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Has anyone any experience of Lyme Disease?
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<blockquote data-quote="susiestar" data-source="post: 634502" data-attributes="member: 1233"><p>Lyme is nasty. There are actually forms of it that make you a vegetarian. You end up getting very ill from eating meat. It is NOT called Lyme, and many lyme docs are not terribly aware of this. I figured it out after reading several serious articles about tick bites making people unable to eat any form of meat. The tick that it is attributed to is the same one that causes Lyme, so gee, could they be related? Hmmm.... seems obvious as the nose on my face, but no one has made the link in literature that I have found. I have not done extensive research though on this aspect. There was a mom here who's difficult child became a mostly easy child after lyme treatment had some time to work. The poor kid still has problems, esp health related, but the difficult child aspects have seriously decreased and/or mostly disappeared.</p><p></p><p>A lyme literate doctor is a MUST. Most docs don't really give credence to lyme or pay enough attention or do the right tests. This is, in my opinion, because if anyone put the info into the mainstream medical community, it would be an epidemic and people would be furious that it was ignored for so long and so many suffered.</p><p></p><p>Not all cases of fibro, etc.... are lyme, but lyme should ALWAYS be ruled out by a good lyme literate health professional before it is assumed it is not lyme. I got lucky and got a lyme-literate doctor early on who ruled it out using the right tests and not the standard ones. </p><p></p><p>don't let ANYONE tell your friend she is hysterical, imagining it, needs a psychiatrist or therapist because her symptoms are not real, etc.... Sadly MOST women, including myself and my daughter and my mom, go through quite a lot of this for years before the correct diagnosis of a chronic health problem is discovered. I just fired a doctor for the last time because her nurse told me that I needed to see a psychiatrist inpatient (and had arranged a bed for me! grrr) because I did not want to spend $50 a month on a brand name rx until I tried the generic form (for $4). The doctor, the nurse and I had gone through this once before iwth the nurse trying to send me inpatient for 'imagining' that I had more than 10 migraine days a month. Nurse flat out said it was impossible to have that many migraines a month so I needed a psychiatrist to treat my 'conversion disorder' instead. The doctor was flabbergasted and furious, so I gave her another try. She is great with my husband, but I won't go back because the nurse pulled this koi again and the doctor brushed it off as a personality conflict between the nurse and I, rather than the nurse being wildly inappropriate and unprofessional! Heck, my psychiatrist doesn't think I need regular sessions or medications, so who is this nurse to arrange an inpatient stay with-o even asking the reg doctor, much less the psychiatrist? </p><p></p><p>I am far from the only female to have this experience. for years there was a lupus and chronic pain support group in my area and the average was six doctors over five years giving each female some sort of conversion or hysteria or hypochondriac diagnosis (somatic disorder is another name they use to mean you are nuts and are making yourself hurt because you have emotional or mental health issues). while conversion is a real problem, around here it is only given to women and girls. Our largest pediatric practice gives this to every female patient of the four main docs at least once, and often it is for some illness like strep throat. Male patients get labwork and medication, but females from age 12 on get therapist/psychiatrist referrals most of the time. It has become a MAJOR issue and those docs are about six mos from losing their licenses for this after 2 girls almost died from untreated strep infections that were diagnosis'd with conversion and given depakote rather than antibiotics. I wish I was making this up. </p><p></p><p>from support groups iwth other women with similar health issues, it is almost universal that we have to fight through the psychiatric diagnosis koi and do our own research to find out what is wrong and then we convince doctors to treat us for it. This is pitiful, but is also reality in many areas. Support your friend to know that her problems are real and are not her fault or a result of stress in her life, but instead are the result of an actual illness.</p><p></p><p>I will see if I can figure out who it was who had the daughter with lyme and will send her a pm to contact you. I know she knows of a doctor in Dallas that she and her daughter travel quite a distance to see.</p></blockquote><p></p>
[QUOTE="susiestar, post: 634502, member: 1233"] Lyme is nasty. There are actually forms of it that make you a vegetarian. You end up getting very ill from eating meat. It is NOT called Lyme, and many lyme docs are not terribly aware of this. I figured it out after reading several serious articles about tick bites making people unable to eat any form of meat. The tick that it is attributed to is the same one that causes Lyme, so gee, could they be related? Hmmm.... seems obvious as the nose on my face, but no one has made the link in literature that I have found. I have not done extensive research though on this aspect. There was a mom here who's difficult child became a mostly easy child after lyme treatment had some time to work. The poor kid still has problems, esp health related, but the difficult child aspects have seriously decreased and/or mostly disappeared. A lyme literate doctor is a MUST. Most docs don't really give credence to lyme or pay enough attention or do the right tests. This is, in my opinion, because if anyone put the info into the mainstream medical community, it would be an epidemic and people would be furious that it was ignored for so long and so many suffered. Not all cases of fibro, etc.... are lyme, but lyme should ALWAYS be ruled out by a good lyme literate health professional before it is assumed it is not lyme. I got lucky and got a lyme-literate doctor early on who ruled it out using the right tests and not the standard ones. don't let ANYONE tell your friend she is hysterical, imagining it, needs a psychiatrist or therapist because her symptoms are not real, etc.... Sadly MOST women, including myself and my daughter and my mom, go through quite a lot of this for years before the correct diagnosis of a chronic health problem is discovered. I just fired a doctor for the last time because her nurse told me that I needed to see a psychiatrist inpatient (and had arranged a bed for me! grrr) because I did not want to spend $50 a month on a brand name rx until I tried the generic form (for $4). The doctor, the nurse and I had gone through this once before iwth the nurse trying to send me inpatient for 'imagining' that I had more than 10 migraine days a month. Nurse flat out said it was impossible to have that many migraines a month so I needed a psychiatrist to treat my 'conversion disorder' instead. The doctor was flabbergasted and furious, so I gave her another try. She is great with my husband, but I won't go back because the nurse pulled this koi again and the doctor brushed it off as a personality conflict between the nurse and I, rather than the nurse being wildly inappropriate and unprofessional! Heck, my psychiatrist doesn't think I need regular sessions or medications, so who is this nurse to arrange an inpatient stay with-o even asking the reg doctor, much less the psychiatrist? I am far from the only female to have this experience. for years there was a lupus and chronic pain support group in my area and the average was six doctors over five years giving each female some sort of conversion or hysteria or hypochondriac diagnosis (somatic disorder is another name they use to mean you are nuts and are making yourself hurt because you have emotional or mental health issues). while conversion is a real problem, around here it is only given to women and girls. Our largest pediatric practice gives this to every female patient of the four main docs at least once, and often it is for some illness like strep throat. Male patients get labwork and medication, but females from age 12 on get therapist/psychiatrist referrals most of the time. It has become a MAJOR issue and those docs are about six mos from losing their licenses for this after 2 girls almost died from untreated strep infections that were diagnosis'd with conversion and given depakote rather than antibiotics. I wish I was making this up. from support groups iwth other women with similar health issues, it is almost universal that we have to fight through the psychiatric diagnosis koi and do our own research to find out what is wrong and then we convince doctors to treat us for it. This is pitiful, but is also reality in many areas. Support your friend to know that her problems are real and are not her fault or a result of stress in her life, but instead are the result of an actual illness. I will see if I can figure out who it was who had the daughter with lyme and will send her a pm to contact you. I know she knows of a doctor in Dallas that she and her daughter travel quite a distance to see. [/QUOTE]
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