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Has anyone any experience of Lyme Disease?
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<blockquote data-quote="hearts and roses" data-source="post: 634478" data-attributes="member: 2211"><p>Hello Esther, it's been ages since I've been on the board, but someone tipped me off that you had a question about Lyme.</p><p></p><p>I have chronic lyme. After YEARS of seeing DR after dr and having a multitude of tests, ctscans, mri, etc., I was finally diagnosed clinically by a lyme specialist. I tested positive back in 2010 and was treated with a short term, standard antibiotic protocol. Eventually, all my symptoms came back and then some. That, and other things, led me to do my own research and find answers. At 48, it didn't seem right that I would always feel sick.</p><p></p><p>The kind of dr that needs to be seen is an LLMD, which stands for Lyme Literate Medical Doctor. Some are actually physicians assistants, naturopathic doctors, etc. It doesn't need to be an MD, but it needs to be someone who is up on the latest research.</p><p></p><p>I suggest you look at the following websites to get help in finding a medical person to help:</p><p></p><p><a href="http://www.tiredoflyme.com" target="_blank">www.tiredoflyme.com</a></p><p><a href="http://www.ilads.com" target="_blank">www.ilads.com</a></p><p><a href="http://www.lymedisease.com" target="_blank">www.lymedisease.com</a></p><p><a href="http://www.lymenet.org" target="_blank">www.lymenet.org</a></p><p></p><p>Also, on Facebook, there are various pages with lyme disease support. There may be one in her area or, if not, she may be able to at least find some decent resources she can use.</p><p></p><p>I am traveling right now and using my laptop, which hurts me to type on but I will check back and if you PM me your email I can provide further information.</p><p></p><p>**Lyme disease, according to the CDC, only affects 300,000 people per year. The CDC just recently amended that to 1,000,000 per year. Also, the CDC and FDA do not recognize chronic lyme, however, they do recognize acute lyme and long term lyme. The reason for the distinction may seem like simple semantics, but the truth is they don't want to call it chronic...that would mean epidemic and it would force them to put money into research, which they don't want to do. Millions of people are diagnosed with things like ALS, MS, fibromyalgia, chronic fatigue syndrome and various other disease that have little to no explanation when really, all along, it was lyme.</p><p></p><p>I could go on and on, as I've done a TON of research and read hundreds of studies. Look into the links above. Be well.</p></blockquote><p></p>
[QUOTE="hearts and roses, post: 634478, member: 2211"] Hello Esther, it's been ages since I've been on the board, but someone tipped me off that you had a question about Lyme. I have chronic lyme. After YEARS of seeing DR after dr and having a multitude of tests, ctscans, mri, etc., I was finally diagnosed clinically by a lyme specialist. I tested positive back in 2010 and was treated with a short term, standard antibiotic protocol. Eventually, all my symptoms came back and then some. That, and other things, led me to do my own research and find answers. At 48, it didn't seem right that I would always feel sick. The kind of dr that needs to be seen is an LLMD, which stands for Lyme Literate Medical Doctor. Some are actually physicians assistants, naturopathic doctors, etc. It doesn't need to be an MD, but it needs to be someone who is up on the latest research. I suggest you look at the following websites to get help in finding a medical person to help: [URL='http://www.tiredoflyme.com']www.tiredoflyme.com[/URL] [URL='http://www.ilads.com']www.ilads.com[/URL] [URL='http://www.lymedisease.com']www.lymedisease.com[/URL] [URL='http://www.lymenet.org']www.lymenet.org[/URL] Also, on Facebook, there are various pages with lyme disease support. There may be one in her area or, if not, she may be able to at least find some decent resources she can use. I am traveling right now and using my laptop, which hurts me to type on but I will check back and if you PM me your email I can provide further information. **Lyme disease, according to the CDC, only affects 300,000 people per year. The CDC just recently amended that to 1,000,000 per year. Also, the CDC and FDA do not recognize chronic lyme, however, they do recognize acute lyme and long term lyme. The reason for the distinction may seem like simple semantics, but the truth is they don't want to call it chronic...that would mean epidemic and it would force them to put money into research, which they don't want to do. Millions of people are diagnosed with things like ALS, MS, fibromyalgia, chronic fatigue syndrome and various other disease that have little to no explanation when really, all along, it was lyme. I could go on and on, as I've done a TON of research and read hundreds of studies. Look into the links above. Be well. [/QUOTE]
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