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General Parenting
Does anyone know about Ehlers-Danlos?
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<blockquote data-quote="keista" data-source="post: 446332" data-attributes="member: 11965"><p>Interesting how you hear about something, then it seems to pop up everywhere!</p><p></p><p>Sorry, I have no info, but do have two friends investigating this for their kids. One of them first got a referral for Marfan Syndrome, and had that ruled out, but still needs to go back for further genetic testing to find out if there is a problem with her son's double jointedness. Ehlers-Danlos came up as a possibility when talking to another friend who identified the symptoms for his daughter. He's still yet to make appointments to check it out.</p><p></p><p>Did you come across the Ehlers-Danlos Foundation website?</p><p><a href="http://www.ednf.org/" target="_blank">http://www.ednf.org/</a></p><p></p><p>Don't fret until the screening. My friend worked herself into some serious anxiety before her son's screening for Marfan. Her biggest concern, of course, were the heart related issues. His heart was thoroughly tested as FINE by these experts who know all the subleties to look for, so now it's just trying to find out if the boy has 'something' that may benefit from special care or treatment.</p><p>[h=2][/h] [h=2][/h]</p></blockquote><p></p>
[QUOTE="keista, post: 446332, member: 11965"] Interesting how you hear about something, then it seems to pop up everywhere! Sorry, I have no info, but do have two friends investigating this for their kids. One of them first got a referral for Marfan Syndrome, and had that ruled out, but still needs to go back for further genetic testing to find out if there is a problem with her son's double jointedness. Ehlers-Danlos came up as a possibility when talking to another friend who identified the symptoms for his daughter. He's still yet to make appointments to check it out. Did you come across the Ehlers-Danlos Foundation website? [url]http://www.ednf.org/[/url] Don't fret until the screening. My friend worked herself into some serious anxiety before her son's screening for Marfan. Her biggest concern, of course, were the heart related issues. His heart was thoroughly tested as FINE by these experts who know all the subleties to look for, so now it's just trying to find out if the boy has 'something' that may benefit from special care or treatment. [h=2][SIZE=3][/SIZE][/h] [h=2][SIZE=3][/SIZE][/h] [/QUOTE]
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Does anyone know about Ehlers-Danlos?
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