Got to play with TeDo and the boys last night ....other tidbits too....

Discussion in 'General Parenting' started by buddy, Sep 2, 2012.

  1. buddy

    buddy New Member

    Gosh we are lucky to have met such amazing people here! TeDo and her boys were staying in the area so we went to swim with them for a while. They were so great together. Q loves being with them. We had been to eat at my dad's house before and Q did well there too. He finally realized school was going to start soon and got really excited. I'm actually cautious this year .....

    Much like last year I'm nervous because they made a move so I'm worried the politics of the situation may be a problem. I got a call from our legal advocate first. Their director said she was concerned that I had said they had to have a hands off policy ....ummm nope. The head of the program he is in (who retired this summer ...arrrg ...) was very pro hands off because it escalates these kids but we of course said if there is a safety issue then as long as the staff is certified and doing the right things they have to do what they have to do. I suggested a meeting to make sure we are all on the same page. Then, they asked if I thought he'd do better off campus for vocational training. I actually do think so but I fear their motive is to not have him in their precious new expensive school. A school built to work with kids who can't be managed behaviorally anywhere else and they tell me they are worried because there is thousands of dollars worth of new equipment in the room. This school has very low functioning non verbal, highly physical kids with autism, ebd programs, fetal alcohol program, etc....why in hell did they cram the rooms with non movable electronics? And they said they are on the top floor ....and are worried about safety. (Q has never done anything unsafe like that. He is afraid of high places actually ) I asked why they didn't set up the room to match the iep 's? I have that same worried feeling I had last year when they moved the class at the old school -and was right. ....I hope im wrong this time but the call from his teacher makes me think that the property is more important than maintaining the program they promised and have been doing with us since April.

    Q has had Q moments but in general is much more settled and his dog and he are really bonding. JJ Yeley is just a dream doggie. You can use him as a pillow or he will lie on you and his warm heavy body is calming even to me! I do it too for his training so I know how therapeutic it is! I'm excited to work with the therapy trainers when funding is approved.

    The newer providers keep saying I should think about out of home placement in case something happens and I don't get much say ....but his longer term providers are saying there isn't anything anyway and he would be bounced around and negatively impacted. My gut firmly feels that I should know whats out there ...have our ducks in a row as far as evaluations and emergency plans but that upping in home service has made such a great difference that it is not time. He did amazing in the programs he was in this summer. So proud of his "graduation " from his dog therapy agility program. I think his old school would have said he could never do what he did. Took his dog thru stations. Made the dog do a trick and had to respond to a question im proud of _______. At the end they have to stand in front of everyone and receive feedback and respond appropriately. Then during peer's turns he had do contribute to the feedback and he was great for all 8 peers. In his autism social group he also got great written reports even saying they think he would be ready for their overnight sessions. They had an hour of classroom social skills direct teaching then went out to water parks, museums, etc. and practiced skills. They said he was polite and as he became comfortable the blurts all but stopped. They found that doing a sensory integration activity like spinning or swinging right before transitions helped eliminate difficulties. So great to experience programs that follow thru with proactive steps. Hope it continues. I just feel so lacking in trust that any good thing will last. He is also continuing his Neurofeedback sessions and the charts are showing good improvement.

    So there's our current status. I found myself praying for all of our gifts who have or are starting school....from the pre K kiddos to the college / transition / vocational training aged students. I hope this year brings all of them increased skill building and lots of opportunities for success and self esteem building.

    Big Hugs everyone ...especially if you made it thru this rambling post, LOL
  2. TerryJ2

    TerryJ2 Well-Known Member

    Ohhh, that sounds like so much fun that you got together!

    I LOVE JJ and haven't even met him yet. :) I'm glad that the sensory issues are abating, with-spinning, etc. That's really great. To think, yrs ago, no one had heard of these things ...
    Fingers crossed for this school year!
  3. SuZir

    SuZir Well-Known Member

    I love to hear Q did so well in his summer program. And that really sounds like awesome program. Hopefully also school will turn out fine. But sounds totally silly to back classrooms full of expensive and easily breakable technology, if it just makes it difficult to use those rooms to what they are meant to be used. That is unfortunately too common situation also around here, and not only in schools. It often happens, that there are some shiny new things and after they are installed someone notices that because of those shiny new things you can't actually use the place to its intended purpose anymore or it at least became worse for that. For example in my sons' sport there was this shiny, new, very expensive thing they made for every new/renovated arena. After that it became clear that shiny new thing put players safety in danger. It has taken them years to get rid of all the shiny, new, dangerous interior after that. I have always thought that it is because I happen to live in the society of engineers but it seems to be same also elsewhere...

    Doggy news are also great. I'm excited for you. Animals can be such a huge help for special needs kids. And their stressed parents ;)

    I also join you in praying for every difficult child starting school again. Mine should be in his last (short) stretch of that for now, but I'm not sure if we will survive that. Unfortunately it is getting very stressful right now and he is having difficulties coping with it (I complained more about the matter in Parents Emeritus.) Just waiting for it being over and done with.
  4. DDD

    DDD Well-Known Member

    I loved reading the "up" update, Buddy. You both remain in my thoughts and my heart. DDD
  5. TeDo

    TeDo Guest

    Ok, this is a surprise to me. We had a wonderful evening and Q did great. But this whole school thing??? Any chance they have heard the "horror" story and are trying to eliminate the need for backside-covering later? Kind of like pre-emptive? Since your district is paying the bill and you hvae this legal issue going on over Q's behavior and psycho's response, it wouldn't surprise me and they are going to "legally" cover themselves. Know what I mean?? I hope you're wrong but even I have learned to trust YOUR gut. Praying hard we're both wrong this time!!
  6. InsaneCdn

    InsaneCdn Well-Known Member

    I hope the funding comes through quickly. I know first hand the difference a dog makes to a difficult child. (therefore, in our house, the need for two dogs)

    Sending lots of {{hugs}} - and some extra warm fuzzies for JJ.