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Absence Seizures???
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<blockquote data-quote="Marguerite" data-source="post: 201660" data-attributes="member: 1991"><p>Thank you for explaining your concerns. I know you will be doing your utmost to not let him see your fears - I know from my own mother in law's heart problems, her anxiety (even mild anxiety) triggers heart palpitations. She will worry that she MIGHT get heart palpitations and hey presto, she does! I go in for tests and she worries that I am worrying about my health (because SHE would, if it was her having tests) and off her heart goes again! </p><p></p><p>Pooky, serious suggestion - slap me down if you need to - but if you have your son being monitored by a pediatric heart specialist, someone just keeping tabs on him to ensure that everything is going smoothly and his heart is continuing to do well, then a doctor like this would be someone to talk to about not only tests, but about any possible medications/treatments for anything that might be found. When you say you plan to call some docs tomorrow, I presume that some of these are your son's previous doctors? Well done. Good thinking. </p><p></p><p>Similarly, informing yourself as completely as possible about your son's medical conditions then and now, as well as the normal function of the heart (in detail) will have you as fore-armed as possible. The human cardiovascular system is a wonderful piece of machinery, with so many wonderful fail-safes built in. I had the advantage of studying it at university and the understanding has put my mind thoroughly at rest on very many occasions.</p><p></p><p>An EEG is primarily reading the electrical energy (miniscule) that is already produced. It's not about introducing electricity anywhere. There ARE tests which do this but again, they should not have an impact on a heart condition such as you describe.</p><p></p><p>I'm wondering - what has the class teacher observed? Under what conditions does she observe what she thinks could be an absence seizure? If it's at a time when she's talking to the class, perhaps explaining a task about to be done or the intricacies of triangles, then this could also fit with 'zoning out' due to too much input. difficult child 3 tells me he can't hold his concentration for long when I begin talking to him about things. </p><p>If the teacher can give you a fairly reliable trigger for what she observes, then you could try to trigger it yourself during an EEG. So IF it's a seizure, and you can perhaps be talking to your son to help him understand about something like the United Nations and how it works, for example, or hoe people vote and why in the upcoming elections, then if he zones out and it IS a seizure then they should identify it as such. But if he zones out and it's NOT identified as a seizure, then that is really good news - no absent seizures, but something else which can probably be managed by controlling the sensory stimuli he is exposed to. That has worked for us and as the boys have grown older, they have learned to cope with more and more, including difficult child 1 multi-tasking like I never thought he would be capable of.</p><p></p><p>From what I understand of mother in law's heart problem (as much as anyone understands) it also is SVT. But because of her age and past history, it IS a bigger problem. She also worries about any medication changes and the effect it might have on her heart - which of course only makes it all worse.</p><p></p><p>I also worry about medications and reactions, in my own health situation. Sometimes there is cause; sometimes there isn't. </p><p></p><p>So don't worry, we do get it. Especially when it's your first-born, one you had to fight so hard for, and you wish if only the problem could be all laid on your shoulders and not his. If only it were so... but it's not.</p><p></p><p>Use your resources, do your homework, inform yourself, and lean on us when you need to.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 201660, member: 1991"] Thank you for explaining your concerns. I know you will be doing your utmost to not let him see your fears - I know from my own mother in law's heart problems, her anxiety (even mild anxiety) triggers heart palpitations. She will worry that she MIGHT get heart palpitations and hey presto, she does! I go in for tests and she worries that I am worrying about my health (because SHE would, if it was her having tests) and off her heart goes again! Pooky, serious suggestion - slap me down if you need to - but if you have your son being monitored by a pediatric heart specialist, someone just keeping tabs on him to ensure that everything is going smoothly and his heart is continuing to do well, then a doctor like this would be someone to talk to about not only tests, but about any possible medications/treatments for anything that might be found. When you say you plan to call some docs tomorrow, I presume that some of these are your son's previous doctors? Well done. Good thinking. Similarly, informing yourself as completely as possible about your son's medical conditions then and now, as well as the normal function of the heart (in detail) will have you as fore-armed as possible. The human cardiovascular system is a wonderful piece of machinery, with so many wonderful fail-safes built in. I had the advantage of studying it at university and the understanding has put my mind thoroughly at rest on very many occasions. An EEG is primarily reading the electrical energy (miniscule) that is already produced. It's not about introducing electricity anywhere. There ARE tests which do this but again, they should not have an impact on a heart condition such as you describe. I'm wondering - what has the class teacher observed? Under what conditions does she observe what she thinks could be an absence seizure? If it's at a time when she's talking to the class, perhaps explaining a task about to be done or the intricacies of triangles, then this could also fit with 'zoning out' due to too much input. difficult child 3 tells me he can't hold his concentration for long when I begin talking to him about things. If the teacher can give you a fairly reliable trigger for what she observes, then you could try to trigger it yourself during an EEG. So IF it's a seizure, and you can perhaps be talking to your son to help him understand about something like the United Nations and how it works, for example, or hoe people vote and why in the upcoming elections, then if he zones out and it IS a seizure then they should identify it as such. But if he zones out and it's NOT identified as a seizure, then that is really good news - no absent seizures, but something else which can probably be managed by controlling the sensory stimuli he is exposed to. That has worked for us and as the boys have grown older, they have learned to cope with more and more, including difficult child 1 multi-tasking like I never thought he would be capable of. From what I understand of mother in law's heart problem (as much as anyone understands) it also is SVT. But because of her age and past history, it IS a bigger problem. She also worries about any medication changes and the effect it might have on her heart - which of course only makes it all worse. I also worry about medications and reactions, in my own health situation. Sometimes there is cause; sometimes there isn't. So don't worry, we do get it. Especially when it's your first-born, one you had to fight so hard for, and you wish if only the problem could be all laid on your shoulders and not his. If only it were so... but it's not. Use your resources, do your homework, inform yourself, and lean on us when you need to. Marg [/QUOTE]
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