Marguerite
Active Member
G'day, people.
The sun finally came out here today. We still got an afternoon storm, but after the heat of the middle of the day, the bitumen on the road was hot so the small amount of rain we got evapoarted off in drifts of steam, like machine-made mist in a bad Scottish Highlands movie.
I had to leave difficult child 3 at home today to work on his own. I got home just as he finished for the day. I'd had two doctor's appointments. The first specialist was the pain bloke, he wanted me to see my rheumatologist as soon as possible to discuss the increase in major joint pain. The second appointment was the rheumatologist, who tried to tell me that there's nothing he specifically cando for me. I told him that every other specialist keeps referring me to him, so he's tried one last things - two weeks on prednisone. I haven't started it yet, I probably should. He said if the prednisone makes a dramatic improvement in the pain then we will know that it has an inflammatory component. Otherwise... I go back to all the other specialists and it's back to the drawing board.
With all the hassles they're going through, we have difficult child 1 & daughter in law here for dinner tonight. We've already done letters etc on the computer, they've emailed the solicitor acting for the Other Party explaining yet again that
1) they won't pay ANY amounts without evidence of what is needed;
and
2) they haven't got an unlimited store of funds, they have even less income now that difficult child 1 has lost his job.
I've had difficult child 1 agree to my broadening the search for another job and also looking into getting him enrolled into a vocational course at college (although enrolments should have already closed). Because of his disability, he is entitled to one free college course a year, so we're grabbing onto that now.
Tomorrow we leave at midday to go visit easy child & BF1 for the weekend. My brother lives up there too, he's offered his yacht as "wedding car" to easy child so we'll try and meet up with him too, to iron that out. We ned to work out practicalities, such as how we get easy child onto the boat, as well as whether the boat has a shallow enough draft to be able to moor at the jetty.
So difficult child 3 has to see the GP at lunchtime, to get some paperwork filled in, reports etc for the Dept of Ed for his exams later this year. The education board is the problem here - the school are really supportive, but these exams are public ones for the whole state and we have to apply for special provisions to people who haven't aclue and who care even less.
After the GP it's off to the therapist for CBT. That is around the corner from husband's work, so he'll hang around at work until we get there. Then it's across the Sydney Harbour Bridge (or more likely, the tunnel) and heading north for two hours to easy child's place in Newcastle.
And we still need to pack! We'll get onto it after difficult child 1 & daughter in law head home.
easy child has a useful weekend planned. First thing Saturday morning, husband is heading out to play trains with the model engineering club in Newcastle. easy child & I will go to her wedding dress fitting, then continue on to meet up with husband. difficult child 3 will probably be with husband, he's a junior associate of husband's club.
After that - maybe visit my brother, maybe visit BF1's mother. Then in the evening, dinner at the wedding reception place so we can check out the menu and make some decisions.
It sounds busy but there should be plenty of chance for me to rest, plenty of chance for difficult child 3 to take some great photos. I'm packing the swimsuits too, because easy child & BF1 live right on the lake (my brother does too, on the other side of the lake) and if it's hot, I want to swim. Getting everybody into either the lake or the pool for a relaxing swim should be lovely.
I hopefully will be able to log on from easy child's place, we've done it before. I'll let you know how the weekend goes!
Enjoy your Thursday.
Marg
The sun finally came out here today. We still got an afternoon storm, but after the heat of the middle of the day, the bitumen on the road was hot so the small amount of rain we got evapoarted off in drifts of steam, like machine-made mist in a bad Scottish Highlands movie.
I had to leave difficult child 3 at home today to work on his own. I got home just as he finished for the day. I'd had two doctor's appointments. The first specialist was the pain bloke, he wanted me to see my rheumatologist as soon as possible to discuss the increase in major joint pain. The second appointment was the rheumatologist, who tried to tell me that there's nothing he specifically cando for me. I told him that every other specialist keeps referring me to him, so he's tried one last things - two weeks on prednisone. I haven't started it yet, I probably should. He said if the prednisone makes a dramatic improvement in the pain then we will know that it has an inflammatory component. Otherwise... I go back to all the other specialists and it's back to the drawing board.
With all the hassles they're going through, we have difficult child 1 & daughter in law here for dinner tonight. We've already done letters etc on the computer, they've emailed the solicitor acting for the Other Party explaining yet again that
1) they won't pay ANY amounts without evidence of what is needed;
and
2) they haven't got an unlimited store of funds, they have even less income now that difficult child 1 has lost his job.
I've had difficult child 1 agree to my broadening the search for another job and also looking into getting him enrolled into a vocational course at college (although enrolments should have already closed). Because of his disability, he is entitled to one free college course a year, so we're grabbing onto that now.
Tomorrow we leave at midday to go visit easy child & BF1 for the weekend. My brother lives up there too, he's offered his yacht as "wedding car" to easy child so we'll try and meet up with him too, to iron that out. We ned to work out practicalities, such as how we get easy child onto the boat, as well as whether the boat has a shallow enough draft to be able to moor at the jetty.
So difficult child 3 has to see the GP at lunchtime, to get some paperwork filled in, reports etc for the Dept of Ed for his exams later this year. The education board is the problem here - the school are really supportive, but these exams are public ones for the whole state and we have to apply for special provisions to people who haven't aclue and who care even less.
After the GP it's off to the therapist for CBT. That is around the corner from husband's work, so he'll hang around at work until we get there. Then it's across the Sydney Harbour Bridge (or more likely, the tunnel) and heading north for two hours to easy child's place in Newcastle.
And we still need to pack! We'll get onto it after difficult child 1 & daughter in law head home.
easy child has a useful weekend planned. First thing Saturday morning, husband is heading out to play trains with the model engineering club in Newcastle. easy child & I will go to her wedding dress fitting, then continue on to meet up with husband. difficult child 3 will probably be with husband, he's a junior associate of husband's club.
After that - maybe visit my brother, maybe visit BF1's mother. Then in the evening, dinner at the wedding reception place so we can check out the menu and make some decisions.
It sounds busy but there should be plenty of chance for me to rest, plenty of chance for difficult child 3 to take some great photos. I'm packing the swimsuits too, because easy child & BF1 live right on the lake (my brother does too, on the other side of the lake) and if it's hot, I want to swim. Getting everybody into either the lake or the pool for a relaxing swim should be lovely.
I hopefully will be able to log on from easy child's place, we've done it before. I'll let you know how the weekend goes!
Enjoy your Thursday.
Marg
:temps:
