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General Parenting
Bad News: Multiple seizures per minute.....figures!
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<blockquote data-quote="paperplate" data-source="post: 580479" data-attributes="member: 15831"><p>Yes, it would have been nice to have the info sooner. Problem is, in closed adoptions, you don't get much information. Mom was a 16 year old and really didn't give much for medical. Basically height , weight etc... When I met her, it was 37 yrs later and obviously, by then, she was mature enough to give details. What they really need is some type of system that bio parents can update medical if they choose to, then the adopted child & their families can check it as needed. It would have been nice to know. When the seizures first started, we thought 'brain tumor!' Talk about a panic when u get sent for that first MRI. As far as his memory goes, it's probably the worst part in all of this. Basically, when he reads a book, it's like only reading every other sentence and than trying to comprehend it! But math isn't an issue. He's a human calculator. He does mass equations in his head. Maybe I need to help him find a career path involving mainly math. I've been looking into it, even found a couple of great math summer programs at the community college for kids<img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> So for now, he's getting blood work every 4 weeks to check toxicity, and his next neuro is 3 months away. So at least we get a break from the CONSTANT doctor appointments. Feels like all we do is go to the doctors!</p></blockquote><p></p>
[QUOTE="paperplate, post: 580479, member: 15831"] Yes, it would have been nice to have the info sooner. Problem is, in closed adoptions, you don't get much information. Mom was a 16 year old and really didn't give much for medical. Basically height , weight etc... When I met her, it was 37 yrs later and obviously, by then, she was mature enough to give details. What they really need is some type of system that bio parents can update medical if they choose to, then the adopted child & their families can check it as needed. It would have been nice to know. When the seizures first started, we thought 'brain tumor!' Talk about a panic when u get sent for that first MRI. As far as his memory goes, it's probably the worst part in all of this. Basically, when he reads a book, it's like only reading every other sentence and than trying to comprehend it! But math isn't an issue. He's a human calculator. He does mass equations in his head. Maybe I need to help him find a career path involving mainly math. I've been looking into it, even found a couple of great math summer programs at the community college for kids:) So for now, he's getting blood work every 4 weeks to check toxicity, and his next neuro is 3 months away. So at least we get a break from the CONSTANT doctor appointments. Feels like all we do is go to the doctors! [/QUOTE]
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Bad News: Multiple seizures per minute.....figures!
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