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General Parenting
Does anyone know about Ehlers-Danlos?
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<blockquote data-quote="tiredmommy" data-source="post: 446301" data-attributes="member: 1722"><p>A dear friend (you know who you are!) suggested I look into it for Duckie. She has hypermobile joints, she had stretch marks on her skin this spring (running vertical at the top of her leg), she has cough variant asthma with her main involvement being in the smallest breathing tubes in her lungs. And what my friend couldn't have known is that my father was diagnosis'd with an unruptured aortic aneurism less than a year before he died. It can be a very serious condition and is anecdotally linked to those with autism. We all know that while she doesn't carry an Autism Spectrum Disorders (ASD) diagnosis due to being very social that she does have several traits.</p><p></p><p>I'll be discussing it with her doctor about screening her but was wondering if any of us has any real life experiences. I was looking on the internet and only could find scholarly stuff or horror stories. <img src="/community/styles/default/xenforo/smilies/emoticons/crying.gif" class="smilie" loading="lazy" alt=":crying:" title="crying :crying:" data-shortname=":crying:" /> Any insight would be appreciated.</p></blockquote><p></p>
[QUOTE="tiredmommy, post: 446301, member: 1722"] A dear friend (you know who you are!) suggested I look into it for Duckie. She has hypermobile joints, she had stretch marks on her skin this spring (running vertical at the top of her leg), she has cough variant asthma with her main involvement being in the smallest breathing tubes in her lungs. And what my friend couldn't have known is that my father was diagnosis'd with an unruptured aortic aneurism less than a year before he died. It can be a very serious condition and is anecdotally linked to those with autism. We all know that while she doesn't carry an Autism Spectrum Disorders (ASD) diagnosis due to being very social that she does have several traits. I'll be discussing it with her doctor about screening her but was wondering if any of us has any real life experiences. I was looking on the internet and only could find scholarly stuff or horror stories. :crying: Any insight would be appreciated. [/QUOTE]
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Does anyone know about Ehlers-Danlos?
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