timer lady
Queen of Hearts
We finally got the fluroscene angiogram completed at the eye specialist yesterday. It was a challenge but it's done.
You should see the pictures this thing produced - my eyes look like little planets (they gave me copies right away for Mayo Clinic).
Final results - treat as presumed Susac Syndrome. With some complications from the shingles , spinal meningitis & the CNS involvement that I had last August. He thinks Mayo should straighten that one out. He saw something in my left eye that isn't consistent with Susac, rather left over from the CNS infection.
Kind of anti- climatic in my mind as everyone else assumed this was the diagnosis anyway.
Now, I'm going to beg my neurologist to start treatment sooner than Mayo - I doubt that will happen but I hate to wait another month with the diagnosis nailed down. And saying that, I doubt I will have care for kt in place before my given appointment at Mayo. They are searching for a 2 week placement for kt....sigh. It may end up that husband cannot make any of this trip with me - my sister & sister in law were coming up anyway to help me, just wanted my husband along. You know, how silly we can get about things like that.
Sigh.....
You should see the pictures this thing produced - my eyes look like little planets (they gave me copies right away for Mayo Clinic).
Final results - treat as presumed Susac Syndrome. With some complications from the shingles , spinal meningitis & the CNS involvement that I had last August. He thinks Mayo should straighten that one out. He saw something in my left eye that isn't consistent with Susac, rather left over from the CNS infection.
Kind of anti- climatic in my mind as everyone else assumed this was the diagnosis anyway.
Now, I'm going to beg my neurologist to start treatment sooner than Mayo - I doubt that will happen but I hate to wait another month with the diagnosis nailed down. And saying that, I doubt I will have care for kt in place before my given appointment at Mayo. They are searching for a 2 week placement for kt....sigh. It may end up that husband cannot make any of this trip with me - my sister & sister in law were coming up anyway to help me, just wanted my husband along. You know, how silly we can get about things like that.
Sigh.....