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Furious and trying not to cry because i am so da.mn mad
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<blockquote data-quote="Josie" data-source="post: 391241" data-attributes="member: 1792"><p>Susie explained the Lyme thing very well. There is a good book that explains the controversy really well, called "Cure Unknown". It is written by Pamela Weintraub who is the Editor of Discover magazine. She is a science writer and wrote the book thinking the Lyme patients were wrong, but came away thinking the mainstream views of Lyme were based on inadequate science. Unfortunately, doctors that follow the LL treatment plans are often sanctioned by the state medical boards. I am not sure why since long term antibiotics are acceptable for acne, it is such a crime to prescribe them for a disease that can be serious, but that seems to be the case. That is why it is so hard to find doctors that will test and treat.</p><p></p><p>I watched a hearing about Lyme where LL doctors were presenting their case to the Infectious Disease Society of America that their guidelines should be changed. They did not convince them, but what was interesting to me is that one of the IDSA doctors stood up there and was talking about the misguided patients who thought they had Lyme but really had anxiety. He talked about a patient that he said clearly suffered from anxiety and came to him for Lyme treatment. He ruled out Lyme and diagnosis'ed anxiety as the cause of her physical complaints. I was waiting for him to say the parents took her to a psychiatrist and the girl got her life back. Even I might have believed that might be an answer for my daughter if he had said that. Instead, he said it is a shame the parents didn't listen to him and pursued the Lyme path. That was the best case he had, apparently, for it all being anxiety. Where is the evidence that was the case? It doesn't show that she had Lyme, but it sure doesn't show she had anxiety.</p><p></p><p>The problem I have with thinking something is emotionally based is that almost everyone has something that can be said to be the cause. My daughter was doing well in school, had friends, and was good in sports. She had a happy life. I was told the internal pressure of maintaining all of that was too much. If she hadn't been doing well, it would have been the pressure of not doing well. </p><p></p><p>The thing is that doctors do their tests and rely on hard science to diagnosis. If they can't find an answer in their tests, they go to a mental problem. Yet there is no hard test for that, either. How is it that they can be so sure about that? Especially when they are not psychiatrists. Also, what if they are not running the right tests or the tests are not accurate?</p><p></p><p>And here is my list of things in my family thought to be mental but cured by other means:</p><p></p><p>A's behaviour problems - gone when we changed her diet</p><p></p><p>B's stomach problems - thought to be anxiety, gone when we changed her diet</p><p></p><p>my shortness of breath - thought to be stress, gone when I take antibiotics</p><p></p><p>B's lightheadedness when she stood up - thought to be Obsessive Compulsive Disorder (OCD) and she only thought she would feel faint, gone when she stopped taking Florinef and a beta blocker</p><p></p><p>B's emotional reactivity and raging - apparently gone with Lyme treatment </p><p></p><p>Just because they can't find a physical cause doesn't mean there isn't one, at least some of the time.</p></blockquote><p></p>
[QUOTE="Josie, post: 391241, member: 1792"] Susie explained the Lyme thing very well. There is a good book that explains the controversy really well, called "Cure Unknown". It is written by Pamela Weintraub who is the Editor of Discover magazine. She is a science writer and wrote the book thinking the Lyme patients were wrong, but came away thinking the mainstream views of Lyme were based on inadequate science. Unfortunately, doctors that follow the LL treatment plans are often sanctioned by the state medical boards. I am not sure why since long term antibiotics are acceptable for acne, it is such a crime to prescribe them for a disease that can be serious, but that seems to be the case. That is why it is so hard to find doctors that will test and treat. I watched a hearing about Lyme where LL doctors were presenting their case to the Infectious Disease Society of America that their guidelines should be changed. They did not convince them, but what was interesting to me is that one of the IDSA doctors stood up there and was talking about the misguided patients who thought they had Lyme but really had anxiety. He talked about a patient that he said clearly suffered from anxiety and came to him for Lyme treatment. He ruled out Lyme and diagnosis'ed anxiety as the cause of her physical complaints. I was waiting for him to say the parents took her to a psychiatrist and the girl got her life back. Even I might have believed that might be an answer for my daughter if he had said that. Instead, he said it is a shame the parents didn't listen to him and pursued the Lyme path. That was the best case he had, apparently, for it all being anxiety. Where is the evidence that was the case? It doesn't show that she had Lyme, but it sure doesn't show she had anxiety. The problem I have with thinking something is emotionally based is that almost everyone has something that can be said to be the cause. My daughter was doing well in school, had friends, and was good in sports. She had a happy life. I was told the internal pressure of maintaining all of that was too much. If she hadn't been doing well, it would have been the pressure of not doing well. The thing is that doctors do their tests and rely on hard science to diagnosis. If they can't find an answer in their tests, they go to a mental problem. Yet there is no hard test for that, either. How is it that they can be so sure about that? Especially when they are not psychiatrists. Also, what if they are not running the right tests or the tests are not accurate? And here is my list of things in my family thought to be mental but cured by other means: A's behaviour problems - gone when we changed her diet B's stomach problems - thought to be anxiety, gone when we changed her diet my shortness of breath - thought to be stress, gone when I take antibiotics B's lightheadedness when she stood up - thought to be Obsessive Compulsive Disorder (OCD) and she only thought she would feel faint, gone when she stopped taking Florinef and a beta blocker B's emotional reactivity and raging - apparently gone with Lyme treatment Just because they can't find a physical cause doesn't mean there isn't one, at least some of the time. [/QUOTE]
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