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General Parenting
cant cope?? or wont...that is the question.
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<blockquote data-quote="shad16_12" data-source="post: 251963" data-attributes="member: 6964"><p>hi jena...he was taking Neutropin for about 3 yrs. His anxiety got the best of him though i think and he refused to take it after that because it hurt too much...He hates needles and getting blood out of him is still a big pita...He's a rare case some doctors call his condition Turners and some call it mixed gonadal dysgenesis because they say only girls get turners. He was diagnosed prenatally through amnio with turners so it was a big surprise when he was a boy. He has the 45X cell pattern but he also has 45 x dicentric Y (which means the y is there but the small arm broke off and joined back on in a different place on the long arm and also he has a marker chromosome which is also a little piece of the short arm of the y...He had enough to make him all male but he did have to have a streak gonad (which never developed either way into a male or female part removed when he was five because it carries a huge risk of developing cancer. He's 16 and is 4'10" and about 110 lbs. He hasnt grown hardly at all since stopping GH. Puberty coming along well though...he doesnt have the coarctation of the aeorta or kidney problems or webbed neck or sheild chest. His 4th and 5th metacarpals are short and his finger nails are hypoplastic and do grow upward if you let them get too long...He bites them all off before that happens anyway...lol. He has all of the neurological problems associated with Turners...NonVerbal Learning Disorder (NVLD), ADHD, anxiety....Ive never talked to anyone with turners tho...sonja</p></blockquote><p></p>
[QUOTE="shad16_12, post: 251963, member: 6964"] hi jena...he was taking Neutropin for about 3 yrs. His anxiety got the best of him though i think and he refused to take it after that because it hurt too much...He hates needles and getting blood out of him is still a big pita...He's a rare case some doctors call his condition Turners and some call it mixed gonadal dysgenesis because they say only girls get turners. He was diagnosed prenatally through amnio with turners so it was a big surprise when he was a boy. He has the 45X cell pattern but he also has 45 x dicentric Y (which means the y is there but the small arm broke off and joined back on in a different place on the long arm and also he has a marker chromosome which is also a little piece of the short arm of the y...He had enough to make him all male but he did have to have a streak gonad (which never developed either way into a male or female part removed when he was five because it carries a huge risk of developing cancer. He's 16 and is 4'10" and about 110 lbs. He hasnt grown hardly at all since stopping GH. Puberty coming along well though...he doesnt have the coarctation of the aeorta or kidney problems or webbed neck or sheild chest. His 4th and 5th metacarpals are short and his finger nails are hypoplastic and do grow upward if you let them get too long...He bites them all off before that happens anyway...lol. He has all of the neurological problems associated with Turners...NonVerbal Learning Disorder (NVLD), ADHD, anxiety....Ive never talked to anyone with turners tho...sonja [/QUOTE]
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