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Furious and trying not to cry because i am so da.mn mad
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<blockquote data-quote="Josie" data-source="post: 391161" data-attributes="member: 1792"><p>I wish I could say I was surprised by all of this, but I have been living this same nightmare for 3 years with my daughter. We had a very similar hospital experience. It is quite a shock to find that even going to the hospital offers no hope for even symptom relief and that doctors and nurses seem so uncaring and close-minded. I am not sure I will ever really get over it. There is just no way to go back to that blind trust of the medical profession.</p><p></p><p>But it is possible to find doctors that are more compassionate. We actually have a doctor now that calls or e-mails to check on my daughter. He isn't even her main doctor any more. He told me he thinks about her a lot. It is because she isn't progressing like he would like, but there is no doubt in my mind that he cares about her and is devoting time, when she is not in his office, to figuring out how to help her.</p><p></p><p>The test you need to run for Lyme is from a special lab and you will have to pay out of pocket. Some people are able to get their PCP to sign for it, if they take the forms to them. So that might be another option. You will need to see the test results yourself, so be sure you can get the doctor to give you a copy.</p></blockquote><p></p>
[QUOTE="Josie, post: 391161, member: 1792"] I wish I could say I was surprised by all of this, but I have been living this same nightmare for 3 years with my daughter. We had a very similar hospital experience. It is quite a shock to find that even going to the hospital offers no hope for even symptom relief and that doctors and nurses seem so uncaring and close-minded. I am not sure I will ever really get over it. There is just no way to go back to that blind trust of the medical profession. But it is possible to find doctors that are more compassionate. We actually have a doctor now that calls or e-mails to check on my daughter. He isn't even her main doctor any more. He told me he thinks about her a lot. It is because she isn't progressing like he would like, but there is no doubt in my mind that he cares about her and is devoting time, when she is not in his office, to figuring out how to help her. The test you need to run for Lyme is from a special lab and you will have to pay out of pocket. Some people are able to get their PCP to sign for it, if they take the forms to them. So that might be another option. You will need to see the test results yourself, so be sure you can get the doctor to give you a copy. [/QUOTE]
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Furious and trying not to cry because i am so da.mn mad
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