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<blockquote data-quote="susiestar" data-source="post: 410812" data-attributes="member: 1233"><p>Welcome!! The other have given you a lot of great feedback and advice and I have some other suggestions.</p><p> </p><p>My first is to start a Parent Report. The link in my signature will take you to the thread that explains it, but it is a report that YOU write about your difficult child. It is a way to keep ALLLLLL the info together in one place. The outline is great and will help you remember things. Just don't do it all in one piece - work on it in chunks. You can copy sections of it to give to docs, school, whatever as it is needed for them to have the info. They will do a lot better using the info if they can read it and refer back to it. You likely will not want many people to have the entire thing, but you can give them copies of whatever you think is relevant.</p><p> </p><p>Have you ever thought about sensory issues being a problem for him? Not everyone processes sensory input the normal way. for some of us the right sensory input can be almost mesmerizing or be so pleasant that we can fixate on it - and the wrong sensations can cause huge meltdowns and avoidance and major outbursts. Often the person with sensory issues doesn't have a clue about why the sensation is so upsetting. This can be severe enough to be called sensory integration disorder or you can just be more responsive to sensory input.</p><p> </p><p>Sensory Integration Disorder (SID) is well explained in The Out of Sync Child by Kranowitz. She describes what it is, how different senses can be involved and the problems that it can create, how the brain works differently for kids with Sensory Integration Disorder (SID) than for those with-o it. She also describes the therapy used to treat it. My youngest had poor muscle tone/stamina, did not color or draw or write if he could escape it, was clumsy in sort of odd ways, and had strong, even violent reactions to many things that didn't even register to my husband or even to me. I say even to me because I have always had sensory problems - just didn't know it was a diagnosis and treatable until I had kids. My mom always described her problems when we were in a noisy area as not having the right filters to keep the background sounds out. It is an excellent description. </p><p> </p><p>Each of my kids has serious sensory quirks - Jessie cannot sleep with-o a "silky" even now - she is 15! She went through many blankies because they wore out but each of them had binding that was very smooth silky material. My mom even sewed a length of silky ribbon to her carseat cover when we made a new one. When she is upset or overwhelmed it helps soothe her. Wiz would vomit if he had to try something with tomato in it other than pizza - because the texture of pizza is different than the texture of sauce on pasta or of a ripe tomato.</p><p> </p><p>My youngest had so many Sensory Integration Disorder (SID) problems that through 3rd grade he missed ONE FOURTH of the days of every quarter of school. He would be very pale and his whole body would be really rigid sort of and it almost seemed like he was vibrating on the days he missed. The school set up a 504 plan that covered his absences so we didn't have to worry about attendance problems, thankfully! If he went to school on days like that he either had to come home early because he just couldn't cope or he would come home, have a total meltdown, wnd up vomiting for a couple of hours and then crash like the dead. This usually meant he needed at least 3 days to be able to go back to school.</p><p> </p><p>We had a private Occupational Therapist (OT) evaluation done when he was 3 or 4. School CAN do an Occupational Therapist (OT) evaluation here in the states but they only look at what problems will impact education. We had to see the impact on his whole world. Sensory Integration Disorder (SID) is one of the FEW diosrders that has a treatment that is totally non-invasive and can re-wire how the brain works. Brushing therapy uses a very soft brush like a surgical scrub brush to brush the body in a certain pattern and order - on bare skin or on top of clothing - followed by gentle joint compressions. This cannot be learned at home because if done incorrectly it can cause real problems. for example brushing the stomach area can disrupt the entire digestive process! In spite of this, brushing is easy. Once you are comfortable with it, brushing and joint compressions can be done slowly in about 2 - 3 minutes. Teachers can do it in the classroom if the child eneds that or the school Occupational Therapist (OT) can come in to do it and to give the teacher a break.</p><p> </p><p>Even more amazing than rewiring the brain is the almost instant impact on how a child feels and thinks about himself. In the evaluation the Occupational Therapist (OT) asked my son is he was good at cutting and then if he was good at school. This child has always had excellent grades and rarely any complaints from his teachers. As he was struggling to cut he told her that he wasn't good at anything and wasn't smart at all. He continued to cut and seh did some gentle joint compressions on his shoulders and neck. Everything about him changed - and clearly NOT on purpose! He sat up straighter, he smiled, he looked up and said "See, I really CAN cut on the line!!" He also seemed to think he was one of the "smart kids" at school - he talked about it when seh asked another question. It was like seeing Mr. Hyde turn into Dr. Jekyll in front of me. At age 4 he was NOT faking it - it was very clear.</p><p> </p><p>Though your son is older, the brushing and compressions can help. It has helped ME not react to as many sensations, not get as gritchy when I am overwhelmed, etc... even though the Occupational Therapist (OT) and psychiatrists all told me that if you don't work with the child at a young age (3 or 4 if possible) then it won't really help. Even my older kids improved a lot after a couple of months of brushing therapy a couple of times a day.</p><p> </p><p>The other aspect to Sensory Integration Disorder (SID) treatment is providing a sensory diet. Sometimes wehn a kid is about to meltdown or is melting down, taking a break to do a soothing sensory activity (a sensory break) can turn things around 180 degrees. Many of our elem students have sensory breaks written into their IEP's and it makes a big difference. The best book on providing the sensory input that your child may need is The Out of Sync Child has Fun by Kranowitz. It is all activities and what sensory needs they can fill, ways to modify them to fit your needs and ways to do them for little or no moeny!</p><p> </p><p>I urge to to find an Occupational Therapist to evaluate your child's sensory issues and then to do what you can to provide the sensory diet he needs so that he can learn how to manage this and not have to be managed by it. SOrry so long but it got away from me.</p><p> </p><p>Welcome to our group!</p></blockquote><p></p>
