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Arrrgghh, so many questions
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<blockquote data-quote="kailey47" data-source="post: 524851" data-attributes="member: 14424"><p>Well I have been incredibly busy the last couple of days. K ended up having a gastro bug yesterday so I got to spend the day at home and spent it researching local services and phoning a million places talking to the staff trying to find the right fit. I live in a smaller city where services are limited, and I have found that a major hurdle and my only real success so far has been when I have managed to find visiting specialists. </p><p></p><p>I finally found an allied health centre that has psychiatric, Speech, Occupational Therapist (OT) all in the same place and they work on a holistic approach instead of treating their own little bit seperately. I feel this will be a huge benefit to H as she has so many overlapping issues. I have found a visiting allergy clinic that works with intolerences and helps you with diet etc. After talking to all of them I feel pretty confident we are on the same page and I am impressed at how in depth their initial forms are. Obviously until you sit down with them you can't know for sure, but so far I am happy it is the right path. They are all aware that I am over the run around and want to be taken seriously. </p><p></p><p>I have also spoken to Vision Australia (our support for low vision/blindness in Australia) and found out we may be entitled to help due to H's significant vision impairment. I am not sure why it never occured to me before to check this out, but it would be nice to get some help for once. Hopefully they will also be able to help us distinguish what is due to her vision and what is due to something else.</p><p></p><p>One major hurdle I have is that I have a few chronic health issues myself and a partner who is away alot for work. So everything tends to fall on my shoulders which at times I just can't handle. Also dealing with his families inability to accept there are problems and total lack of respect for our rules (additive free diet etc). I talked to me ex sister in law (partners side of the family) and it turns out she is currently in the process of getting both my niece & nephew assessed (started as sensory issues, but psychiatric believes they may be on the spectrum) So maybe there is more to it that has just not been picked up before.</p><p></p><p>Thanks again for all your replies, it has been a refereshing change to hear people understand where I am coming from instead of telling me they are fine and not to worry. I know people mean well but it so damn frustrating when your concerns are ignored or brushed aside.</p><p></p><p>Cheers</p></blockquote><p></p>
[QUOTE="kailey47, post: 524851, member: 14424"] Well I have been incredibly busy the last couple of days. K ended up having a gastro bug yesterday so I got to spend the day at home and spent it researching local services and phoning a million places talking to the staff trying to find the right fit. I live in a smaller city where services are limited, and I have found that a major hurdle and my only real success so far has been when I have managed to find visiting specialists. I finally found an allied health centre that has psychiatric, Speech, Occupational Therapist (OT) all in the same place and they work on a holistic approach instead of treating their own little bit seperately. I feel this will be a huge benefit to H as she has so many overlapping issues. I have found a visiting allergy clinic that works with intolerences and helps you with diet etc. After talking to all of them I feel pretty confident we are on the same page and I am impressed at how in depth their initial forms are. Obviously until you sit down with them you can't know for sure, but so far I am happy it is the right path. They are all aware that I am over the run around and want to be taken seriously. I have also spoken to Vision Australia (our support for low vision/blindness in Australia) and found out we may be entitled to help due to H's significant vision impairment. I am not sure why it never occured to me before to check this out, but it would be nice to get some help for once. Hopefully they will also be able to help us distinguish what is due to her vision and what is due to something else. One major hurdle I have is that I have a few chronic health issues myself and a partner who is away alot for work. So everything tends to fall on my shoulders which at times I just can't handle. Also dealing with his families inability to accept there are problems and total lack of respect for our rules (additive free diet etc). I talked to me ex sister in law (partners side of the family) and it turns out she is currently in the process of getting both my niece & nephew assessed (started as sensory issues, but psychiatric believes they may be on the spectrum) So maybe there is more to it that has just not been picked up before. Thanks again for all your replies, it has been a refereshing change to hear people understand where I am coming from instead of telling me they are fine and not to worry. I know people mean well but it so damn frustrating when your concerns are ignored or brushed aside. Cheers [/QUOTE]
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