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General Parenting
Does anyone know about Ehlers-Danlos?
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<blockquote data-quote="1905" data-source="post: 447030" data-attributes="member: 2668"><p>My easy child's back is covered in stretch marks!!!! He's a skinny kid, tall, wears glasses and we had him to Childrens Hospital of Philadelphia they did every test, for fear of Marfan. He didn't have that, ok, but even if your child has this, the biggest fear is the heart damage. If there isn't heart damage and she does have the gene, there is medication to prevent heart damage. But once the damage is done, it's done. Ehler's-Danlos is not as bad as Marfan. My son had to see a specialist from Chicago....I think there's like 5 top Marfan doctors in the US, and the one from Chicago comes once a month to a certain hospital near us. Go on the national Marfan website, call them, they'll send you SO MUCH great info on Ehlers-Danlos, and everything related. My son's back is COVERED in large stretch marks, it looks like somebody whipped him, plus his knees, hips and thighs have lots of little ones. He has something, but it doesn't have a name- that sounds strange after seeing all kinds of specialists, but there is no heart damage. That is the bottom line, because there is medication if there was anything wrong.</p></blockquote><p></p>
[QUOTE="1905, post: 447030, member: 2668"] My easy child's back is covered in stretch marks!!!! He's a skinny kid, tall, wears glasses and we had him to Childrens Hospital of Philadelphia they did every test, for fear of Marfan. He didn't have that, ok, but even if your child has this, the biggest fear is the heart damage. If there isn't heart damage and she does have the gene, there is medication to prevent heart damage. But once the damage is done, it's done. Ehler's-Danlos is not as bad as Marfan. My son had to see a specialist from Chicago....I think there's like 5 top Marfan doctors in the US, and the one from Chicago comes once a month to a certain hospital near us. Go on the national Marfan website, call them, they'll send you SO MUCH great info on Ehlers-Danlos, and everything related. My son's back is COVERED in large stretch marks, it looks like somebody whipped him, plus his knees, hips and thighs have lots of little ones. He has something, but it doesn't have a name- that sounds strange after seeing all kinds of specialists, but there is no heart damage. That is the bottom line, because there is medication if there was anything wrong. [/QUOTE]
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Does anyone know about Ehlers-Danlos?
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