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DD1 is really scaring me I need insights PLEASE
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<blockquote data-quote="keista" data-source="post: 429962" data-attributes="member: 11965"><p>Thanks again for insights. </p><p></p><p>I understand the concern and the possibility that DD1 has an Autism Spectrum Disorders (ASD), but she is soooooo NOT on the AS. DD2 and I are closer to the AS than DD1. However, 2 psychiatrists also suggested it, mostly because she never warmed up to them, and in her stranger anxiety state, she def looks like she might be on the AS. She was screened and evaluated for Autism Spectrum Disorders (ASD) when we did her (supposedly) full psychiatric evaluation. Nope. She was also screened and tested for ADD/ADHD, and got a negatory there as well.</p><p></p><p>I also was thinking that yesterdays activities seemed very ADHD like, but again, that wasn't a normal state for her. Today she's done quite a few things, but certainly not as active as yesterday. Might be dubbing it her "ADHD episode" LOL Difficult yes, but more preferable to the "creepy episodes"</p><p></p><p>Started thinking about what Hound dog said about comparing symptoms/behaviors. Her next therapist session will actually be for me, to discuss her whole symptom progression. Just by really thinking about it, I came to realize that her symptoms/behaviors haven't really "changed" per se. Differences in the way they present and intensity and frequency, sure. Planning to plot it all out on a spreadsheet.</p><p></p><p>Researched phosps and it so does not look good. The one in this county has 16 beds and is mostly for involuntary commits. It's called the Baker Act here, and it doesn't take much at all to get anyone "Baker Acted" My son was Baker Acted at the beginning of middle school. The exact words that got him there were, "I have two choices, either be in jail or six feet under" It was said in a conversational tone, but to the school resource officer (regular cop).Anyway, the other psychiatric hospital is the next county over, same distance from my house, but has two Yellow Pages reviews and they aren't good. Investigations of violent/inappropriate behavior by staff members. But the new "good" insurance would probably stay in county anyway.</p><p></p><p>So, this new "good" insurance isn't as good as I thought it was, but still better than the old plan. Covers Abilify without batting an eyelash, no copays, easy referrals. Might not be as easy to get the neuropsychologist evaluation as I thought it would be, but also probably not as tough as with other plans.</p><p></p><p>Ah the sensory issue I always forget about. Loud noises bug her - especially crowds - lots of different loud nises converging into one. My dilemma here is what do I check first, sensory or auditory. Son has the same thing. Their hearing is REALLY good, so is it just good hearing or something more? Neither have had any ear infections that caused pain or required medication - don't know if it's relevant or related. This issue is always on the back burner because we manage to manage the obvious effects easily enough, but I guess there could be effects and issues in the not so obvious settings. Any thoughts on which to explore first would be appreciated.</p><p></p><p>Did some research on seizures. Had pretty good background knowledge since my GM had both petit and gran mal seizures. Never heard of partial brain seizures until yesterday, but again, it just kinda fit - not "textbook" - so will explore that avenue as well.</p><p></p><p><span style="font-size: 15px"><strong>******* WTH was that???????????***************</strong></span></p><p><span style="font-size: 15px"><strong></strong></span></p><p><span style="font-size: 15px"><strong></strong><span style="font-size: 12px">So I've been composing this for about 2 hrs. taking breaks to smoke, hang with the kids, play a game, etc. Got up to get the girls ready for bed at 7:50 they took their melatonin (yea, should add that in my signature) DD2 is hugging on me, playing a few silly talking games, we play the last one and I send her off to brush and wash up. Less than 5 mins later she's back in the kitchen, only it's not her, it's "creepy". "it" tells me it will sit there waiting for death, so I put myself between her and the knife drawers. So I start hugging and tickling, and making light of the situation - trying to banish "creepy". In the midst of the tickling, she cracked a smile, and I could SWEAR that her pupils constricted back to normal, but then her her face got tense again and the pupils dilated, and it was "creepy" So, maybe I didn't see the pupil thing and she really is playing me????????????She goes outside to sit in the middle of the road. OH DEAR LORD! I had to do it, risked 10 seconds to run in to get the camera. By the time I got back, she was back in the driveway crying. Yay! NOT! When she sees me she starts yelling through her tears for me to get away and why would anyone want to live with a monster like