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<blockquote data-quote="susiestar" data-source="post: 499677" data-attributes="member: 1233"><p>Sounds like you got an awesome evaluation. I hope that this can help the school see how so much of what he does is just not in his control, esp the language. It IS shocking and that is why it is imprinted on his brain. Amazing that you got the therapy covered and don't have to adjust the other budget! That is incredible. We just don't have those programs here. Part of me has wondered if we had moved to your area if we could have found help for J's health issues, because MN seems to cover a LOT more than OK does. </p><p></p><p>I do NOT mean this to be offensive or that I think of Q like a dog. HONEST. I know I made a dog analogy on a previous post. But I posted on flutterby's new dog post about a show on Netflix called DogTown that is about Best Friends animal rescue in Utah - 33,000 acres of no kill animal shelter - one of a kind. National Geographic did a tv show about them. They show the rescue and rehabilitation through to adoption of 3-4 dogs per episode. </p><p></p><p>One of them has a golden retriever that 2 or 3 shelters thought was unable to learn because he was so hard to train. The trainer that worked with him figured out what motivated him (it was treats) and used them to get him to sit reliably in 24 hours after they had the medical evaluation to make sure he didn't have any neuro problems. This trainer was amazing to me. He just ignored anything he didn't like. Other trainers also made a big deal about certain good behaviors and gave NO reaction to negative ones.</p><p></p><p>I thought about Q's blurts because it seems to me the problem started because he got a reaction when he first said the words. A BIG reaction. This creates pathways in the brain, which we know partly from research on sensory issues and partly because we know seizures cause damage to certain areas and this has a big impact on behavior. So why not pick a couple of new words, teach them to Q and work to get the school staff to give a BIG reaction to those "good" words every time? Then you could link good words to blurts maybe. </p><p></p><p>the other reason this seems to me like it might work is that I had a friend in college who had a bird that cussed like nothing I have ever seen. His brother trained it and then moved back home after college and their mom wouldn't have it in the house. So my friend took it to his apartment. He would react when the bird said ANYTHING that wasn't a curse and he even had a sign outside that said "Bird curses - do NOT react in any way. React BIG when he says ANYTHING else." it took a year, but finally the bird stopped cussing and had a few other words. It picked up on words said with emphasis. That is what we say curse words with. </p><p></p><p>I have huge faith in Q and his ability to learn. If that stupid bird that weighed a total of maybe six ounces could learn to not curse, then Q's brain can learn new pathways too.</p><p></p><p>I just wish I had as much faith in the people at school and thought that THEY could learn to do this. </p><p></p><p>Anyway, the new evaluation, while shocking, just shows how much growth he can make. It also opens up the door to some new funding for help and that is WONDERFUL! </p><p></p><p>I hope that my idea isn't upsetting and you understand that it is just something that came from looking at behavior another way and NOT because I think that Q is a dog or bird or anything. in my opinion he is an awesome kid who understands a LOT mroe than the adults at his school and is incredibly special. Just what he said about the therapist is amazing. I know adults who cannot see therapy as anything like that.</p></blockquote><p></p>
[QUOTE="susiestar, post: 499677, member: 1233"] Sounds like you got an awesome evaluation. I hope that this can help the school see how so much of what he does is just not in his control, esp the language. It IS shocking and that is why it is imprinted on his brain. Amazing that you got the therapy covered and don't have to adjust the other budget! That is incredible. We just don't have those programs here. Part of me has wondered if we had moved to your area if we could have found help for J's health issues, because MN seems to cover a LOT more than OK does. I do NOT mean this to be offensive or that I think of Q like a dog. HONEST. I know I made a dog analogy on a previous post. But I posted on flutterby's new dog post about a show on Netflix called DogTown that is about Best Friends animal rescue in Utah - 33,000 acres of no kill animal shelter - one of a kind. National Geographic did a tv show about them. They show the rescue and rehabilitation through to adoption of 3-4 dogs per episode. One of them has a golden retriever that 2 or 3 shelters thought was unable to learn because he was so hard to train. The trainer that worked with him figured out what motivated him (it was treats) and used them to get him to sit reliably in 24 hours after they had the medical evaluation to make sure he didn't have any neuro problems. This trainer was amazing to me. He just ignored anything he didn't like. Other trainers also made a big deal about certain good behaviors and gave NO reaction to negative ones. I thought about Q's blurts because it seems to me the problem started because he got a reaction when he first said the words. A BIG reaction. This creates pathways in the brain, which we know partly from research on sensory issues and partly because we know seizures cause damage to certain areas and this has a big impact on behavior. So why not pick a couple of new words, teach them to Q and work to get the school staff to give a BIG reaction to those "good" words every time? Then you could link good words to blurts maybe. the other reason this seems to me like it might work is that I had a friend in college who had a bird that cussed like nothing I have ever seen. His brother trained it and then moved back home after college and their mom wouldn't have it in the house. So my friend took it to his apartment. He would react when the bird said ANYTHING that wasn't a curse and he even had a sign outside that said "Bird curses - do NOT react in any way. React BIG when he says ANYTHING else." it took a year, but finally the bird stopped cussing and had a few other words. It picked up on words said with emphasis. That is what we say curse words with. I have huge faith in Q and his ability to learn. If that stupid bird that weighed a total of maybe six ounces could learn to not curse, then Q's brain can learn new pathways too. I just wish I had as much faith in the people at school and thought that THEY could learn to do this. Anyway, the new evaluation, while shocking, just shows how much growth he can make. It also opens up the door to some new funding for help and that is WONDERFUL! I hope that my idea isn't upsetting and you understand that it is just something that came from looking at behavior another way and NOT because I think that Q is a dog or bird or anything. in my opinion he is an awesome kid who understands a LOT mroe than the adults at his school and is incredibly special. Just what he said about the therapist is amazing. I know adults who cannot see therapy as anything like that. [/QUOTE]
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