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<blockquote data-quote="CrazyinVA" data-source="post: 331713" data-attributes="member: 1157"><p>Sigh. This sounds very familiar. When Oldest was at her worst pain between the Crohn's and adhesions, we met many ER doctors like the one you describe. One doctor .. when told Oldest had an ileostomy ... looked puzzled and said, "are you sure it's an ileostomy and not a colostomy?" (even after examining her!) He was a moron, and she asked immediately to see another doctor.</p><p></p><p>The problem with ER visits and doctors is, they are not specialists. They are not equipped to treat chronic pain or chronic conditions. They are trained to stabilize and get patients out the door. Sort of like phospitals these days, actually. Repeated visits to the ER for pain don't do much good, in fact they get you labeled as "drug-seeking." (which ironically, Oldest became,eventually). Finding a good specialist that listens to you and is willing to go to the ends of the earth with you to figure out what's wrong, is the only thing that works. Unfortunately,finding that specialist can take months or years. </p><p></p><p>I have been in the ER with various family members well over 100 times. Admitted family members to inpatient hospitalization, dozens of times. I have dealt with countless doctors and hospitals and nurses. I can tell you that the best thing you can do is to educate yourself, be firm but respectful, and ask questions. Ask again if you don't understand the answers. Ask what they would do it if were their child. Just keep trying. At some point, based purely on the law of averages, you will find someone who will help. </p><p></p><p>That doesn't make it any less exhausting, however. Many hugs to you.</p></blockquote><p></p>
[QUOTE="CrazyinVA, post: 331713, member: 1157"] Sigh. This sounds very familiar. When Oldest was at her worst pain between the Crohn's and adhesions, we met many ER doctors like the one you describe. One doctor .. when told Oldest had an ileostomy ... looked puzzled and said, "are you sure it's an ileostomy and not a colostomy?" (even after examining her!) He was a moron, and she asked immediately to see another doctor. The problem with ER visits and doctors is, they are not specialists. They are not equipped to treat chronic pain or chronic conditions. They are trained to stabilize and get patients out the door. Sort of like phospitals these days, actually. Repeated visits to the ER for pain don't do much good, in fact they get you labeled as "drug-seeking." (which ironically, Oldest became,eventually). Finding a good specialist that listens to you and is willing to go to the ends of the earth with you to figure out what's wrong, is the only thing that works. Unfortunately,finding that specialist can take months or years. I have been in the ER with various family members well over 100 times. Admitted family members to inpatient hospitalization, dozens of times. I have dealt with countless doctors and hospitals and nurses. I can tell you that the best thing you can do is to educate yourself, be firm but respectful, and ask questions. Ask again if you don't understand the answers. Ask what they would do it if were their child. Just keep trying. At some point, based purely on the law of averages, you will find someone who will help. That doesn't make it any less exhausting, however. Many hugs to you. [/QUOTE]
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