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Fibro? Arthritis?
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<blockquote data-quote="Hound dog" data-source="post: 418634" data-attributes="member: 84"><p>Have the docs check her calcium, potassium, and magnesium levels. Especially since you have issues with the calcium absorption. </p><p></p><p>I might have asked this in the past..........but has anyone had the foresight to blood test and genetic test you two across the board?? I know that they may not find anything......but most of the blood tests can be run with about 5 vials of blood......and the genetic tests can be done from those as well I believe. Of all people, I had a frustrated, and thorough, psychiatrist do this for Travis. He was one of those who wanted to rule out anything medical before treatment. And yet again on this set of blood work the phlebotomist remarked at the thickness of his blood........and when he had that stroke at 18 (when no 18 yr old should be having a stroke) that popped a red flag up in my memory and got me started looking.......and back to a neuro who was willing to do the blood work for the polycythemia. Sometimes dxes of rare conditions come about this way. Like his psychiatrist said........the boy had so many different issues going on at once, it could make it easy to mask an in your face diagnosis unless you had some idea of what you were looking for. I had been asking the right questions all along.......I just hadn't found the right doctor willing to think outside the box and connect all the dots. Once we did everything fell into place and made sense. All his issues are related to each other although they involve more than one body system and by diagnosis alone you'd not guess it because they all stem from the common cause, the polycythemia.</p><p></p><p>Nichole still has her very odd set of symptoms.........and childrens did the same sort of genetic testing on her as Travis' psychiatrist did on him......only so far nothing stands out. But then hers too seem to involve more than one body system so who knows.</p><p></p><p>But honestly, if the doctor would do it, it's worth it to have it done. Then if nothing else you can at least say she doesn't have A-Z, so now let's look somewhere else.</p><p></p><p>Treating the symptoms is good, but being able to work from a known cause gives them much more information to work with than just symptoms alone. Since many of her symptoms are similar to yours or those you've had at similar stages in life, it suggests a genetic component.</p><p></p><p>Poor kid. </p><p></p><p>Hugs</p></blockquote><p></p>
[QUOTE="Hound dog, post: 418634, member: 84"] Have the docs check her calcium, potassium, and magnesium levels. Especially since you have issues with the calcium absorption. I might have asked this in the past..........but has anyone had the foresight to blood test and genetic test you two across the board?? I know that they may not find anything......but most of the blood tests can be run with about 5 vials of blood......and the genetic tests can be done from those as well I believe. Of all people, I had a frustrated, and thorough, psychiatrist do this for Travis. He was one of those who wanted to rule out anything medical before treatment. And yet again on this set of blood work the phlebotomist remarked at the thickness of his blood........and when he had that stroke at 18 (when no 18 yr old should be having a stroke) that popped a red flag up in my memory and got me started looking.......and back to a neuro who was willing to do the blood work for the polycythemia. Sometimes dxes of rare conditions come about this way. Like his psychiatrist said........the boy had so many different issues going on at once, it could make it easy to mask an in your face diagnosis unless you had some idea of what you were looking for. I had been asking the right questions all along.......I just hadn't found the right doctor willing to think outside the box and connect all the dots. Once we did everything fell into place and made sense. All his issues are related to each other although they involve more than one body system and by diagnosis alone you'd not guess it because they all stem from the common cause, the polycythemia. Nichole still has her very odd set of symptoms.........and childrens did the same sort of genetic testing on her as Travis' psychiatrist did on him......only so far nothing stands out. But then hers too seem to involve more than one body system so who knows. But honestly, if the doctor would do it, it's worth it to have it done. Then if nothing else you can at least say she doesn't have A-Z, so now let's look somewhere else. Treating the symptoms is good, but being able to work from a known cause gives them much more information to work with than just symptoms alone. Since many of her symptoms are similar to yours or those you've had at similar stages in life, it suggests a genetic component. Poor kid. Hugs [/QUOTE]
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