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DD1 is really scaring me I need insights PLEASE
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<blockquote data-quote="Hound dog" data-source="post: 430059" data-attributes="member: 84"><p>Wow. I'm glad you were able to catch at least some of the odd behavior on tape. </p><p></p><p>And you said she has no memory of what she's said and done during what you term "creepy" episodes?</p><p></p><p>As far as those episodes are concerned.......I'm talking the real far out ones that are scaring you.........I'm thinking you need to look into seizure activity. Now I'm going to tell you why. Back when Travis was about 13 (this is what brought me to the board in desperation) his behavior suddenly became very strange.....and yes, creepy. All his life he's had the autistic behaviors, the tourettes thing, and his other issues, and while he was a difficult child........this was totally different. Out of the blue he began to "zone out" and would literally walk into walls, repeatedly, like a wind up toy that goes to a wall and gets hung up. Other times he'd be walking and suddenly land on his face. Then there were the really scary creep you out times when he'd get up in your face, eyes glazed over, expressionless / vacant.....saying off the wall things that made no sense to what had been going on.......worse was when he did it and would grab me by the arms. Now if you'd ever been latched on to by a brain damaged person......well they often have unusual strength.....and he really has it. He'd not let go until I'd see the light come back into his eyes. There were many other odd creepy behaviors. </p><p></p><p>Now my posts I'm sure were as freaked out and desperate as yours, understandably so. Well, some wise person here suggested I call his neurologist and inform them of the behavior and have him seen. (he'd been diagnosed with absence seizures the year before....although had had them all his life) I don't recall who it was now, it's been too many years. But I took their advice, thinking what the heck did I have to lose, while also thinking the doctor was going to tell me I was asking the wrong doctor. lol But neuro saw him right away. We did a medication dose change of his carbatrol. And be darned if all those creepy behaviors didn't vanish. He was having atypical seizures or temperal lobe seizures and they were displaying as the "creepy" behavior. And poor Travis.......didn't remember any of it and it scared him. </p><p></p><p>Now up until coming to the board I knew all about petit mal and grand mal seizures. But turns out they don't teach much on atypical seizures in nursing school. I had never heard of absence seizures until he was diagnosed with them, either. But due to the absence ones.....it made it easier to accept and sort of understand the other types. </p><p></p><p>Again, I'm not saying your daughter is having seizures. I'm saying it is a possibility. When a child is having such disturbing behavior it's always important to look at all possible causes. The whole not remembering the episodes sent up the flag for possible seizure. </p><p></p><p>Since ADD/ADHD and AS have been ruled out, you know to look in another direction. Which is why I asked if they'd looked at those already. </p><p></p><p>Until you can get in to see a doctor, be it the neuropsychologist, neurologist, whom ever, I'd start keeping (if you're not already) a detailed journal of her daily behavior. I'd also write up behaviors you've seen at different stages as she's progressed through childhood. Sort of gives the doctor a background to work from. You should've seen the ones I'd hand over to neuro's and such. lol But Travis was complicated from the get go and it was just too much information to sit and talk to them about during a visit. Much easier to write in a report style and let them browse through it or sit and read it then ask me specific questions. I even offered to bring in videos......as his behavior was often caught on tape even when we weren't trying.</p><p></p><p>I wish you luck in helping her with this. It was a horrific and scary time for me with Travis, and I can imagine it is for you too. She's a lucky little girl to have such a great warrior mom.</p><p></p><p>Hugs</p></blockquote><p></p>
[QUOTE="Hound dog, post: 430059, member: 84"] Wow. I'm glad you were able to catch at least some of the odd behavior on tape. And you said she has no memory of what she's said and done during what you term "creepy" episodes? As far as those episodes are concerned.......I'm talking the real far out ones that are scaring you.........I'm thinking you need to look into seizure activity. Now I'm going to tell you why. Back when Travis was about 13 (this is what brought me to the board in desperation) his behavior suddenly became very strange.....and yes, creepy. All his life he's had the autistic behaviors, the tourettes thing, and his other issues, and while he was a difficult child........this was totally different. Out of the blue he began to "zone out" and would literally walk into walls, repeatedly, like a wind up toy that goes to a wall and gets hung up. Other times he'd be walking and suddenly land on his face. Then there were the really scary creep you out times when he'd get up in your face, eyes glazed over, expressionless / vacant.....saying off the wall things that made no sense to what had been going on.......worse was when he did it and would grab me by the arms. Now if you'd ever been latched on to by a brain damaged person......well they often have unusual strength.....and he really has it. He'd not let go until I'd see the light come back into his eyes. There were many other odd creepy behaviors. Now my posts I'm sure were as freaked out and desperate as yours, understandably so. Well, some wise person here suggested I call his neurologist and inform them of the behavior and have him seen. (he'd been diagnosed with absence seizures the year before....although had had them all his life) I don't recall who it was now, it's been too many years. But I took their advice, thinking what the heck did I have to lose, while also thinking the doctor was going to tell me I was asking the wrong doctor. lol But neuro saw him right away. We did a medication dose change of his carbatrol. And be darned if all those creepy behaviors didn't vanish. He was having atypical seizures or temperal lobe seizures and they were displaying as the "creepy" behavior. And poor Travis.......didn't remember any of it and it scared him. Now up until coming to the board I knew all about petit mal and grand mal seizures. But turns out they don't teach much on atypical seizures in nursing school. I had never heard of absence seizures until he was diagnosed with them, either. But due to the absence ones.....it made it easier to accept and sort of understand the other types. Again, I'm not saying your daughter is having seizures. I'm saying it is a possibility. When a child is having such disturbing behavior it's always important to look at all possible causes. The whole not remembering the episodes sent up the flag for possible seizure. Since ADD/ADHD and AS have been ruled out, you know to look in another direction. Which is why I asked if they'd looked at those already. Until you can get in to see a doctor, be it the neuropsychologist, neurologist, whom ever, I'd start keeping (if you're not already) a detailed journal of her daily behavior. I'd also write up behaviors you've seen at different stages as she's progressed through childhood. Sort of gives the doctor a background to work from. You should've seen the ones I'd hand over to neuro's and such. lol But Travis was complicated from the get go and it was just too much information to sit and talk to them about during a visit. Much easier to write in a report style and let them browse through it or sit and read it then ask me specific questions. I even offered to bring in videos......as his behavior was often caught on tape even when we weren't trying. I wish you luck in helping her with this. It was a horrific and scary time for me with Travis, and I can imagine it is for you too. She's a lucky little girl to have such a great warrior mom. Hugs [/QUOTE]
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