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The Watercooler
Furious and trying not to cry because i am so da.mn mad
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<blockquote data-quote="susiestar" data-source="post: 391048" data-attributes="member: 1233"><p>No. No one will even BEGIN to look into CFS or fibro for her. I also have CFS but always think of it as part of the fibro. I didn't think it sounded like PANDAS because she didn't have a strep infection for many months prior to this starting and when I looked at it months and months ago it didn't sound right. I DO know it is real. I was totally ASTONISHED when they told me PANDAS isn't real, fibro is simply depression and anxiety (gee, then why didn't hte MANY YEARS of treatment for anxiety and depression make any teensy difference in MY fibro??), and this is "all in her head". Yes, the idiot doctor USED that phrase.</p><p> </p><p>in my opinion we are on our own as we always have been. Largely because she is not a difficult child. I ran into the same thing as a kid. At least my mom found a doctor who treated adults and would treat me. He gave me the wrong diagnosis but at least he treated my symptoms. I have 5 months to find someone who will help her, cause we have 5 refills on her medications. I can stretch it because the muscle relaxers are at twice the dosage I am comfortable giving her. Either way, this child will NOT go without treatment for the pain. No matter WHAT I ahve to do. I won't get her hooked on anything because that is just another problem we don't need. But I will NOT punish her for being a easy child.</p></blockquote><p></p>
[QUOTE="susiestar, post: 391048, member: 1233"] No. No one will even BEGIN to look into CFS or fibro for her. I also have CFS but always think of it as part of the fibro. I didn't think it sounded like PANDAS because she didn't have a strep infection for many months prior to this starting and when I looked at it months and months ago it didn't sound right. I DO know it is real. I was totally ASTONISHED when they told me PANDAS isn't real, fibro is simply depression and anxiety (gee, then why didn't hte MANY YEARS of treatment for anxiety and depression make any teensy difference in MY fibro??), and this is "all in her head". Yes, the idiot doctor USED that phrase. in my opinion we are on our own as we always have been. Largely because she is not a difficult child. I ran into the same thing as a kid. At least my mom found a doctor who treated adults and would treat me. He gave me the wrong diagnosis but at least he treated my symptoms. I have 5 months to find someone who will help her, cause we have 5 refills on her medications. I can stretch it because the muscle relaxers are at twice the dosage I am comfortable giving her. Either way, this child will NOT go without treatment for the pain. No matter WHAT I ahve to do. I won't get her hooked on anything because that is just another problem we don't need. But I will NOT punish her for being a easy child. [/QUOTE]
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Furious and trying not to cry because i am so da.mn mad
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