SuZir
Well-Known Member
I had a long and good talk with difficult child and he did share more about his daily struggles and how he feels and thinks. Especially his descriptions of his dissociative symptoms rattled me. I tried to not show it to him and he himself seems to take them quite matter of factly. And it seems his therapy is helping him a lot with these. There was a lot of 'therapist says', 'therapist taught to do this or that to control it' etc. This are also not new to him, but now he has a name and explanation to them which seems to make him feel much better. Apparently before he just feared he was going crazy, so name for it and telling him he is not losing a touch to reality has made him feel more at ease. But for me they still sound scary. Do any of you or your kids have experience with these and are there any solutions?
difficult child does have quite a lot both depersonalization and derealization symptoms and he also loses time. And often they happen all at once and on the other hand he has bit similar experiences when he is actually over-focused, in the flow-state and not dissociative.
He often feels 'odd' or that everything is foggy, that he can't think clear or control himself, or that there is a disconnection between his brains and making things happen. He also has very convincing out-of-body experiences when he is anxious. Or he feels that he is going on autopilot and he can't control any of it, that he is trapped inside his brains and that autopilot has taken control.
His common deralization symptoms are either about everything, or most things, being foggy, or loosing all colour or sound. Or things or people getting smaller or bigger. Also time can grow shorter or longer in whim or get all wonky. This causes him most problems. For example if he feels he is 'ganged up', he often begins to see those people growing bigger and himself getting smaller and even though he does know it is his mind playing tricks, it makes it very difficult for him to evaluate the situation correctly and act accordingly, so he often freezes or lashes out much too harshly. If he is yelled or scolded, sounds often start to act up and in the end he can't understand a word. There is also lots of synesthesia involved and apparently he lives part time inside some kind of world best described by abstract modern and post-modern art.
When he loses time it seems he doesn't behave oddly or untypical manner. For others he may seem unfocused or daydreaming, but he does act and answer mostly appropriately. He just doesn't remember it afterwards or remembers just bits and pieces (like when really drunk, he says.) Unfocused, 'not quite there' is also how he appears to others when he is having other dissociative symptoms like depersonalization or derealization. I too have seen that and wrote it up to poor attention or even attitude.
While some of the symptoms are hallucinations and really strong and lifelike, difficult child does know reality and these symptoms apart. He does tell that at times it can be difficult and he has to think hard or check to be sure (for example touch to check a size of things, 'close' the sense that is giving him wrong information and trust others etc. And sometimes he can't make it stop. He says it feel same as those dreams, where you know you are dreaming, but can't make yourself to actually wake up (I'm sure most people have those at times), but he knows he is awake, and experiencing things that are not there or things that are there crookedly, but he can quite remove the fog from his brain.
Apparently there are techniques and tricks to do that and his therapist is teaching him to use those, but some he finds too embarrassing to use if there are other people present and at times if he gets too anxious he can't focus enough to do so. And that he hates.
On the other hand he has some rather similar experiences when he is in the flow and hyper-focused. For example when he plays his sport and in there it actually helps and doesn't hinder him at all. He also often doesn't remember game that well afterwards but it is more bits and pieces till he goes through his performance from video. That doesn't bother him at all and he considers that normal.
To be frank I'm little freaked out. I have never understood that his experience is so different. And how on earth is he suppose to control and change his behaviours, if he doesn't have control of his brain and can get 'locked out from the board room when it is decision making time'?
difficult child does have quite a lot both depersonalization and derealization symptoms and he also loses time. And often they happen all at once and on the other hand he has bit similar experiences when he is actually over-focused, in the flow-state and not dissociative.
He often feels 'odd' or that everything is foggy, that he can't think clear or control himself, or that there is a disconnection between his brains and making things happen. He also has very convincing out-of-body experiences when he is anxious. Or he feels that he is going on autopilot and he can't control any of it, that he is trapped inside his brains and that autopilot has taken control.
His common deralization symptoms are either about everything, or most things, being foggy, or loosing all colour or sound. Or things or people getting smaller or bigger. Also time can grow shorter or longer in whim or get all wonky. This causes him most problems. For example if he feels he is 'ganged up', he often begins to see those people growing bigger and himself getting smaller and even though he does know it is his mind playing tricks, it makes it very difficult for him to evaluate the situation correctly and act accordingly, so he often freezes or lashes out much too harshly. If he is yelled or scolded, sounds often start to act up and in the end he can't understand a word. There is also lots of synesthesia involved and apparently he lives part time inside some kind of world best described by abstract modern and post-modern art.
When he loses time it seems he doesn't behave oddly or untypical manner. For others he may seem unfocused or daydreaming, but he does act and answer mostly appropriately. He just doesn't remember it afterwards or remembers just bits and pieces (like when really drunk, he says.) Unfocused, 'not quite there' is also how he appears to others when he is having other dissociative symptoms like depersonalization or derealization. I too have seen that and wrote it up to poor attention or even attitude.
While some of the symptoms are hallucinations and really strong and lifelike, difficult child does know reality and these symptoms apart. He does tell that at times it can be difficult and he has to think hard or check to be sure (for example touch to check a size of things, 'close' the sense that is giving him wrong information and trust others etc. And sometimes he can't make it stop. He says it feel same as those dreams, where you know you are dreaming, but can't make yourself to actually wake up (I'm sure most people have those at times), but he knows he is awake, and experiencing things that are not there or things that are there crookedly, but he can quite remove the fog from his brain.
Apparently there are techniques and tricks to do that and his therapist is teaching him to use those, but some he finds too embarrassing to use if there are other people present and at times if he gets too anxious he can't focus enough to do so. And that he hates.
On the other hand he has some rather similar experiences when he is in the flow and hyper-focused. For example when he plays his sport and in there it actually helps and doesn't hinder him at all. He also often doesn't remember game that well afterwards but it is more bits and pieces till he goes through his performance from video. That doesn't bother him at all and he considers that normal.
To be frank I'm little freaked out. I have never understood that his experience is so different. And how on earth is he suppose to control and change his behaviours, if he doesn't have control of his brain and can get 'locked out from the board room when it is decision making time'?
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