gcvmom
Here we go again!
I think I'd push for another look at that AS diagnosis. Only reason I'm familiar with it is that it often hits people with Crohn's like my difficult child 1, and I know man in our Crohn's support group who has it. As for the medication cost, there are frequently patient support resources to help defray the cost.
Or, you can do like I've had to for difficult child 1's immunomodulator medications and buy them online from Canada!
As for the hospital, check to see if they have discount rates on accommodations for people travelling from afar for treatment. Many facilities do. If they can at least offer a solid diagnosis and treatment plan, you may be able to get a local doctor to coordinate his on-going care with the experts.
Or, you can do like I've had to for difficult child 1's immunomodulator medications and buy them online from Canada!
As for the hospital, check to see if they have discount rates on accommodations for people travelling from afar for treatment. Many facilities do. If they can at least offer a solid diagnosis and treatment plan, you may be able to get a local doctor to coordinate his on-going care with the experts.