Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
The Watercooler
ALD strikes in husband's family again:(
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="witzend" data-source="post: 589036" data-attributes="member: 99"><p>How sad, and at such a young age! His parents must be beside themselves. Symptoms can often show up around age 9 - 10, so to happen so young is really not good. I hope that they will be able to get him the care that he needs. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown :(" loading="lazy" data-shortname=":(" /></p><p></p><p>Does the nephew have any siblings? Girls can also have ALD, but because it's an X-Linked chromosome abnormality, and girls have two x chromosomes, they can have mild symptoms or be asymptomatic. The family should all be checked. There may be things that are happening with the girls and women that are being overlooked or not treated correctly that they should have looked at. Also, not sure if anyone is doing studies, but if they're looking for family DNA or tissue, it's good to donate even if you don't have it so that they can look at why, and why some are more affected than others.</p><p></p><p><a href="http://ghr.nlm.nih.gov/condition/x-linked-adrenoleukodystrophy" target="_blank">http://ghr.nlm.nih.gov/condition/x-linked-adrenoleukodystrophy</a></p></blockquote><p></p>
[QUOTE="witzend, post: 589036, member: 99"] How sad, and at such a young age! His parents must be beside themselves. Symptoms can often show up around age 9 - 10, so to happen so young is really not good. I hope that they will be able to get him the care that he needs. :( Does the nephew have any siblings? Girls can also have ALD, but because it's an X-Linked chromosome abnormality, and girls have two x chromosomes, they can have mild symptoms or be asymptomatic. The family should all be checked. There may be things that are happening with the girls and women that are being overlooked or not treated correctly that they should have looked at. Also, not sure if anyone is doing studies, but if they're looking for family DNA or tissue, it's good to donate even if you don't have it so that they can look at why, and why some are more affected than others. [URL]http://ghr.nlm.nih.gov/condition/x-linked-adrenoleukodystrophy[/URL] [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
The Watercooler
ALD strikes in husband's family again:(
Top