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Advice for well-child on Tuesday
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<blockquote data-quote="vtheartmama" data-source="post: 402802" data-attributes="member: 10980"><p>OK really trended off topic towards the end...sorry, I'm a rambler and fast typer...</p><p></p><p>I've had a hard time finding the right pediatrician... Dr. K told me I had to quit breastfeeding my son because it was like a milkshake so I stopped going to her, even though she was always more thorough in evaluation and question answering, I just couldn't hear one more time about my son being "obese" at the age of 9 months. And I knew damn well that breastfeeding was NOT the problem, and by 2 he has slimmed down. My daughter sees a pediatrician. from time to time, Dr. P, when her GP can't see her, but when I brought her in for a Stage 3 cast sore (gaping flesh) and she told me to come into her office because she was sure it wasn't anything exciting, and she gave me bad advice for treating it (because Shriner's gave me the opposite advice which worked GREAT) I stopped liking her so much. So that leaves Dr. Mac who ignored my sons 104.7 degree fever for 3 WEEKS while he vomited and cried and couldn't sleep because he had an ear infection so bad I finally took him to Dr. P who gave him penecillin, his fever spiked over 105 on the penecillin and they switched to augmentin. Next time I came in to Dr. Mac because I wanted his lungs listened too(bronchial infections are bad news for CHD kids), she gave him antibiotics for an ear infection he didn't have because there was an intern present and she said that when they under the age of 2 and have an ear infection antibiotics are always given. </p><p></p><p>SO if in the future you hear me rant and rave about how ****thank you our medical system is, the above is just the tip of the ice berg we've dealt with, my apologies in advance ; ) . </p><p></p><p>Dr. Mac has been with him since he was born and she's good with his heart, knows what to listen for, has 2 TGA babies she treats. That office is "supposed" to be the best in the area. Should just smack my head against the wall and move to a bigger city where my kids can get REAL medical care. So I guess my point is I'm running out of doctors! *L* </p><p></p><p>SLSH- luckily when N was born he had a VSD and Autism Spectrum Disorders (ASD) (holes in the heart) which allowed the blood to mix well, otherwise he'd be dead as the hospital he was at was not prepared for any complications (take a guess how many nurses it took to figure out how to run the oxygen incubator?..they had to call the tech, who still had trouble) His oxygen was 84% and the cardiac surgeon at Boston said that he shouldn't have any brain damage from that. Dr. Mac said the only reason she ordered an EEG (normally she would wait until there was another seizure) was because he was on the heart/lung bypass for surgery. But studies have shown that cardiac kids brains are different from birth, more white matter, and are prone to ADHD.</p><p></p><p>Maybe I should look around, when N was born they did a cystic fibrosis screening and he was found to have the Delta 504 mutation, so we had to do the sweat test the same day he was getting his first echo..luckily it came back negative, but my husband and I were shocked..CF?? I literally felt like the sky had fallen on me and I was carrying it around on my shoulders. So we of course all got tested, my daughter is also a carrier, but we learned both my husband and I are carriers (it takes 1 carrier to pass the gene on, but 2 carriers to actually make the disease)..all our children will have a 25% chance of being born with this fatal disease. It's been hard, I always wanted more kids...and we can't..when Dr. M told me she said the lab had said we'd be devestated but "I told them not to worry it was the least of your concerns!".. I'm sure she meant well and probably doesn't realize what it meant for us..but still. </p><p></p><p>Think of the odds. 1 in 10,000 for progressive infantile scoliosis- the only potentially fatal pediatric orthopeadic condition in the world, which my daughter has. 1 in 100 for congenital heart disease, the most common birth defect, my son. ..and 1 in 4 for Cystic Fibrosis, luckily neither. Would I be sick to say we were lucky?</p></blockquote><p></p>
[QUOTE="vtheartmama, post: 402802, member: 10980"] OK really trended off topic towards the end...sorry, I'm a rambler and fast typer... I've had a hard time finding the right pediatrician... Dr. K told me I had to quit breastfeeding my son because it was like a milkshake so I stopped going to her, even though she was always more thorough in evaluation and question answering, I just couldn't hear one more time about my son being "obese" at the age of 9 months. And I knew damn well that breastfeeding was NOT the problem, and by 2 he has slimmed down. My daughter sees a pediatrician. from time to time, Dr. P, when her GP can't see her, but when I brought her in for a Stage 3 cast sore (gaping flesh) and she told me to come into her office because she was sure it wasn't anything exciting, and she gave me bad advice for treating it (because Shriner's gave me the opposite advice which worked GREAT) I stopped liking her so much. So that leaves Dr. Mac who ignored my sons 104.7 degree fever for 3 WEEKS while he vomited and cried and couldn't sleep because he had an ear infection so bad I finally took him to Dr. P who gave him penecillin, his fever spiked over 105 on the penecillin and they switched to augmentin. Next time I came in to Dr. Mac because I wanted his lungs listened too(bronchial infections are bad news for CHD kids), she gave him antibiotics for an ear infection he didn't have because there was an intern present and she said that when they under the age of 2 and have an ear infection antibiotics are always given. SO if in the future you hear me rant and rave about how ****thank you our medical system is, the above is just the tip of the ice berg we've dealt with, my apologies in advance ; ) . Dr. Mac has been with him since he was born and she's good with his heart, knows what to listen for, has 2 TGA babies she treats. That office is "supposed" to be the best in the area. Should just smack my head against the wall and move to a bigger city where my kids can get REAL medical care. So I guess my point is I'm running out of doctors! *L* SLSH- luckily when N was born he had a VSD and Autism Spectrum Disorders (ASD) (holes in the heart) which allowed the blood to mix well, otherwise he'd be dead as the hospital he was at was not prepared for any complications (take a guess how many nurses it took to figure out how to run the oxygen incubator?..they had to call the tech, who still had trouble) His oxygen was 84% and the cardiac surgeon at Boston said that he shouldn't have any brain damage from that. Dr. Mac said the only reason she ordered an EEG (normally she would wait until there was another seizure) was because he was on the heart/lung bypass for surgery. But studies have shown that cardiac kids brains are different from birth, more white matter, and are prone to ADHD. Maybe I should look around, when N was born they did a cystic fibrosis screening and he was found to have the Delta 504 mutation, so we had to do the sweat test the same day he was getting his first echo..luckily it came back negative, but my husband and I were shocked..CF?? I literally felt like the sky had fallen on me and I was carrying it around on my shoulders. So we of course all got tested, my daughter is also a carrier, but we learned both my husband and I are carriers (it takes 1 carrier to pass the gene on, but 2 carriers to actually make the disease)..all our children will have a 25% chance of being born with this fatal disease. It's been hard, I always wanted more kids...and we can't..when Dr. M told me she said the lab had said we'd be devestated but "I told them not to worry it was the least of your concerns!".. I'm sure she meant well and probably doesn't realize what it meant for us..but still. Think of the odds. 1 in 10,000 for progressive infantile scoliosis- the only potentially fatal pediatric orthopeadic condition in the world, which my daughter has. 1 in 100 for congenital heart disease, the most common birth defect, my son. ..and 1 in 4 for Cystic Fibrosis, luckily neither. Would I be sick to say we were lucky? [/QUOTE]
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