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another diagnosis today
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<blockquote data-quote="Nancy423" data-source="post: 222115" data-attributes="member: 6118"><p>but not one that will help. I knew it was coming but I guess I didn't want to believe it. In May, she started losing her hair right down the part. In Aug/Sept it started thinning. In Oct she was bald and the eyebrows and eyelashes started falling out.</p><p> </p><p>difficult child has alopecia universalis. So on top of all her other problems, she has absolutely no hair anywhere on her body. The derm says it was probably an overreaction to a fungal infection that caused it. In children, there's less chance that she'll grow the hair back compared to those who lose it as an adult.</p><p> </p><p>she's got some real bad self esteem issues and we've talked several times in the last 6 months aobut how she's feeling ugly and wants her hair back. I've heard her crying a few times but she won't tell me why. </p><p> </p><p>She must also have some sensory issues too because she never liked barrettes, hair bands or pony tails. She only wears bandanas etc for short times. We did get her some soft winter hats to wear, but she'd much rather hide under a sweatshirt hood. She goes bald in her LDSC classroom and she says she's comfortable with that.</p><p> </p><p>I'm worried that she'll spiral down now that she heard her hair may never grow back. I told her we could always buy some (She did laugh at that) but we both agree that she'd never wear a wig. The doctor wants her to use the men's rogaine and a strong cortisone cream for the next month to see if it helps.</p><p> </p><p>We looked online and saw many pictures of other kids/teens that are affected by this disorder. I was upbeat and positive telling her how she's as pretty as always. How she's no different now than when she had hair. I asked if she still liked the same foods, the same color, and same activities. she said yes. I'm also trying to find a message board for her/us to participate on (she was open to that idea) but I'm afraid that it might not be enough.</p><p> </p><p>Any suggestions would be helpful!</p></blockquote><p></p>
[QUOTE="Nancy423, post: 222115, member: 6118"] but not one that will help. I knew it was coming but I guess I didn't want to believe it. In May, she started losing her hair right down the part. In Aug/Sept it started thinning. In Oct she was bald and the eyebrows and eyelashes started falling out. difficult child has alopecia universalis. So on top of all her other problems, she has absolutely no hair anywhere on her body. The derm says it was probably an overreaction to a fungal infection that caused it. In children, there's less chance that she'll grow the hair back compared to those who lose it as an adult. she's got some real bad self esteem issues and we've talked several times in the last 6 months aobut how she's feeling ugly and wants her hair back. I've heard her crying a few times but she won't tell me why. She must also have some sensory issues too because she never liked barrettes, hair bands or pony tails. She only wears bandanas etc for short times. We did get her some soft winter hats to wear, but she'd much rather hide under a sweatshirt hood. She goes bald in her LDSC classroom and she says she's comfortable with that. I'm worried that she'll spiral down now that she heard her hair may never grow back. I told her we could always buy some (She did laugh at that) but we both agree that she'd never wear a wig. The doctor wants her to use the men's rogaine and a strong cortisone cream for the next month to see if it helps. We looked online and saw many pictures of other kids/teens that are affected by this disorder. I was upbeat and positive telling her how she's as pretty as always. How she's no different now than when she had hair. I asked if she still liked the same foods, the same color, and same activities. she said yes. I'm also trying to find a message board for her/us to participate on (she was open to that idea) but I'm afraid that it might not be enough. Any suggestions would be helpful! [/QUOTE]
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