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Bad News: Multiple seizures per minute.....figures!
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<blockquote data-quote="susiestar" data-source="post: 580619" data-attributes="member: 1233"><p>I am so sorry. Seizures can and do affect EVERY SINGLE ASPECT of a person's life and behavior. If the brain has an impact on the behavior, a seizure can too. WIth that many seizures, he NEEDS more help. I would push to find out what can help other than just increasing one medication. are there non-medication things that can help? What are they? Ask about a therapy dog. I know several people hwo have them for epilepsy, though I don't know what the dogs do to help. I just know that the people with them say they help in a lot of ways.</p><p></p><p>What research have you done on the type of seizures he has? Sometimes we have to find the info and alternatives and take them to the docs. Lots of times, actually/ (I have gotten most of my diagnosis's after I did research and took into to my docs, not the other way around sadly. Thank heaven for the internet because you can access so much different info on almost anything.)</p><p></p><p>If he is having this many seizures, what do they want you to do to stop them? These can be causing damage to his brain, and a new MRI should be a high priority. Consider asking for a functional MRI and/or a PET scan of the brain. I don't specifically know how these help, but I do know a few people who got a lot more effective help for seizures after them. One cousin was subjected to various things that they thought were causing seizures and they used an MRI to see how she was affected by them. They were able to give her more help after that because they had more info about what was going on. </p><p></p><p>having Medicaid in addition to the reg insurance means these things are not as hard to get. We actually got more testing and treatment with medicaid than with reg ins because I don't know why, but it was very helpful and cost us nothing at all. </p><p></p><p>Please push the docs to treat this aggressively and to stop any medications that might increase seizures, like stims esp.</p></blockquote><p></p>
[QUOTE="susiestar, post: 580619, member: 1233"] I am so sorry. Seizures can and do affect EVERY SINGLE ASPECT of a person's life and behavior. If the brain has an impact on the behavior, a seizure can too. WIth that many seizures, he NEEDS more help. I would push to find out what can help other than just increasing one medication. are there non-medication things that can help? What are they? Ask about a therapy dog. I know several people hwo have them for epilepsy, though I don't know what the dogs do to help. I just know that the people with them say they help in a lot of ways. What research have you done on the type of seizures he has? Sometimes we have to find the info and alternatives and take them to the docs. Lots of times, actually/ (I have gotten most of my diagnosis's after I did research and took into to my docs, not the other way around sadly. Thank heaven for the internet because you can access so much different info on almost anything.) If he is having this many seizures, what do they want you to do to stop them? These can be causing damage to his brain, and a new MRI should be a high priority. Consider asking for a functional MRI and/or a PET scan of the brain. I don't specifically know how these help, but I do know a few people who got a lot more effective help for seizures after them. One cousin was subjected to various things that they thought were causing seizures and they used an MRI to see how she was affected by them. They were able to give her more help after that because they had more info about what was going on. having Medicaid in addition to the reg insurance means these things are not as hard to get. We actually got more testing and treatment with medicaid than with reg ins because I don't know why, but it was very helpful and cost us nothing at all. Please push the docs to treat this aggressively and to stop any medications that might increase seizures, like stims esp. [/QUOTE]
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Bad News: Multiple seizures per minute.....figures!
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