Just keep swimming
New Member
Hi family, and happy holidays! :snowman:
Finally was able to meet with Aly's inpatient psychiatrist yesterday and they have a plan! LOVE PLANS! :smile:
The child neurologist will see her sometime in the next week or so and order an EEG. There is an MRI scheduled for Jan. 4th, so now we know she will not be "treated and streeted" as per usual at this hospital!
So far, staff is only seeing a lonely, scared little girl who has HIGH anxiety. We see the same but have seen her have one "seizure" or "pseudo seizure" since she has been inpatient.
psychiatrist looked through all Aly's old records and agreed that there is something that they are just not addressing yet, but he and others haven't yet put their fingers on. I am bringing all educational and neuro psychiatric testing and evaluations for them to be able to compare how she is testing the same now as she did over 4 years ago. That fact alarms him, said yes, medications do dull ability to learn but there should be SOME learing going on.
She is the only child on the unit, so we all get to visit today, let her open her gifts, etc. She can only keep clothing and books on the unit, they won't let her keep any of her other gifts. I asked psychiatrist if we should wait till she gets out to give her her gifts and he said No, that it might trigger something like what we have been seeing at home and school, and unfortunately they do need to see that. They won't let her have the cordless, antennaless radio I looked all over to find! ERR!! psychiatrist wants to see what happens when she gets stressed. Sounds cruel, but I understand where he is coming from.
Anyways, a very different Christmas for this family, but hey, we will still all be together and that's what really counts.
Gotta go get ready to visit our girl. Hope you all have a safe and wonderful holiday!!
:sled:
Vickie
Finally was able to meet with Aly's inpatient psychiatrist yesterday and they have a plan! LOVE PLANS! :smile:
The child neurologist will see her sometime in the next week or so and order an EEG. There is an MRI scheduled for Jan. 4th, so now we know she will not be "treated and streeted" as per usual at this hospital!
So far, staff is only seeing a lonely, scared little girl who has HIGH anxiety. We see the same but have seen her have one "seizure" or "pseudo seizure" since she has been inpatient.
psychiatrist looked through all Aly's old records and agreed that there is something that they are just not addressing yet, but he and others haven't yet put their fingers on. I am bringing all educational and neuro psychiatric testing and evaluations for them to be able to compare how she is testing the same now as she did over 4 years ago. That fact alarms him, said yes, medications do dull ability to learn but there should be SOME learing going on.
She is the only child on the unit, so we all get to visit today, let her open her gifts, etc. She can only keep clothing and books on the unit, they won't let her keep any of her other gifts. I asked psychiatrist if we should wait till she gets out to give her her gifts and he said No, that it might trigger something like what we have been seeing at home and school, and unfortunately they do need to see that. They won't let her have the cordless, antennaless radio I looked all over to find! ERR!! psychiatrist wants to see what happens when she gets stressed. Sounds cruel, but I understand where he is coming from.
Anyways, a very different Christmas for this family, but hey, we will still all be together and that's what really counts.
Gotta go get ready to visit our girl. Hope you all have a safe and wonderful holiday!!
:sled:
Vickie