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additional eye problem...frustrated
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<blockquote data-quote="susiestar" data-source="post: 505809" data-attributes="member: 1233"><p>Who treats your lupus? Is your eye dr working with them? You may need to have the docs work closely together to figure out a solution. Are you at the point where you are using one of the TNF medications (enbrel, humira, etc...) for your lupus? I know people who have had excellent results from them, and some that have not and have had bad side effects taht didn't stop when treatment did. I am assuming you are seeing an opthalmologist and not an optometrist, given the complicated nature of the problems.</p><p></p><p>With the dry skin, work on staying very well hydrated. Also, if you are taking plaquenil or a quinine based medication, be aware that these can cause LOTS of vision issues. I would hope the dr had already looked at your medications to see if they could contribute to the problems.</p><p></p><p>Go for the progressive lenses - what used to be called "no-line" bifocals. I got them a couple of years ago and the adjustment wasn't hard at all. It made life a LOT easier.</p><p></p><p>You might have the docs check to see if the dry irritated area has a yeast infection. We used to have a chronic pain support group here and many of the women had lupus. One thing that they seemed to get off and on were yeast infections. Not just vaginally or in their mouths, but on skin too. Given the dry eyes, you may have more moisture in the area from the drops, etc... and the skin can be vulnerable to yeast. the doctor may think I am nuts for suggesting it, but several of the women fought this off and on for quite a while. They used some type of drops to help. The antibiotic drops can also leave you vulnerable to this type of infection - and steroid drops sometimes do also. That close to the eye, I would NOT suggest using OTC miconazole cream from the feminine supplies aisle. Jess and I both get yeast rashes and that is what really works for us. But not near the eyes, because it might cause other problems. </p><p></p><p>Oral acidophilus capsules may not be helpful with the eye problems, but they probably won't hurt. But you should check with the dr or pharmacist given the other complicated problems you are having.</p><p></p><p>Again, PLEASE keep drops refrigerated when you are home and either buy the single use packages or replace them often. For drops with preservatives you can keep them up to four weeks, but for those with no preservatives they should be tossed after just one week. You really don't want more infection on top of all of this!!</p><p></p><p>I hope you start to have fewer problems soon. When my eyes are irritated the solar shield sunglasses with the side panels really help because they help keep the wind away from my eyes better than reg glasses or sunglasses do. </p><p></p><p>Does the doctor know you are still trying to wear your contacts? If you don't have the kind you throw away each day, you may need to experiment with different types of disinfection to find one that will be the most effective. Be sure to replace the case often or sterilize it - the threads are a haven for bacteria (where the cap tightens onto the base) that people forget about.</p></blockquote><p></p>
[QUOTE="susiestar, post: 505809, member: 1233"] Who treats your lupus? Is your eye dr working with them? You may need to have the docs work closely together to figure out a solution. Are you at the point where you are using one of the TNF medications (enbrel, humira, etc...) for your lupus? I know people who have had excellent results from them, and some that have not and have had bad side effects taht didn't stop when treatment did. I am assuming you are seeing an opthalmologist and not an optometrist, given the complicated nature of the problems. With the dry skin, work on staying very well hydrated. Also, if you are taking plaquenil or a quinine based medication, be aware that these can cause LOTS of vision issues. I would hope the dr had already looked at your medications to see if they could contribute to the problems. Go for the progressive lenses - what used to be called "no-line" bifocals. I got them a couple of years ago and the adjustment wasn't hard at all. It made life a LOT easier. You might have the docs check to see if the dry irritated area has a yeast infection. We used to have a chronic pain support group here and many of the women had lupus. One thing that they seemed to get off and on were yeast infections. Not just vaginally or in their mouths, but on skin too. Given the dry eyes, you may have more moisture in the area from the drops, etc... and the skin can be vulnerable to yeast. the doctor may think I am nuts for suggesting it, but several of the women fought this off and on for quite a while. They used some type of drops to help. The antibiotic drops can also leave you vulnerable to this type of infection - and steroid drops sometimes do also. That close to the eye, I would NOT suggest using OTC miconazole cream from the feminine supplies aisle. Jess and I both get yeast rashes and that is what really works for us. But not near the eyes, because it might cause other problems. Oral acidophilus capsules may not be helpful with the eye problems, but they probably won't hurt. But you should check with the dr or pharmacist given the other complicated problems you are having. Again, PLEASE keep drops refrigerated when you are home and either buy the single use packages or replace them often. For drops with preservatives you can keep them up to four weeks, but for those with no preservatives they should be tossed after just one week. You really don't want more infection on top of all of this!! I hope you start to have fewer problems soon. When my eyes are irritated the solar shield sunglasses with the side panels really help because they help keep the wind away from my eyes better than reg glasses or sunglasses do. Does the doctor know you are still trying to wear your contacts? If you don't have the kind you throw away each day, you may need to experiment with different types of disinfection to find one that will be the most effective. Be sure to replace the case often or sterilize it - the threads are a haven for bacteria (where the cap tightens onto the base) that people forget about. [/QUOTE]
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