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Does seeing a neurologist help any?
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<blockquote data-quote="Marguerite" data-source="post: 330203" data-attributes="member: 1991"><p>You sound like you're not sure the diagnosis is spot-on. Therefore it is always a good idea to keep an open mind and where you have doubts, to keep gently (or not so gently!) challenging the diagnosis. If the diagnosis survives the challenge, then you understand better and have fewer doubts. If the diagnosis does not survive the challenge, then something with a better fit takes its pace.</p><p></p><p>a neuropsychologist may be a better person to see for something like this. In my experience, neurologists tend to only value manifestations that they can empirically measure. Reflex responses, nerve conduction rates, X-rays, scans etc. I personally see a neurologist (for neurological problems) and the current bloke is more adventurous than many others I've seen over the years. He also treated easy child for headaches when she was about 13. I wouldn't take difficult child 3 to him for the autism, because I don't relly think he would know what to do, more than the average GP. </p><p></p><p>But you never know - you could happen on a neurologist who is interested or understands it. </p><p></p><p>Girls with Pervasive Developmental Disorder (PDD) also tend to present rather differently, which is something still lacking recognition and understanding in some areas. Again, a good neuropsychologist who keeps up with reading should know this and be able to help you.</p><p></p><p>It's up to you. If a local autism support network have a neurologist they recommend, it might be worth considering It could be cheaper than a neuropsychologist. But I do believe that eventually you'll have her seen by a neuropsychologist anyway, since it's a sort of "all roads lead to Rome" scenario.</p><p></p><p>Talk to local support networks, try to get your daughter involved in various social groups in your area to see how she gets on. We've got difficult child 3 involved in a local drama group for kids with learning problems - a number of the other kids are Pervasive Developmental Disorder (PDD) in some form, others have Downs Syndrome, some have various forms of otherwise unspecified developmental delay. Some are high IQ, some are low. There would be over 100 IQ points difference between the lowest and highest but they all support one another. The love and friendship between them all is wonderful. Of course it's not always perfect, sometimes there are clashes but they are generally resolved. And while the kids are in drama class, us parents sit in the next room drinking coffee and talking. We also arrange unofficial social outings for us all as families, as well as for parents only as respite.</p><p></p><p>We've found a few similar groups over the years - a swimming class a few years ago was good for difficult child 3, but we had to leave when they lost a teacher and difficult child 3's class had to shut down. Finding these isn't always easy, but talking to other people, making contact with local disability groups etc can help inform you. Sometimes these work for your child, sometimes they don't. But what is really important here is the networking you can find. Also, your child gets to meet with other kids like him/her, and this can boost their confidence - "hey, it's not just me, there are others like me, so it's not my fault after all".</p><p></p><p>Keep us posted on how you get on.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 330203, member: 1991"] You sound like you're not sure the diagnosis is spot-on. Therefore it is always a good idea to keep an open mind and where you have doubts, to keep gently (or not so gently!) challenging the diagnosis. If the diagnosis survives the challenge, then you understand better and have fewer doubts. If the diagnosis does not survive the challenge, then something with a better fit takes its pace. a neuropsychologist may be a better person to see for something like this. In my experience, neurologists tend to only value manifestations that they can empirically measure. Reflex responses, nerve conduction rates, X-rays, scans etc. I personally see a neurologist (for neurological problems) and the current bloke is more adventurous than many others I've seen over the years. He also treated easy child for headaches when she was about 13. I wouldn't take difficult child 3 to him for the autism, because I don't relly think he would know what to do, more than the average GP. But you never know - you could happen on a neurologist who is interested or understands it. Girls with Pervasive Developmental Disorder (PDD) also tend to present rather differently, which is something still lacking recognition and understanding in some areas. Again, a good neuropsychologist who keeps up with reading should know this and be able to help you. It's up to you. If a local autism support network have a neurologist they recommend, it might be worth considering It could be cheaper than a neuropsychologist. But I do believe that eventually you'll have her seen by a neuropsychologist anyway, since it's a sort of "all roads lead to Rome" scenario. Talk to local support networks, try to get your daughter involved in various social groups in your area to see how she gets on. We've got difficult child 3 involved in a local drama group for kids with learning problems - a number of the other kids are Pervasive Developmental Disorder (PDD) in some form, others have Downs Syndrome, some have various forms of otherwise unspecified developmental delay. Some are high IQ, some are low. There would be over 100 IQ points difference between the lowest and highest but they all support one another. The love and friendship between them all is wonderful. Of course it's not always perfect, sometimes there are clashes but they are generally resolved. And while the kids are in drama class, us parents sit in the next room drinking coffee and talking. We also arrange unofficial social outings for us all as families, as well as for parents only as respite. We've found a few similar groups over the years - a swimming class a few years ago was good for difficult child 3, but we had to leave when they lost a teacher and difficult child 3's class had to shut down. Finding these isn't always easy, but talking to other people, making contact with local disability groups etc can help inform you. Sometimes these work for your child, sometimes they don't. But what is really important here is the networking you can find. Also, your child gets to meet with other kids like him/her, and this can boost their confidence - "hey, it's not just me, there are others like me, so it's not my fault after all". Keep us posted on how you get on. Marg [/QUOTE]
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