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General Parenting
Are there benefits to losing an Autism Spectrum Disorders (ASD) diagnosis?
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<blockquote data-quote="TheBoyHasArrived" data-source="post: 581031" data-attributes="member: 14829"><p>Insane, that's exactly my worry--that things are getting missed, because "he's doing really well for a kid with Autism Spectrum Disorders (ASD) (and MR, but that's just implied, not stated)." We have private insurance through work and Kiddo does not have medicaid, and we get no therapies at all covered. He qualifies for Occupational Therapist (OT) and Speech (significant delays in both), but it's out of pocket. </p><p></p><p> MM- Who knows what is "main" issue is at this point. I second guess myself daily. Right now, he has an array of diagnoses that may or may not be the actual problem. We definitely have attachment issues, but I don't *think* it's Reactive Attachment Disorder (RAD). We've seen a neurologist, and she's great but I think she feels like she did the testing, and it came back okay, so we're done. He's had genetic testing, an EEG and an MRI. EEG was abnormal but no seizure activity (I'm not sure how a 60 minute EEG means that he doesn't have seizures the other 364 days and 23 hours a year)...waiting to schedule a sleep study.</p><p></p><p> I don't think the labels are helping us at this point, but since he doesn't HAVE to be re-evaluation'd for a couple of years, I was just wondering if there was anything that I wasn't thinking about that losing the diagnoses would impact. There's only one "expert" that I know of and he is $$$, but we're thinking about going to see him. It would probably be worth it just to have the complete evaluation done by someone who has actually seen a kid like mine <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> Just waiting to see if Kiddo #2 will be here by summer so we can schedule a baseline appointment at the same time.</p></blockquote><p></p>
[QUOTE="TheBoyHasArrived, post: 581031, member: 14829"] Insane, that's exactly my worry--that things are getting missed, because "he's doing really well for a kid with Autism Spectrum Disorders (ASD) (and MR, but that's just implied, not stated)." We have private insurance through work and Kiddo does not have medicaid, and we get no therapies at all covered. He qualifies for Occupational Therapist (OT) and Speech (significant delays in both), but it's out of pocket. MM- Who knows what is "main" issue is at this point. I second guess myself daily. Right now, he has an array of diagnoses that may or may not be the actual problem. We definitely have attachment issues, but I don't *think* it's Reactive Attachment Disorder (RAD). We've seen a neurologist, and she's great but I think she feels like she did the testing, and it came back okay, so we're done. He's had genetic testing, an EEG and an MRI. EEG was abnormal but no seizure activity (I'm not sure how a 60 minute EEG means that he doesn't have seizures the other 364 days and 23 hours a year)...waiting to schedule a sleep study. I don't think the labels are helping us at this point, but since he doesn't HAVE to be re-evaluation'd for a couple of years, I was just wondering if there was anything that I wasn't thinking about that losing the diagnoses would impact. There's only one "expert" that I know of and he is $$$, but we're thinking about going to see him. It would probably be worth it just to have the complete evaluation done by someone who has actually seen a kid like mine :) Just waiting to see if Kiddo #2 will be here by summer so we can schedule a baseline appointment at the same time. [/QUOTE]
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Are there benefits to losing an Autism Spectrum Disorders (ASD) diagnosis?
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