Hi,
Bug had a really weird day yesterday...so sleepy he couldn't really function. This is the third time this has happened in the past month or so and this time was by far the worst. He had trouble getting up yesterday morning (not so unusual) and stayed grumpy all the way to school (also not so unusual). I thought he would perk up in adaptive PE, which he goes to before class starts every day, but his aide tells me he never did. He was so tired he fell asleep five times during a ten minute test. His aide said he was very grumpy when he woke up...kicked a chair and threw a pencil. I picked him up at 12:20 (he has a 'modified day') and he looked very sluggish on the playground. We came home and he slept most of the afternoon. He was awake for about two hours in the evening and went back to sleep at 8:00. He slept through until 7:00 this morning.
We have an appointment with our new psychiatrist in the morning. Bug got accepted into a university-based program and this is our first appointment. Our pediatrician thinks we needs to adjust Bug's medications. He has never been a good sleeper and his sleep problems have gotten worse as we have increased the dose of his clonidine. He now uses two .2 mg patches (.4 mg total), which is a fairly high dose. He wakes up in the middle of the night 2-3 nights/week and has trouble going back to sleep. Sometimes he is completely wired for three hours in the middle of the night. That problem stayed consistent even when we added a low dose of imipramine about six weeks ago (the week before school started). However, now he is having these bouts of excessive sleepiness.
I'm not sure what to think, but yesterday was scary. He was even more sedated than when he first started clonidine. And today he seems fine, as far as the sleepiness and mood go.
He also has a new tic...a grimace that makes his whole neck taut. He is so embarrassed by his tics...it is heartbreaking.
I hope we get some help tomorrow.
Bug had a really weird day yesterday...so sleepy he couldn't really function. This is the third time this has happened in the past month or so and this time was by far the worst. He had trouble getting up yesterday morning (not so unusual) and stayed grumpy all the way to school (also not so unusual). I thought he would perk up in adaptive PE, which he goes to before class starts every day, but his aide tells me he never did. He was so tired he fell asleep five times during a ten minute test. His aide said he was very grumpy when he woke up...kicked a chair and threw a pencil. I picked him up at 12:20 (he has a 'modified day') and he looked very sluggish on the playground. We came home and he slept most of the afternoon. He was awake for about two hours in the evening and went back to sleep at 8:00. He slept through until 7:00 this morning.
We have an appointment with our new psychiatrist in the morning. Bug got accepted into a university-based program and this is our first appointment. Our pediatrician thinks we needs to adjust Bug's medications. He has never been a good sleeper and his sleep problems have gotten worse as we have increased the dose of his clonidine. He now uses two .2 mg patches (.4 mg total), which is a fairly high dose. He wakes up in the middle of the night 2-3 nights/week and has trouble going back to sleep. Sometimes he is completely wired for three hours in the middle of the night. That problem stayed consistent even when we added a low dose of imipramine about six weeks ago (the week before school started). However, now he is having these bouts of excessive sleepiness.
I'm not sure what to think, but yesterday was scary. He was even more sedated than when he first started clonidine. And today he seems fine, as far as the sleepiness and mood go.
He also has a new tic...a grimace that makes his whole neck taut. He is so embarrassed by his tics...it is heartbreaking.
I hope we get some help tomorrow.