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<blockquote data-quote="trinityroyal" data-source="post: 315648" data-attributes="member: 3907"><p>Susie, I'm so sorry that all the docs are continuing to be so unresponsive.</p><p></p><p>I wonder...is it possible that Jessie's strength and ability to cope might be getting in her way? In the eyes of the docs, she's not melting down or having hissy fits and she's still able to function so it can't be that bad.</p><p></p><p>My Grannie had what I call "healthy face". She didn't ever look ratty when she was ill, and pain didn't show in her face at all. As a result, all her docs missed the pancreatic cancer until it had metastasized through her body and it was too late to do anything.</p><p></p><p>As a fellow healthy-face sufferer, I have learned to be demonstrative with health professionals when necessary, in order to get the treatment I need. This includes kicking an orthopaedic surgeon in the shins when he was dismissing my badly mangled arm as malingering to get off work. He yanked on it, it hurt like billy-o, and I kicked, purely out of reflex. BUT after that I got to see the neuro-surgeon, physiotherapist, and a team of other specialists.</p><p></p><p>I guess the point of all this is that if Jessie is trying her best to be stoic about it, then the medicos might not recognize just how badly she's feeling, despite the evidence that's right in front of them.</p><p></p><p>Maybe she needs to show them her agony, so that they can see and understand it. Maybe then they'll start to acknowledge and deal with it.</p><p></p><p>Sending all the strength I can muster for both of you, and a pair of my old steel-toed boots for kicking hineys as appropriate.</p><p></p><p>Trinity</p></blockquote><p></p>
[QUOTE="trinityroyal, post: 315648, member: 3907"] Susie, I'm so sorry that all the docs are continuing to be so unresponsive. I wonder...is it possible that Jessie's strength and ability to cope might be getting in her way? In the eyes of the docs, she's not melting down or having hissy fits and she's still able to function so it can't be that bad. My Grannie had what I call "healthy face". She didn't ever look ratty when she was ill, and pain didn't show in her face at all. As a result, all her docs missed the pancreatic cancer until it had metastasized through her body and it was too late to do anything. As a fellow healthy-face sufferer, I have learned to be demonstrative with health professionals when necessary, in order to get the treatment I need. This includes kicking an orthopaedic surgeon in the shins when he was dismissing my badly mangled arm as malingering to get off work. He yanked on it, it hurt like billy-o, and I kicked, purely out of reflex. BUT after that I got to see the neuro-surgeon, physiotherapist, and a team of other specialists. I guess the point of all this is that if Jessie is trying her best to be stoic about it, then the medicos might not recognize just how badly she's feeling, despite the evidence that's right in front of them. Maybe she needs to show them her agony, so that they can see and understand it. Maybe then they'll start to acknowledge and deal with it. Sending all the strength I can muster for both of you, and a pair of my old steel-toed boots for kicking hineys as appropriate. Trinity [/QUOTE]
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