her? I keep approaching her and she walks to the street, turns and keeps on walking. I start recording with her periodically turning around saying she's a monster, I assure her I love her no matter what, repeat repeat repeat. She turned the corner and when turned around again, she asked if I was recording this? I told her yes, and she started to run. Just a few yards to get some more distance between us. So now I'm thinking I have to figure out how to call the cops. The good thought was that she already took the melatonin and will be getting very tired, very soon. So I'm hoping a neighbor is out and about, or someone has visible lights on inside so I can knock real fast and have them call for me, when she turns around and sits down. She's back! I sit down with her and she turns to let me cradle her.</span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px"></span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px">So we talk a few minutes. i assure her that we will do everyhting we can to figure this out and get the help she needs. She asked why I filmed her and I tell her it's do the doctors can see better what I'm talking about. She apologizes, and thanks me for following her. Then we starte getting up and she asks why I was crying - I lover her and I'm scared too, and I just want to keep her safe.</span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px"></span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px">On the walk home she tells me she stopped because she realized that she didn't know where she was going and she didn't know where she would sleep or what she would eat. As we approached our house she asked if I would PLEASE post the video on FaceBook. (WTH??) Why? So her family could see it. Told her I would never post it to FB because that's not just family. Then she asked if I would email it to them. WHY? Maybe they will have some ideas of how to help.</span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px"></span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px">"Normal" DD1 knows what she should do, how she should act, and how she should respond to zillions of situations. For that, therapy is useless for her and that's why she was out of it for a year. I'm hoping this latest therapist can get her cracked open about these episodes. I'm currently on a waiting list for in home therapy - hoping someone else can see this with me. </span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px"></span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px">So we get inside, and she wants to sleep on the couch and I let her. I'm thinking it's </span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px">8:45 or later. Nope. It was 8:24 when I sat down to this computer. She was asleep by 8:35 The whole ordeal from start to finish was about 30 min.</span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px"></span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px">I'm so tired.</span></span></p><p><span style="font-size: 15px"><span style="font-size: 12px"></span></span></p></blockquote><p></p>
[QUOTE="keista, post: 429962, member: 11965"] Thanks again for insights. I understand the concern and the possibility that DD1 has an Autism Spectrum Disorders (ASD), but she is soooooo NOT on the AS. DD2 and I are closer to the AS than DD1. However, 2 psychiatrists also suggested it, mostly because she never warmed up to them, and in her stranger anxiety state, she def looks like she might be on the AS. She was screened and evaluated for Autism Spectrum Disorders (ASD) when we did her (supposedly) full psychiatric evaluation. Nope. She was also screened and tested for ADD/ADHD, and got a negatory there as well. I also was thinking that yesterdays activities seemed very ADHD like, but again, that wasn't a normal state for her. Today she's done quite a few things, but certainly not as active as yesterday. Might be dubbing it her "ADHD episode" LOL Difficult yes, but more preferable to the "creepy episodes" Started thinking about what Hound dog said about comparing symptoms/behaviors. Her next therapist session will actually be for me, to discuss her whole symptom progression. Just by really thinking about it, I came to realize that her symptoms/behaviors haven't really "changed" per se. Differences in the way they present and intensity and frequency, sure. Planning to plot it all out on a spreadsheet. Researched phosps and it so does not look good. The one in this county has 16 beds and is mostly for involuntary commits. It's called the Baker Act here, and it doesn't take much at all to get anyone "Baker Acted" My son was Baker Acted at the beginning of middle school. The exact words that got him there were, "I have two choices, either be in jail or six feet under" It was said in a conversational tone, but to the school resource officer (regular cop).Anyway, the other psychiatric hospital is the next county over, same distance from my house, but has two Yellow Pages reviews and they aren't good. Investigations of violent/inappropriate behavior