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Bully problem, still!!
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<blockquote data-quote="Marguerite" data-source="post: 148316" data-attributes="member: 1991"><p>difficult child 3 and difficult child 1 both have a concurrent diagnosis of Pervasive Developmental Disorder (PDD) plus ADHD and are on stims. difficult child 3 has been on stims since he was 3 years old (the improvement in him was almost miraculous), difficult child 1 since he was 6. difficult child 1 didn't get the Asperger's diagnosis until he was 15 or 16.</p><p></p><p>For difficult child 1, his first medications were Ritalin. He improved a fair bit but still fell a long way short. I kept wanting the medications to be increased but the doctor he had at the time was downright weird. Finally, after the doctor began to be a little TOO inappropriate, we switched to another who immediately doubled the Ritalin. Back then we only had short-acting available and by the time he was 10, difficult child 1 was showing problems with rebound.</p><p></p><p>When we realised we had problems with difficult child 3 and easy child 2/difficult child 2 as well, we had to change doctors again because difficult child 1's current doctor couldn't take on the other two (full caseload) so we switched again (to the current doctor) who put the younger two on dex and switched difficult child 1 to dex as well. No rebound any more, but we still had problems with the school failing to chase difficult child 1 up to medicate him, so this new doctor found a compounding pharmacist who privately makes up the kids' dex into long-acting formulation - one morning dose and the entire day was covered.</p><p></p><p>In December the doctor changed difficult child 3's medications to Concerta (it's cheaper for us). The older two didn't want to change so they're still on dex. In recent weeks we've noticed increasing problems with difficult child 3, as if medications aren't working. Since the switch, we've noticed what seems to be rebound in the evenings. I discussed it with the doctor, he said the rebound could be due to the dose being too low (recent growth spurt, plus he prescribed a bit lower than he meant to) so we tried the higher dose yesterday - no rebound, but difficult child 3 was insomniac last night plus still doesn't function as well as on dex, so it looks like we're going to go off Concerta and back to dex.</p><p></p><p>We have had problems with antidepressants, with difficult child 3 - but not difficult child 1 or easy child 2/difficult child 2. I can't tolerate antidepressants myself.</p><p></p><p>difficult child 3's best friend also has a diagnosis of Pervasive Developmental Disorder (PDD) plus ADHD and takes Concerta (was unmedicated until recently). He's doing brilliantly, no problems with the stims at all (other than his mother cutting Concerta in half to ration them, so she can sneak a few for herself).</p><p></p><p>So as far as I can determine -</p><p></p><p>1) you can have Pervasive Developmental Disorder (PDD) plus other conditions, just as you can have ADHD plus other conditions;</p><p></p><p>2) Stims aren't necessarily a problem with Pervasive Developmental Disorder (PDD) (haven't been at all, in my experience) but if there is another concurrent condition for which stims COULD be a problem, then having that condition plus ADHD could be a real downer;</p><p></p><p>3) Our kids are complex and can be a very interesting mix indeed, reacting (or not reacting) to stims in very individual ways, independent of underlying disorders which might be incompatible.</p><p></p><p>The sensory stuff you describe sounds like my kids, only I've got it in three different forms. easy child 2/difficult child 2 seems the most obsessive, although all of them have strong dislikes in certain textures especially in clothing. difficult child 3 loves the feel of towelling, the other two love silky fabrics (I bought difficult child 1 a pair of pure silk boxer shorts) and easy child 2/difficult child 2 is also hooked on the feel of fur and velvet. They all like the feeling of being held firmly, as long as they are in control of it. Hug vests for the boys, and my daughter chooses to wear Victorian-style corsets (in velvet).</p><p></p><p>Sounds like you're really in tune with how your son thinks - I've found that to be the best way to cope.</p><p></p><p>I hope you can find ways to keep your son safe and also help him learn appropriate ways to cope. It really is horrible when this sort of thing happens. I hate it.</p><p></p><p>I hope the info helps.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 148316, member: 1991"] difficult child 3 and difficult child 1 both have a concurrent diagnosis of Pervasive Developmental Disorder (PDD) plus ADHD and are on stims. difficult child 3 has been on stims since he was 3 years old (the improvement in him was almost miraculous), difficult child 1 since he was 6. difficult child 1 didn't get the Asperger's diagnosis until he was 15 or 16. For difficult child 1, his first medications were Ritalin. He improved a fair bit but still fell a long way short. I kept wanting the medications to be increased but the doctor he had at the time was downright weird. Finally, after the doctor began to be a little TOO inappropriate, we switched to another who immediately doubled the Ritalin. Back then we only had short-acting available and by the time he was 10, difficult child 1 was showing problems with rebound. When we realised we had problems with difficult child 3 and easy child 2/difficult child 2 as well, we had to change doctors again because difficult child 1's current doctor couldn't take on the other two (full caseload) so we switched again (to the current doctor) who put the younger two on dex and switched difficult child 1 to dex as well. No rebound any more, but we still had problems with the school failing to chase difficult child 1 up to medicate him, so this new doctor found a compounding pharmacist who privately makes up the kids' dex into long-acting formulation - one morning dose and the entire day was covered. In December the doctor changed difficult child 3's medications to Concerta (it's cheaper for us). The older two didn't want to change so they're still on dex. In recent weeks we've noticed increasing problems with difficult child 3, as if medications aren't working. Since the switch, we've noticed what seems to be rebound in the evenings. I discussed it with the doctor, he said the rebound could be due to the dose being too low (recent growth spurt, plus he prescribed a bit lower than he meant to) so we tried the higher dose yesterday - no rebound, but difficult child 3 was insomniac last night plus still doesn't function as well as on dex, so it looks like we're going to go off Concerta and back to dex. We have had problems with antidepressants, with difficult child 3 - but not difficult child 1 or easy child 2/difficult child 2. I can't tolerate antidepressants myself. difficult child 3's best friend also has a diagnosis of Pervasive Developmental Disorder (PDD) plus ADHD and takes Concerta (was unmedicated until recently). He's doing brilliantly, no problems with the stims at all (other than his mother cutting Concerta in half to ration them, so she can sneak a few for herself). So as far as I can determine - 1) you can have Pervasive Developmental Disorder (PDD) plus other conditions, just as you can have ADHD plus other conditions; 2) Stims aren't necessarily a problem with Pervasive Developmental Disorder (PDD) (haven't been at all, in my experience) but if there is another concurrent condition for which stims COULD be a problem, then having that condition plus ADHD could be a real downer; 3) Our kids are complex and can be a very interesting mix indeed, reacting (or not reacting) to stims in very individual ways, independent of underlying disorders which might be incompatible. The sensory stuff you describe sounds like my kids, only I've got it in three different forms. easy child 2/difficult child 2 seems the most obsessive, although all of them have strong dislikes in certain textures especially in clothing. difficult child 3 loves the feel of towelling, the other two love silky fabrics (I bought difficult child 1 a pair of pure silk boxer shorts) and easy child 2/difficult child 2 is also hooked on the feel of fur and velvet. They all like the feeling of being held firmly, as long as they are in control of it. Hug vests for the boys, and my daughter chooses to wear Victorian-style corsets (in velvet). Sounds like you're really in tune with how your son thinks - I've found that to be the best way to cope. I hope you can find ways to keep your son safe and also help him learn appropriate ways to cope. It really is horrible when this sort of thing happens. I hate it. I hope the info helps. Marg [/QUOTE]
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