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encopresis dealing for 8 years
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<blockquote data-quote="Janna" data-source="post: 93062" data-attributes="member: 2737"><p>Hi TMB,</p><p></p><p>Like Esther, I have a son too who has suffered from encopresis. I am sorry for what you're going through, at 14 years old, I can't imagine. I dealt with this with my son, Dylan, when he was 6-7 years old.</p><p></p><p>And just like Esther said, it is true, the nerves, they die. There is a signal that goes from those nerves at the bottom of the colon to the brain that tells you it's time to go, and over time, long periods of time, that signal can eventually die. My son didn't have a real bowel movement for 8 months. It was to the point nothing would come out. His colon was so impacted he was "leaking" out over, and was staining his underwear every 15-30 minutes through the day. I, too, would find them in the garbage, laying in the corners in the bathroom, etc.</p><p></p><p>Our first 3 trips to the pediatrician is why Dylan held them so long. His blatant disregard for the real issue (encopresis) is why. I heard the "he's ADHD and can't sit on the toilet long enough" excuse every time I went, even though I tried to tell him that wasn't the case. He sent me home to give Dylan over the counter stuff, Milk of Magnesia, didn't do a thing. Or it would make him so leaky he couldn't make it to the toilet for a day or two, I'd stop giving it to him, and he'd go right back to being impacted.</p><p></p><p>I don't believe the actual encopresis is probably your son's fault, although the behaviors following it obviously are. At 14 he is very well aware of what he's doing. </p><p></p><p>I saw the head of pediatrics at the hospital to get Dylan diagnosed and treated for this. I had to get very angry and aggressive with the pediatrician to get that far, but I got that far. Being nice, for some odd reason, doesn't get me very far where my son is concerned. Anyway - when we saw the head of pediatrics, he diagnosis'ed him and forced it into my brain this wasn't Dylan's fault, it's a real diagnosis, and it needs treated. He put Dylan into the hospital for 3 days, and fed him "Go Lightly" through a tube - up the nose, into the belly. The amount he would have needed to drink to make this beneficial was something disgusting, lol, so the need for the tube. They spent 3 days draining him out, and then sent him home on a strict bathroom routine, added fiber to the diet, and medicine (Miralax and Citrucel). </p><p></p><p>I am almost positive the reasons you are having problems, too, with the wetting, is probably due to this. Everything is compacted. Impacted. Your son's bladder is being pushed on and smashed by the bowel issues.</p><p></p><p>I would go back to your pediatrician and demand you be referred to a specialist in encopresis. I would just keep pushing, asking, calling around and being a pest.</p></blockquote><p></p>
[QUOTE="Janna, post: 93062, member: 2737"] Hi TMB, Like Esther, I have a son too who has suffered from encopresis. I am sorry for what you're going through, at 14 years old, I can't imagine. I dealt with this with my son, Dylan, when he was 6-7 years old. And just like Esther said, it is true, the nerves, they die. There is a signal that goes from those nerves at the bottom of the colon to the brain that tells you it's time to go, and over time, long periods of time, that signal can eventually die. My son didn't have a real bowel movement for 8 months. It was to the point nothing would come out. His colon was so impacted he was "leaking" out over, and was staining his underwear every 15-30 minutes through the day. I, too, would find them in the garbage, laying in the corners in the bathroom, etc. Our first 3 trips to the pediatrician is why Dylan held them so long. His blatant disregard for the real issue (encopresis) is why. I heard the "he's ADHD and can't sit on the toilet long enough" excuse every time I went, even though I tried to tell him that wasn't the case. He sent me home to give Dylan over the counter stuff, Milk of Magnesia, didn't do a thing. Or it would make him so leaky he couldn't make it to the toilet for a day or two, I'd stop giving it to him, and he'd go right back to being impacted. I don't believe the actual encopresis is probably your son's fault, although the behaviors following it obviously are. At 14 he is very well aware of what he's doing. I saw the head of pediatrics at the hospital to get Dylan diagnosed and treated for this. I had to get very angry and aggressive with the pediatrician to get that far, but I got that far. Being nice, for some odd reason, doesn't get me very far where my son is concerned. Anyway - when we saw the head of pediatrics, he diagnosis'ed him and forced it into my brain this wasn't Dylan's fault, it's a real diagnosis, and it needs treated. He put Dylan into the hospital for 3 days, and fed him "Go Lightly" through a tube - up the nose, into the belly. The amount he would have needed to drink to make this beneficial was something disgusting, lol, so the need for the tube. They spent 3 days draining him out, and then sent him home on a strict bathroom routine, added fiber to the diet, and medicine (Miralax and Citrucel). I am almost positive the reasons you are having problems, too, with the wetting, is probably due to this. Everything is compacted. Impacted. Your son's bladder is being pushed on and smashed by the bowel issues. I would go back to your pediatrician and demand you be referred to a specialist in encopresis. I would just keep pushing, asking, calling around and being a pest. [/QUOTE]
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