I stumbled across a site today that has the following listings: Anthony: leukemia Jessica: neurofibromatosis Ashley: cerebral palsy Mysti: Pseudotumor ceribri Jess: lupus Trudy: Vater's syndrome About operations Angela: cystic fibrosis Matt: spondo-epiphiseal-dysplasia Tyler: neuroblastoma Peggy: bipolar disorder Matthew: idiopathic juvenile osteoporosis Thomas: leukemia Trevor: Wilm's tumor Elizabeth: muscular dystrophy Quinn: ataxia Katy: amputation Yum Yum: sickle cell disease Margaret: Spinal muscular atrophy Devon: chronic intestinal pseudo obstruction Children: ADD Children: asthma and diabetes Devin: Hirschprung's disease Emily and Amanda: asthma Kathryn: otosclerosis Ashley: cerebral palsy Christophe:xeroderma pigmentosum Brittany: hydrocephalus Courtney: maple-sugar disease Chris: celiac disease JJ: hemophilia Nathan: Hirschprung's, colostomy Conor: multiple hereditary exostoses Nicole: ditto-MHE Bobby: double ditto-MHE Megan: asthma Courtney: g-tube Brianna:VACTERL Becca: tetralogy of Fallot Christopher: autism Craig: Moebius syndrome Robyn: Moebius syndrome Kristina: Moebius syndrome Jonathan: cystic fibrosis Melanie: sickle cell disease Andy-Gabriel: Behcet's disease Ashly: skeletal dysplasia Corinna: Moebius syndrome Ashley: leukemia Colton: diabetes EmaLee: pseudo tumor cerebri? Jackie: cystic fibrosis Sage: Von Willebrand's disease Michael: leukemia Rashad: rhabdomyosarcoma Zachary: neurofibromatosis Libby: hypogammaglobulemia Katie: Grave's disease Rebecca: scoliosis Alexis: CP, SCD, lupus... Adam: Crohn's disease Maddy: Ewing's sarcoma Dani: Rett syndrome Heather: rheumatoid arthritis Angela's essay Megan: arrhythmogenic right ventricular dysplasia Laura: aplastic anemia Georgianna: kidney stones Liz: arteriovenous malformation Emmah: bipolar disorder Natalie: Moebius syndrome Joe: adhd, asthma Stephanie: anklyosing spondylitis Lily: diabetes Kelly:fibromyalgia Jayme: vocal cord paralysis Nava: Beckwith Weidemann Rachel: protein-losing enteropathy Betsy: reflex sympathetic dystrophy Tonia: cerebral palsy Megan: brain tumor Shannon: avm Lacey: spina bifida Jackie: GERD Marina: CP. Borderline Personality Disorder (BPD) Amity: MVA Ashley:fibromyalgia, IBS Jen: neurofibromatosis Jamie: psoriasis"ish" Kelly: cp, Raynaud's Oriana: Down syndrome Sophie: Hirschprung's disease Jenny: scoliosis plus Minna: physical disability Bridget: lupus, fibromyalgia Christina: irritable bowel sydrome Litaya: nephrotic sydndrome Heather: congenital heart disease Jonathan: Duchenne muscular dystrophy Ryan: VATERS association Tieanna: lupus Lauren: porphyria Troy: liver transplant Mariane: osteosarcoma Sandy S: polycystic kidney Sandy G.: Moebius Syndrome Martin: benign congenital hypotonia Barbara K: ITP Barbara R: deafness Fiona: M.E., CFIDS Judy: polio Joel: brain tumor Lynn: depression Joe: bi-polar illness Keara: congenital strabismus, etc. Angela: cerebral palsy Robert: spina bifida Amanda: asthma, allergies, depression Lori: kidney transplants I think as parents of children with disorders, we sometimes expect school personnel to automatically know about our childrens' disorders and how best to develop appropriate supports and/or IEPs. It's easy to forget that unless an individual has been personally touched by any type of illness, chances are they have little more than rudimentary knowledge about the specifics. There are a lot of disorders that members on this board deal with on a daily basis that are not denoted above. There's not a teacher, diagnostician, principal, special education coordinator that can be an expert in every medical or neurological disorder -- it's just not possible in my opinion. With this in mind, it's even less likely that individuals will understand how one disorder impacts a co-existing condition. Food for thought: What's your plan for helping educate school personnel about your child's disorders? What presentation method do you think would be best to use in providing info to the educator(s)?