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The Watercooler
Desperately need help and info on health problem with Cory-Chron's.
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<blockquote data-quote="gcvmom" data-source="post: 509165" data-attributes="member: 3444"><p>Janet, it's not necessarily the end of the world with this diagnosis. My difficult child 1 was diagnosis'd at age 11 -- he was VERY, VERY sick, vomiting, intermittent fevers, diarrhea, severely anemic, horrible labs, losing weight and dropped to 57 pounds at the time of diagnosis -- we later learned he was partially obstructed because of scar tissue and inflammation in the small bowel. The good news is that he's been in remission now for going on 6 years. It CAN be managed and you CAN lead a reasonably normal life. The fact that Billy has RA is not surprising to me at all, since science has learned that Crohn's and RA share many genetic similarities, which is probably one reason the drugs developed to treat one often work for someone with the other.</p><p></p><p>Cory will likely be put on prednisone initially to knock down the inflammation causing his symptoms. After that, depending on WHERE his disease is located, they'll likely start him a maintenance medication that targets the affected part of the bowel (and Crohn's can affect ANY part of the GI tract, from mouth to anus). There is a wide range of medications available, so if one does not work there are lots of other options. Occasionally surgery is required when the diseased portion of bowel is too badly damaged. The key is to work closely with a GI who is an IBD (inflammatory bowel disease) SPECIALIST. Teaching hospitals are a good place to start looking.</p><p></p><p>Witz gave you the link to CCFA's website -- that is the best place to start for information. There may also be CCFA support groups in your area, so check their website and see if there's a group Cory can go to. It will be VERY helpful for him to talk to other young adults who've been where he is now.</p><p></p><p>In the mean time, DO NOT beat yourself up over this. We have no control over our genetics. Some people who have the gene for Crohn's develop it when they're young, like my difficult child was, and others are adults when the gene is triggered by something. We still don't know exactly what that trigger is. Either way, you can't possibly have known or even guessed this would happen. The best you can do now is educate yourself and help Cory educate HIMSELF and find a good doctor.</p><p></p><p>((((Hugs))))</p></blockquote><p></p>
[QUOTE="gcvmom, post: 509165, member: 3444"] Janet, it's not necessarily the end of the world with this diagnosis. My difficult child 1 was diagnosis'd at age 11 -- he was VERY, VERY sick, vomiting, intermittent fevers, diarrhea, severely anemic, horrible labs, losing weight and dropped to 57 pounds at the time of diagnosis -- we later learned he was partially obstructed because of scar tissue and inflammation in the small bowel. The good news is that he's been in remission now for going on 6 years. It CAN be managed and you CAN lead a reasonably normal life. The fact that Billy has RA is not surprising to me at all, since science has learned that Crohn's and RA share many genetic similarities, which is probably one reason the drugs developed to treat one often work for someone with the other. Cory will likely be put on prednisone initially to knock down the inflammation causing his symptoms. After that, depending on WHERE his disease is located, they'll likely start him a maintenance medication that targets the affected part of the bowel (and Crohn's can affect ANY part of the GI tract, from mouth to anus). There is a wide range of medications available, so if one does not work there are lots of other options. Occasionally surgery is required when the diseased portion of bowel is too badly damaged. The key is to work closely with a GI who is an IBD (inflammatory bowel disease) SPECIALIST. Teaching hospitals are a good place to start looking. Witz gave you the link to CCFA's website -- that is the best place to start for information. There may also be CCFA support groups in your area, so check their website and see if there's a group Cory can go to. It will be VERY helpful for him to talk to other young adults who've been where he is now. In the mean time, DO NOT beat yourself up over this. We have no control over our genetics. Some people who have the gene for Crohn's develop it when they're young, like my difficult child was, and others are adults when the gene is triggered by something. We still don't know exactly what that trigger is. Either way, you can't possibly have known or even guessed this would happen. The best you can do now is educate yourself and help Cory educate HIMSELF and find a good doctor. ((((Hugs)))) [/QUOTE]
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Desperately need help and info on health problem with Cory-Chron's.
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