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Experience with pain mgmt specialists?
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<blockquote data-quote="flutterbee" data-source="post: 209071"><p>I'd appreciate that, Loth.</p><p></p><p>I think why I'm so nervous is because I don't have a diagnosis and I feel like if we get the pain under control they'll stop looking, but the disease process will still be going on, Know what I mean?? It's really just a band-aid until we know what's causing it which is why I like the idea of the doctor who also looks for the cause.</p><p></p><p>I really don't want more drugs. Maybe a more effective drug if there's something that will help more than the vicodin, but doesn't make me out of it. But, I don't want a handful of drugs - on top of the gazillion medications I already take for other issues. I'm kind of hoping for more therapeutic type treatment. Maybe more steroid injections, specific exercises, PT...something. My friend who is an RN who works in hospice did say I should ask about a fentanyl patch. </p><p></p><p>I have a Yoga DVD that is made for people for chronic pain and if I could ever get my son to show me how to work the DVD player without the remote - since someone lost it - I'll get to try it out. I also got a body healing CD that is supposed to somehow affect brainwaves to control pain. As kooky as it sounds, when I'm listening to it, my pain level is better - it really helps with my GERD, too. It goes right back up after the CD is over though. And as you have to listen to it with headphones, I can't very well go around listening to it all day.</p><p></p><p>Crazymama - I've had morphine several times as that's what they give heart patients - whether you're complaining of significant pain or not - because it dilates the arteries in the heart. The last time I got it, every muscle in my body seized up. It was like having a charlie horse in your entire body. Not doing that again. I was on IV dilaudid for a couple of days after the angioplasty when I had the bleed and all it did was make me sleep. The percocet they gave me after they took me off the dilaudid worked better for the pain. Even if they did work, I wouldn't feel good at all about taking them on a regular basis. They're too powerful. They scare me. I'm glad your husband has gotten some relief. Sitting is ok for me - as long as I can sit Indian style and change positions a lot. I can barely make it to the mailbox and back and can't stand for more than a few minutes at a time. I sorted laundry last night and had to sit down and recuperate before I could put the clothes in the wash. I was sweating from the pain and could hardly move. It's incredibly frustrating.</p><p></p><p>I was going somewhere else with this, too, but lost my train of thought and can't get it back.</p><p></p><p>I appreciate the feedback. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /></p></blockquote><p></p>
[QUOTE="flutterbee, post: 209071"] I'd appreciate that, Loth. I think why I'm so nervous is because I don't have a diagnosis and I feel like if we get the pain under control they'll stop looking, but the disease process will still be going on, Know what I mean?? It's really just a band-aid until we know what's causing it which is why I like the idea of the doctor who also looks for the cause. I really don't want more drugs. Maybe a more effective drug if there's something that will help more than the vicodin, but doesn't make me out of it. But, I don't want a handful of drugs - on top of the gazillion medications I already take for other issues. I'm kind of hoping for more therapeutic type treatment. Maybe more steroid injections, specific exercises, PT...something. My friend who is an RN who works in hospice did say I should ask about a fentanyl patch. I have a Yoga DVD that is made for people for chronic pain and if I could ever get my son to show me how to work the DVD player without the remote - since someone lost it - I'll get to try it out. I also got a body healing CD that is supposed to somehow affect brainwaves to control pain. As kooky as it sounds, when I'm listening to it, my pain level is better - it really helps with my GERD, too. It goes right back up after the CD is over though. And as you have to listen to it with headphones, I can't very well go around listening to it all day. Crazymama - I've had morphine several times as that's what they give heart patients - whether you're complaining of significant pain or not - because it dilates the arteries in the heart. The last time I got it, every muscle in my body seized up. It was like having a charlie horse in your entire body. Not doing that again. I was on IV dilaudid for a couple of days after the angioplasty when I had the bleed and all it did was make me sleep. The percocet they gave me after they took me off the dilaudid worked better for the pain. Even if they did work, I wouldn't feel good at all about taking them on a regular basis. They're too powerful. They scare me. I'm glad your husband has gotten some relief. Sitting is ok for me - as long as I can sit Indian style and change positions a lot. I can barely make it to the mailbox and back and can't stand for more than a few minutes at a time. I sorted laundry last night and had to sit down and recuperate before I could put the clothes in the wash. I was sweating from the pain and could hardly move. It's incredibly frustrating. I was going somewhere else with this, too, but lost my train of thought and can't get it back. I appreciate the feedback. :happy: [/QUOTE]
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