difficult child 2 medication experiment -- not holding my breath.

Discussion in 'General Parenting' started by gcvmom, Apr 19, 2011.

  1. gcvmom

    gcvmom Here we go again!

    We're on Spring Break right now. Our psychiatrist suggested we try reducing difficult child 2's Depakote ER for a few days to see if it helps improve the daily sedation he struggles with.

    Some days it's so bad he falls asleep in class. And although he's gone through tremendous growth in the past couple of years, which could explain part of his need for sleep, it doesn't explain all of it, plus most of the medications he takes are sedating.

    We've already tried reducing the Seroquel XR dosages (he takes it at lunch and bedtime) with less-than-desirable results every time (breakthrough symptoms).

    So Sunday night he took 750mg of Depakote ER instead of his usual 1000mg. I have to say, he did seem to be more alert yesterday. He even was able to attend to a few chores with a higher level of detail than he normally gives them, and without really complaining. Although psychiatrist said we'd know for sure after about 3 days if it was going to work or not, this kid is historically very sensitive to medication changes -- even dosing changes by just a few hours can be very apparent by the next day.

    The downside is that by the end of the day he was noticeably more agitated. He was loud, irritable and more quick to anger. He even seemed physically agitated. About an hour after he took his medications for the evening he was still ramped up and I asked him if his head was "buzzing" (which is usually how he describes feeling when he's symptomatic). He replied by snapping at me, "No, not anymore," which is fairly out of character for him.

    We'll give it one more night and see how tomorrow goes. But I have a feeling we're going to just have to live with these side effects to a certain extent. Sometimes we have to choose the lesser of two evils. At least the school understands and it's noted in his IEP.
  2. Jena

    Jena New Member

    yes that's good about the school and it's also good your doing this while on spring break this way you can monitor it. good luck medication changes are so hard. don't you feel like a doctor at times?? LOL i do. we should get some sort of life experience certificate! :)

    hang in there!
  3. Wiped Out

    Wiped Out Well-Known Member Staff Member

    I'm sorry the experiment isn't working out better. My difficult child went through a long period where he was falling asleep daily in school. Thankfully, his school understood just like yours. As you said, sometimes we have to choose the lesser of two evils.
  4. gcvmom

    gcvmom Here we go again!

    Today hasn't been much better. Even difficult child 2 said he thinks he needs to go back to his regular dosage, so that has to tell you something. It was worth a shot -- but the cost for the slight improvement is just not worth it. I guess in the back of my mind I always hope that this is something that will magically go away. Time to snap back to reality!
  5. tiredmommy

    tiredmommy Site Moderator

    He burns through his medications, right? I can imagine even a small change would make a big impact. :(
  6. rlsnights

    rlsnights New Member


    Hope all else is good there with the greatest MOM in the world.