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<blockquote data-quote="susiestar" data-source="post: 384522" data-attributes="member: 1233"><p>Has she ever been given a sleep deprived EEG to check for seizures? The pouting for no reason and other things that she does with-o provocation (meaning when you are not telling her something) sound like they could be seizure related. To test for this the doctor will attach wires to her head with a special glue designed for this. Then they will look to see what her brain is doing. There is still a lot we don't know about seizures, but they CAN create many different types of behavior problems. The kind of behavior depends largely on where the seizures are happening in the brain. </p><p> </p><p>WHile this may not be seizure related, I would want an EEG done to rule it out and to give a baseline in case anything happened down the road. You will need to see a pediatrician neurologist to get the test done, though sometimes a pediatrician can order the test - it largely depends on the pediatrician.</p><p> </p><p>Years ago no one was diagnosis'd with ADHD until after this test was done. Nor were they put on medications for adhd, because those medications can make seizures worse. It is impossible to know if the behaviors are related to seizures or something else unless this test is done (and it only catches a certain amt of seizures - if they are deep in the brain an EEG cannot catch them). A member who was here a few years ago had a son diagnosis'd with about every disorder that is represented by capital letters and about every medication had been tried twice with-o helping him. His mom finally got the docs to order an EEG and it was shown that he had some pretty severe seizures. He was then taken OFF of the psychiatric medications and put on anti-seizure medications and his behavior changed a LOT. She encouraged ALL of us to have EEG's done before we medicated our kids. </p><p> </p><p>I will always be glad I paid attention and followed her advice. While neither Wiz nor thank you nor Jess showed what the neuro thought were real signs of seizures, he did agree to do the EEGs on the older 2 (thank you was really little and it wasn't something we spoke about). Wiz' results were fine, and I got those results over the phone. We were asked to come in for Jessie's results, so we knew something had been found. If we had gone ahead and given her the strattera that the psychiatrist and his nurse-practitioner had rx'd to help what they called inattentive adhd, it likely would have made things a LOT worse as far as seizures were concerned. It took quite a while to get her to the right level of the right medication, but it has made a HUGE difference.</p><p> </p><p>Falling asleep after an outburst or rage is very very common if it was caused by a seizure. Many people who have seizures are tired right afterward. </p><p> </p><p>There are MANY types of seizures and it is very common to not know seizures are causing the behaviors. For Jess, her seizures are mostly unnoticeably by anyone. She just stares blankly and has no idea what happened during the seizure. Sounds like no big deal, but at first she was having several seizures a minute and missing about half of everything that happened in her world. We knew we FINALLY had the right medication because she remarked that the days seems a whole lot longer than they ever did before!!!</p></blockquote><p></p>
[QUOTE="susiestar, post: 384522, member: 1233"] Has she ever been given a sleep deprived EEG to check for seizures? The pouting for no reason and other things that she does with-o provocation (meaning when you are not telling her something) sound like they could be seizure related. To test for this the doctor will attach wires to her head with a special glue designed for this. Then they will look to see what her brain is doing. There is still a lot we don't know about seizures, but they CAN create many different types of behavior problems. The kind of behavior depends largely on where the seizures are happening in the brain. WHile this may not be seizure related, I would want an EEG done to rule it out and to give a baseline in case anything happened down the road. You will need to see a pediatrician neurologist to get the test done, though sometimes a pediatrician can order the test - it largely depends on the pediatrician. Years ago no one was diagnosis'd with ADHD until after this test was done. Nor were they put on medications for adhd, because those medications can make seizures worse. It is impossible to know if the behaviors are related to seizures or something else unless this test is done (and it only catches a certain amt of seizures - if they are deep in the brain an EEG cannot catch them). A member who was here a few years ago had a son diagnosis'd with about every disorder that is represented by capital letters and about every medication had been tried twice with-o helping him. His mom finally got the docs to order an EEG and it was shown that he had some pretty severe seizures. He was then taken OFF of the psychiatric medications and put on anti-seizure medications and his behavior changed a LOT. She encouraged ALL of us to have EEG's done before we medicated our kids. I will always be glad I paid attention and followed her advice. While neither Wiz nor thank you nor Jess showed what the neuro thought were real signs of seizures, he did agree to do the EEGs on the older 2 (thank you was really little and it wasn't something we spoke about). Wiz' results were fine, and I got those results over the phone. We were asked to come in for Jessie's results, so we knew something had been found. If we had gone ahead and given her the strattera that the psychiatrist and his nurse-practitioner had rx'd to help what they called inattentive adhd, it likely would have made things a LOT worse as far as seizures were concerned. It took quite a while to get her to the right level of the right medication, but it has made a HUGE difference. Falling asleep after an outburst or rage is very very common if it was caused by a seizure. Many people who have seizures are tired right afterward. There are MANY types of seizures and it is very common to not know seizures are causing the behaviors. For Jess, her seizures are mostly unnoticeably by anyone. She just stares blankly and has no idea what happened during the seizure. Sounds like no big deal, but at first she was having several seizures a minute and missing about half of everything that happened in her world. We knew we FINALLY had the right medication because she remarked that the days seems a whole lot longer than they ever did before!!! [/QUOTE]
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