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<blockquote data-quote="Mattsmom277" data-source="post: 315687" data-attributes="member: 4264"><p>Medical professionals who dismiss our health issues that are limiting our lives is so frustrating. Just as bad is the way that many in the field are paying so much attention to addictions rates from abuse of pain medications that they often nowadays flat out refuse to treat pain. I am so sorry your Jess is being neglected. I truly do believe this is neglect.</p><p></p><p>I went through YEARS of being dismissed for ongoing health issues. I was in ER so much or doctors office, I should have had a permanent exam room just for me. Debilitating bladder spasms that would seize my bladder so completely I could not urinate and would require a catherer. Ummm, problem? I'd say so. Solution? Sit longer on toilet to try to fully empty bladder more often. Are you kidding? Tingling in fingers, then entire hands, then toes, then feet, eventually complete numbness in limbs with loss of strength in my hands (couldn't hold a fork or spoon, tie shoes etc). Solution: destress, its anxiety. Okay then why was it at that point it was MONTHS of this and my left leg was literally like it was dead. Could have put a ice pick through my calf and I wouldn't have felt it. </p><p>Esophagus spasms that had the ER doctor so panicked she didn't know what was going on so ordered a surgical consult and had OR prepped just in case, she couldn't imagine anything that would cause that level of pain (worse than childbirth with me screaming in a way I didn't birthing kids). Solution: chew your food slower. Umm, ok. I have a surgically altered stomache that is one ounce in size. About equal to 5 grapes. If I overfill or don't chew, I projectile vomit. Not to mention, I hadn't eaten at that point for 2 days as the pain escalated to the point of the ER visit. On and on it went, with back spasms, chest pains/spasms. I lost my vision three times! As for pain with any of these things, take a ibuprofen. PFT!</p><p></p><p>Finally a ER doctor did a simple neurological exam after pulling up my chart of the previous few years history of visits. Asked me about 10 questions. Then told me, why hasn't someone sent you to a neurologist? Something is really not right here and you're young. All of these issues even statistically are more than likely related. </p><p></p><p>Did I get a neuro referall from my doctor after the ER sent his report? Nope. I got sent to a different type of specialist, and was told off for showing visible annoyance that it wasn't a neuro referall. I was asked why I would WANT something neurological as a answer? Umm, huh? Okay doctor. Yes. I want some godawful answer. Maybe a nice big fat juicy growing brain tumor or something. Please, pretty please. Give me a break. Of course the specialist said in my first and only visit they would see me, why are you here, you need a neurologist. DOH! Please put it in writing to my doctor! Eventual answer, Multiple Sclerosis with massive lesions on brain on spine. Did the doctor show any shame for disregarding years of progression of a debilitating disease that could have been prevented? Nope. Maybe he thinks its a psychosamatic display of my anxiety!!</p><p></p><p>Whew! I'm so glad those days are over. I am so glad your Jess has you in her corner. We are not stupid people right? If you know and Jess knows something is going on that needs intervention, my bet is on you are right. Doctors give zero credit for people knowing their own bodies. I think many have god complexes. That fancy degree can get to their heads. I wish it was like days of old, where doctors toiled out of true commitment to well rounded treatment of small practices. I swear as patients nowadays we are all just sheep they herd as their bank accounts grow so that they can retire young and leave their patients behind without doctors in the long run. I guess I'm jaded. </p><p></p><p>Keep at it. Someone has to finally listen and do something concrete for your Jess!</p></blockquote><p></p>
[QUOTE="Mattsmom277, post: 315687, member: 4264"] Medical professionals who dismiss our health issues that are limiting our lives is so frustrating. Just as bad is the way that many in the field are paying so much attention to addictions rates from abuse of pain medications that they often nowadays flat out refuse to treat pain. I am so sorry your Jess is being neglected. I truly do believe this is neglect. I went through YEARS of being dismissed for ongoing health issues. I was in ER so much or doctors office, I should have had a permanent exam room just for me. Debilitating bladder spasms that would seize my bladder so completely I could not urinate and would require a catherer. Ummm, problem? I'd say so. Solution? Sit longer on toilet to try to fully empty bladder more often. Are you kidding? Tingling in fingers, then entire hands, then toes, then feet, eventually complete numbness in limbs with loss of strength in my hands (couldn't hold a fork or spoon, tie shoes etc). Solution: destress, its anxiety. Okay then why was it at that point it was MONTHS of this and my left leg was literally like it was dead. Could have put a ice pick through my calf and I wouldn't have felt it. Esophagus spasms that had the ER doctor so panicked she didn't know what was going on so ordered a surgical consult and had OR prepped just in case, she couldn't imagine anything that would cause that level of pain (worse than childbirth with me screaming in a way I didn't birthing kids). Solution: chew your food slower. Umm, ok. I have a surgically altered stomache that is one ounce in size. About equal to 5 grapes. If I overfill or don't chew, I projectile vomit. Not to mention, I hadn't eaten at that point for 2 days as the pain escalated to the point of the ER visit. On and on it went, with back spasms, chest pains/spasms. I lost my vision three times! As for pain with any of these things, take a ibuprofen. PFT! Finally a ER doctor did a simple neurological exam after pulling up my chart of the previous few years history of visits. Asked me about 10 questions. Then told me, why hasn't someone sent you to a neurologist? Something is really not right here and you're young. All of these issues even statistically are more than likely related. Did I get a neuro referall from my doctor after the ER sent his report? Nope. I got sent to a different type of specialist, and was told off for showing visible annoyance that it wasn't a neuro referall. I was asked why I would WANT something neurological as a answer? Umm, huh? Okay doctor. Yes. I want some godawful answer. Maybe a nice big fat juicy growing brain tumor or something. Please, pretty please. Give me a break. Of course the specialist said in my first and only visit they would see me, why are you here, you need a neurologist. DOH! Please put it in writing to my doctor! Eventual answer, Multiple Sclerosis with massive lesions on brain on spine. Did the doctor show any shame for disregarding years of progression of a debilitating disease that could have been prevented? Nope. Maybe he thinks its a psychosamatic display of my anxiety!! Whew! I'm so glad those days are over. I am so glad your Jess has you in her corner. We are not stupid people right? If you know and Jess knows something is going on that needs intervention, my bet is on you are right. Doctors give zero credit for people knowing their own bodies. I think many have god complexes. That fancy degree can get to their heads. I wish it was like days of old, where doctors toiled out of true commitment to well rounded treatment of small practices. I swear as patients nowadays we are all just sheep they herd as their bank accounts grow so that they can retire young and leave their patients behind without doctors in the long run. I guess I'm jaded. Keep at it. Someone has to finally listen and do something concrete for your Jess! [/QUOTE]
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