Clonidine -- your experiences and advice please

Discussion in 'General Parenting' started by laurensmyprincess, Aug 13, 2008.

  1. laurensmyprincess

    laurensmyprincess New Member

    My daughter has been prescribed clonidine to help with impulsivity, hyperness and general aggression. She has attention issues too, and i know this drug is not as affective for attention. She has epilepsy though so this was considered the best drug to try even though it is not a first line drug for ADHD.

    She is starting at 0.025 mg/night (I think that's right) and see how she does. I know that it can be highly sedating. I'm wondering how this amount can help with daytime issues if she only takes it at night?

    Experiences? Words of wisdom?
  2. Shari

    Shari IsItFridayYet?

    My son is extremely sensitive to this drug. He was on it to calm him down, too. Frankly, it knocked him out and he never really got over that side effect. We titrated the dose down to 1/8 of the .025mg tablet and it still makes him exremely groggy. The real downside for us, tho, was it made him mire aggressive.

    Now we only use it on an emergency basis to knock him out when he's really out of control.

    It works for some, but that's my experience.

    Good luck.
  3. OpenWindow

    OpenWindow Active Member

    My son took it because the doctor thought he wasn't getting enough "good sleep" at night, and he said it would help with some ADHD symptoms during the day. He took it at night before going to bed and it knocked him out. He took it for about a month, and slept all the time including during school. He went to bed almost every night by about 7. While he was awake he was very calm, but tired and cranky.

    It's actually a blood pressure medicine. My son has low blood pressure to begin with, so we had to keep checking to make sure it didn't get too low. The school nurse checked it every few days.
  4. 4sumrzn

    4sumrzn New Member

    My difficult child takes it in the morning & in the afternoon if needed. It does not make her sleepy at all......just calms her down a notch.
  5. JJJ

    JJJ Active Member

    My youngest takes it. For us it has been a God-send. My son have very bed reactions to the stimulants and even to Strattera. It is the only medication that gives him even a touch of control over his impulsive behaviors.
  6. laurensmyprincess

    laurensmyprincess New Member

    Thank you for your replies so far.

    Shari, how did you split that teeny pill into 1/8th?

    Can this medication be taken as needed or do you need to build it up in your system?
  7. smallworld

    smallworld Moderator

    You shouldn't take any blood pressure medication like Clonidine as needed because it can cause dangerous spikes in blood pressure, especially in children.
  8. laurensmyprincess

    laurensmyprincess New Member

    Thanks Smallworld.
  9. Steely

    Steely Active Member

    DITTO............This medication has been amazing for us.
    Good luck.
  10. terryboberry

    terryboberry New Member

    My difficult child was on clonidine.... we called in "clonk" idine :) It really clonked him out for the night.

    difficult child was in psychiatric hospital for 2 weeks in April with school refusal, agitation, depression and we thought maybe BiPolar (BP). They took him off adderrall xr, prozac, abilify and the clonidine. The psychiatric hospital saw no signs of BiPolar (BP). They wouldn't come out and say it, but I think the "mania" type aggression, weird behavior and self-injury was because he was over-stimulated by the medications.

    Instead of clonidine for his aggression and ODD, he is now on tenex 2x a day. The psychiatric hospital said something about the "rebound" of the clonidine being hard on him. Maybe because you take clonidine at night, the "rebound" happens during the day? The tenex seems to lower his general tone. He's not so quick to get frustrated or angry. His ADHD medication is vyvanse. No other medications.

    Good luck with the clonidine. We sure liked how it helped him fall asleep, if nothing else.

    Good luck to you.
  11. laurensmyprincess

    laurensmyprincess New Member

    Thanks everyone!

    Steely, what made it a God send for your difficult child? What behaviors did it touch?

    I chickenend out and gave her only 1/2 of a 0.025mg was probably around .015mg that she got. THat was about 20 minutes ago and she is still up and watching a movie. I know it's a really low dose, but I hate giving it to her in the 1st place.

    I'll let you know if she conks. I hope she doesnt though -- we don't really want it for conking out, we want it for calming behaviors. If she can tolerate it at night without too much sedation, we might start in the morning in time.
  12. Wiped Out

    Wiped Out Well-Known Member Staff Member

    My difficult child has been on Clonidine for several years now. He takes it for two purposes. He takes .1 mg at night to help with sleep. Without it the guy never sleeps!

    He also takes it in the morning and in the late afternoon (.05 mgs) to help with his ADHD symptoms. He can't take any stimulants with his Bipolar so we use the Clonidine. It does help some with those symptoms. They tried a day without it when he was in the hospital and they couldn't believe how different he was without it.
  13. amazeofgrace

    amazeofgrace New Member

    Both my difficult child's take it, difficult child I takes .05 b4 bed and difficult child II takes .05 3 x's a day, it is also a Godsend here, it keeps both difficult child's just under that line of completely out of control. Not to say we still do not have bad days, we do, just nothing too over the top anymore
  14. laurensmyprincess

    laurensmyprincess New Member

    Well, I did end up giving her the other 1/2 tab 45 minutes after the first. It took her another 45 minutes to fall asleep (which is her normal bedtime these days anyway) so it doesnt appear to have the sedating effect at least at this dose. I should probably try it in the morning and see how she does.

    What do you think?
  15. Steely

    Steely Active Member

    Yes, you could definitely try it the morning as well. It is only knock out sedating at higher doses. For us, difficult child takes it in the morning and night, and it seems to keep his anger and hostility from ever completely going over the top. It is like he has a little bit more glue added to his brain to keep him all pulled together.
  16. Shari

    Shari IsItFridayYet?

    How to split it into an 1/8 tablet? Very carefully and unscientifically.

    (and it still knocked him out, even at that dose, which is why we can get by using it PRN).