't think you're worrying over nothing, and it is strange to have that diagnosis off the table.</p><p></p><p>Do these doctors have specific expertise in Autism Spectrum Disorders (ASD) spectrum disorders? Are any of them NeuroPsychologists? I've found over the years that people's expertise seems to lead them in a particular diagnostic direction, and if these docs don't have enough experience with Pervasive Developmental Disorder (PDD) to know what they're seeing, then they may very well end up taking you down the wrong path.</p><p></p><p>If your mommy gut is telling you that Pervasive Developmental Disorder (PDD) issues still need to be addressed, then fight as hard as you can to leave them on the table. I think you're right that if the cognitive and neuro issues don't get addressed, it will be hard to make progress in the other areas.</p><p></p><p>Trinity</p></blockquote><p></p>
[QUOTE="trinityroyal, post: 193725, member: 3907"] Hello Hex, I think that what the docs are seeing are the gradual signs of maturity. Over time, people on the Autism Spectrum Disorders (ASD) spectrum learn how to adapt behaviour to make it seem more "normal". The underlying issues are all still there, but they're not quite as obvious as they are when the child is younger and less able to maintain. As his mom, you're seeing ALL of difficult child 2's behaviour. You also have close familiarity with his stims and other behaviour, so you recognize them as stims whereas the doctor is probably looking for something more obvious. Can you document the way in which your difficult child typically manifests Pervasive Developmental Disorder (PDD) behaviour? If the evaluators have some idea of what they're looking at? That when your difficult child flaps or rocks it looks like Y rather than X? I don't think you're worrying over nothing, and it is strange to have that diagnosis off the table. Do these doctors have specific expertise in Autism Spectrum Disorders (ASD) spectrum disorders? Are any of them NeuroPsychologists? I've found over the years that people's expertise seems to lead them in a particular diagnostic direction, and if these docs don't have enough experience with Pervasive Developmental Disorder (PDD) to know what they're seeing, then they may very well end up taking you down the wrong path. If your mommy gut is telling you that Pervasive Developmental Disorder (PDD) issues still need to be addressed, then fight as hard as you can to leave them on the table. I think you're right that if the cognitive and neuro issues don't get addressed, it will be hard to make progress in the other areas. Trinity [/QUOTE]
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A few questions re: changing a Pervasive Developmental Disorder (PDD) diagnosis
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