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Any updates on Margs sister today?
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<blockquote data-quote="Marguerite" data-source="post: 349171" data-attributes="member: 1991"><p>As far as insult to her lungs - not that it matters now, but she was about 6-8 weeks premature (back in 1948, when there was a lot less that could be done) and was a sickly child. Her twin sister (not identical) was full-term. Go figure. There is another set of twins in the family, older - I found out only a couple of days ago that one as also underdeveloped and a bit premature compared to her twin brother. They were born during WWII. I'm postulating our mother had a double uterus.</p><p></p><p>J was prem, as I said. She had encephalitis at 3. Rheumatic fever at 5. I remember her getting her appendix out at 15, us all getting mumps when she was 14, chickenpox when she was 16. </p><p></p><p>In recent months she was taking those pills which are made form cow colostrum, despite believing herself to be allergic to cows milk. She was also having yogurt for breakfast every day. We've been told that worrying about the cause now is pointless, yet they're still asking us questions about her exposure to dust.</p><p></p><p>As far as exposure to dust - they recently were renovating and removed an old fibro shed from their backyard. There may have been sanding and sawing of fibro going on, but she wouldn't have been doing that. There was that bad dust storm in Sydney about last October/November when the sky turned blood-red for several days. Infection - she was definitely exposed to both whooping cough and mycoplasma at easy child's wedding last May.</p><p></p><p>So we've been thinking - her lungs are her weak point (as they were with our mother). She may have picked up the infections from husband & difficult child 3 in May, I don't think I would have still been infectious in October but she could also have picked up whooping cough from anybody, although her husband does not report a typical cough. The building dust plus dust storm dust plus possible overactive immune system could have been combination triggers. Our main concern re triggers, is to make sure that first, she's not currently exposed to them (as far as we can ensure) and that if she gets a transplant, her new lungs wouldn't be similarly assaulted. But she would be on immunosuppressants, so there should be less problem. Plus I would hope that she wouldn't take anything, not even a vitamin pill, without her doctors agreeing.</p><p></p><p>But that is currently academic - she's not yet on any transplant list, her diagnosis is still unofficial. But we're almost certain that the immunologist was right.</p><p></p><p>We've been told the current problem is not immunological. If it were, she would probably not be able to be a transplant candidate. So we hang on to that.</p><p></p><p>It will be at least 24 hours, probably 48 or longer, before there is any news from pathology. All we can hope for in the meantime is that she holds her own (or improves at least a bit) and that her kids and husband don't get into any arguments. Things aren't perfect there - her kids are naturally frantic, but her husband, despite being a control freak who is currently not able to be in control, is actually making the right decisions and the kids don't always understand or agree. He's their stepdad, although my sister and her husband are on good terms with her ex.</p><p></p><p>Keep us in your thoughts. She's holding her own.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 349171, member: 1991"] As far as insult to her lungs - not that it matters now, but she was about 6-8 weeks premature (back in 1948, when there was a lot less that could be done) and was a sickly child. Her twin sister (not identical) was full-term. Go figure. There is another set of twins in the family, older - I found out only a couple of days ago that one as also underdeveloped and a bit premature compared to her twin brother. They were born during WWII. I'm postulating our mother had a double uterus. J was prem, as I said. She had encephalitis at 3. Rheumatic fever at 5. I remember her getting her appendix out at 15, us all getting mumps when she was 14, chickenpox when she was 16. In recent months she was taking those pills which are made form cow colostrum, despite believing herself to be allergic to cows milk. She was also having yogurt for breakfast every day. We've been told that worrying about the cause now is pointless, yet they're still asking us questions about her exposure to dust. As far as exposure to dust - they recently were renovating and removed an old fibro shed from their backyard. There may have been sanding and sawing of fibro going on, but she wouldn't have been doing that. There was that bad dust storm in Sydney about last October/November when the sky turned blood-red for several days. Infection - she was definitely exposed to both whooping cough and mycoplasma at easy child's wedding last May. So we've been thinking - her lungs are her weak point (as they were with our mother). She may have picked up the infections from husband & difficult child 3 in May, I don't think I would have still been infectious in October but she could also have picked up whooping cough from anybody, although her husband does not report a typical cough. The building dust plus dust storm dust plus possible overactive immune system could have been combination triggers. Our main concern re triggers, is to make sure that first, she's not currently exposed to them (as far as we can ensure) and that if she gets a transplant, her new lungs wouldn't be similarly assaulted. But she would be on immunosuppressants, so there should be less problem. Plus I would hope that she wouldn't take anything, not even a vitamin pill, without her doctors agreeing. But that is currently academic - she's not yet on any transplant list, her diagnosis is still unofficial. But we're almost certain that the immunologist was right. We've been told the current problem is not immunological. If it were, she would probably not be able to be a transplant candidate. So we hang on to that. It will be at least 24 hours, probably 48 or longer, before there is any news from pathology. All we can hope for in the meantime is that she holds her own (or improves at least a bit) and that her kids and husband don't get into any arguments. Things aren't perfect there - her kids are naturally frantic, but her husband, despite being a control freak who is currently not able to be in control, is actually making the right decisions and the kids don't always understand or agree. He's their stepdad, although my sister and her husband are on good terms with her ex. Keep us in your thoughts. She's holding her own. Marg [/QUOTE]
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