by staff members. But the new "good" insurance would probably stay in county anyway. So, this new "good" insurance isn't as good as I thought it was, but still better than the old plan. Covers Abilify without batting an eyelash, no copays, easy referrals. Might not be as easy to get the neuropsychologist evaluation as I thought it would be, but also probably not as tough as with other plans. Ah the sensory issue I always forget about. Loud noises bug her - especially crowds - lots of different loud nises converging into one. My dilemma here is what do I check first, sensory or auditory. Son has the same thing. Their hearing is REALLY good, so is it just good hearing or something more? Neither have had any ear infections that caused pain or required medication - don't know if it's relevant or related. This issue is always on the back burner because we manage to manage the obvious effects easily enough, but I guess there could be effects and issues in the not so obvious settings. Any thoughts on which to explore first would be appreciated. Did some research on seizures. Had pretty good background knowledge since my GM had both petit and gran mal seizures. Never heard of partial brain seizures until yesterday, but again, it just kinda fit - not "textbook" - so will explore that avenue as well. [SIZE=4][B]******* WTH was that???????????*************** [/B][SIZE=3]So I've been composing this for about 2 hrs. taking breaks to smoke, hang with the kids, play a game, etc. Got up to get the girls ready for bed at 7:50 they took their melatonin (yea, should add that in my signature) DD2 is hugging on me, playing a few silly talking games, we play the last one and I send her off to brush and wash up. Less than 5 mins later she's back in the kitchen, only it's not her, it's "creepy". "it" tells me it will sit there waiting for death, so I put myself between her and the knife drawers. So I start hugging and tickling, and making light of the situation - trying to banish "creepy". In the midst of the tickling, she cracked a smile, and I could SWEAR that her pupils constricted back to normal, but then her her face got tense again and the pupils dilated, and it was "creepy" So, maybe I didn't see the pupil thing and she really is playing me????????????She goes outside to sit in the middle of the road. OH DEAR LORD! I had to do it, risked 10 seconds to run in to get the camera. By the time I got back, she was back in the driveway crying. Yay! NOT! When she sees me she starts yelling through her tears for me to get away and why would anyone want to live with a monster like her? I keep approaching her and she walks to the street, turns and keeps on walking. I start recording with her periodically turning around saying she's a monster, I assure her I love her no matter what, repeat repeat repeat. She turned the corner and when turned around again, she asked if I was recording this? I told her yes, and she started to run. Just a few yards to get some more distance between us. So now I'm thinking I have to figure out how to call the cops. The good thought was that she already took the melatonin and will be getting very tired, very soon. So I'm hoping a neighbor is out and about, or someone has visible lights on inside so I can knock real fast and have them call for me, when she turns around and sits down. She's back! I sit down with her and she turns to let me cradle her. So we talk a few minutes. i assure her that we will do everyhting we can to figure this out and get the help she needs. She asked why I filmed her and I tell her it's do the doctors can see better what I'm talking about. She apologizes, and thanks me for following her. Then we starte getting up and she asks why I was crying - I lover her and I'm scared too, and I just want to keep her safe. On the walk home she tells me she stopped because she realized that she didn't know where she was going and she didn't know where she would sleep or what she would eat. As we approached our house she asked if I would PLEASE post the video on FaceBook. (WTH??) Why? So her family could see it. Told her I would never post it to FB because that's not just family. Then she asked if I would email it to them. WHY? Maybe they will have some ideas of how to help. "Normal" DD1 knows what she should do, how she should act, and how she should respond to zillions of situations. For that, therapy is useless for her and that's why she was out of it for a year. I'm hoping this latest therapist can get her cracked open about these episodes. I'm currently on a waiting list for in home therapy - hoping someone else can see this with me. So we get inside, and she wants to sleep on the couch and I let her. I'm thinking it's 8:45 or later. Nope. It was 8:24 when I sat down to this computer. She was asleep by 8:35 The whole ordeal from start to finish was about 30 min. I'm so tired. [/SIZE][/SIZE] [/QUOTE]
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DD1 is really scaring me I need insights PLEASE
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