Good thoughts please

[flutterby]

As many may know, I was diagnosis'd with Myasthenia Gravis (MG) in September by a physiatrist.

Monday I see a neurologist who specializes in neuro-muscular disorders. This will be the third neuro since December. First one dropped the ball and wouldn't return my phone calls, second one wasn't a neuro-muscular specialist and is the one sending me to the one I see on Monday.

Other that the initial dose of mestinon (60mg every 4 hours), my MG isn't being treated. That is a very low dose and I've had a lot of days where it hasn't been enough. This entire week, for example. It is an effort just to stand - my leg muscles shake and burn, it is an effort to hold the gas in the car and I have to put my car in park at red lights because I can't hold the brake.

So, I'm asking for good thoughts that this guy will get the ball rolling. He's supposed to be really good. I'm ready to deal with this and move on with my life.

Thanks in advance!

 

[Shari]

Praying gor you heather. I remember those few days when you finally felt good...I pray those are just a few days away again...

 

[HaoZi]

Best wishes that this one does the best job possible.

 

[Star*]

Well, Flutter ?

I do wish you the best of luck! Always. I also know you have a wicked way with a pen - and the written word. Also adorable rats. OF WHICH WE HAVE SEEN ABSOLUTELY NO PICTURES....(hrumph)

Anywho - I think I would send to the first doctor that dropped the ball - ? An alzheimers phamplet. No I am not kidding. In there I would put a note that said something in your own great word - but with me I would say something like -

Dear Dr. Jerky Turkey,

Hello! I'm having a good day today with MG. Which is amazing since you dropped the ball and forgot to contact me. Which means I'm probably not properly medicated. Which means it's amazing I can write, or walk, or anything. However, since I've still got a great sense of kindness and I'm a lovely person from the inside out? I had no idea how on earth you could possibly forget that I'm in pain. I paid my co-pay. I found a way to your office, I took time out of my life to get there, paid for the gas, waited my turn in your waiting room - politely. Spent my time waiting on you to see me. Then drove back home (more gas and my time) then waited patiently for you to return my test results. Oddly enough you never called. This left me with no help, no follow up, no follow through and I have had to start the process all over again - what a pain! I figured this could only be due to your lack of fading memory. (Please see enclosed phamplet) I hope it helps.

Flutterby

(in otherwords - he wasted YOUR time - I'd waste a little of his) jerk.

I really hope you get some help!

 

[witzend]

Good luck, Heather! You deserve it!

 

[1905]

OK, only 2 more days until Monday. Then you'll have some relief, I know it. Good Luck!

 

[Wiped Out]

Keeping good thoughts and saying prayers! You so deserve to be feeling better!

 

[AnnieO]

Lots of gentle hugs and prayers, Heather!

 

[KTMom91]

Hugs and prayers going out, Heather.

 

[TerryJ2]

Sending strength, pain-erasing vibes, and good doctors you way!

 

[nvts]

Lots of prayers and good thoughts headed your way! Let's hope he's the best of the best for you!

Beth

 

[Steely]

Sending much strength and many positive vibes your way...........................

 

[flutterby]

Thank you for the good thoughts.

I go back Friday for a single fiber emg and another repetitive stimulant emg. He is keeping an open mind, looking at all possibilities, and is having another neuro-muscular specialist do the emg's so as to have another pair of eyes.

 

[Rabbit]

You will be in our prayers.

 

[Josie]

Hoping for an answer for you.

 

[LittleDudesMom]

Sounds like they are being thorough - that's a good thing. Good thoughts being held for you, Heather.

Sharon

 

[crazymama30]

Hugs, and I hope you get an answer and then they can do something to help you.