[QUOTE="susiestar, post: 410812, member: 1233"] Welcome!! The other have given you a lot of great feedback and advice and I have some other suggestions. My first is to start a Parent Report. The link in my signature will take you to the thread that explains it, but it is a report that YOU write about your difficult child. It is a way to keep ALLLLLL the info together in one place. The outline is great and will help you remember things. Just don't do it all in one piece - work on it in chunks. You can copy sections of it to give to docs, school, whatever as it is needed for them to have the info. They will do a lot better using the info if they can read it and refer back to it. You likely will not want many people to have the entire thing, but you can give them copies of whatever you think is relevant. Have you ever thought about sensory issues being a problem for him? Not everyone processes sensory input the normal way. for some of us the right sensory input can be almost mesmerizing or be so pleasant that we can fixate on it - and the wrong sensations can cause huge meltdowns and avoidance and major outbursts. Often the person with sensory issues doesn't have a clue about why the sensation is so upsetting. This can be severe enough to be called sensory integration disorder or you can just be more responsive to sensory input. Sensory Integration Disorder (SID) is well explained in The Out of Sync Child by Kranowitz. She describes what it is, how different senses can be involved and the problems that it can create, how the brain works differently for kids with Sensory Integration Disorder (SID) than for those with-o it. She also describes the therapy used to treat it. My youngest had poor muscle tone/stamina, did not color or draw or write if he could escape it, was clumsy in sort of odd ways, and had strong, even violent reactions to many things that didn't even register to my husband or even to me. I say even to me because I have always had sensory problems - just didn't know it was a diagnosis and treatable until I had kids. My mom always described her problems when we were in a noisy area as not having the right filters to keep the background sounds out. It is an excellent description. Each of my kids has serious sensory quirks - Jessie cannot sleep with-o a "silky" even now - she is 15! She went through many blankies because they wore out but each of them had binding that was very smooth silky material. My mom even sewed a length of silky ribbon to her carseat cover when we made a new one. When she is upset or overwhelmed it helps soothe her. Wiz would vomit if he had to try something with tomato in it other than pizza - because the texture of pizza is different than the texture of sauce on pasta or of a ripe tomato. My youngest had so many Sensory Integration Disorder (SID) problems that through 3rd grade he missed ONE FOURTH of the days of every quarter of school. He would be very pale and his whole body would be really rigid sort of and it almost seemed like he was vibrating on the days he missed. The school set up a 504 plan that covered his absences so we didn't have to worry about attendance problems, thankfully! If he went to school on days like that he either had to come home early because he just couldn't cope or he would come home, have a total meltdown, wnd up vomiting for a couple of hours and then crash like the dead. This usually meant he needed at least 3 days to be able to go back to school. We had a private Occupational Therapist (OT) evaluation done when he was 3 or 4. School CAN do an Occupational Therapist (OT) evaluation here in the states but they only look at what problems will impact education. We had to see the impact on his whole world. Sensory Integration Disorder (SID) is one of the FEW diosrders that has a treatment that is totally non-invasive and can re-wire how the brain works. Brushing therapy uses a very soft brush like a surgical scrub brush to brush the body in a certain pattern and order - on bare skin or on top of clothing - followed by gentle joint compressions. This cannot be learned at home because if done incorrectly it can cause real problems. for example brushing the stomach area can disrupt the entire digestive process! In spite of this, brushing is easy. Once you are comfortable with it, brushing and joint compressions can be done slowly in about 2 - 3 minutes. Teachers can do it in the classroom if the child eneds that or the school Occupational Therapist (OT) can come in to do it and to give the teacher a break. Even more amazing than rewiring the brain is the almost instant impact on how a child feels and thinks about himself. In the evaluation the Occupational Therapist (OT) asked my son is he was good at cutting and then if he was good at school. This child has always had excellent grades and rarely any complaints from his teachers. As he was struggling to cut he told her that he wasn't good at anything and wasn't smart at all. He continued to cut and seh did some gentle joint compressions on his shoulders and neck. Everything about him changed - and clearly NOT on purpose! He sat up straighter, he smiled, he looked up and said "See, I really CAN cut on the line!!" He also seemed to think he was one of the "smart kids" at school - he talked about it when seh asked another question. It was like seeing Mr. Hyde turn into Dr. Jekyll in front of me. At age 4 he was NOT faking it - it was very clear. Though your son is older, the brushing and compressions can help. It has helped ME not react to as many sensations, not get as gritchy when I am overwhelmed, etc... even though the Occupational Therapist (OT) and psychiatrists all told me that if you don't work with the child at a young age (3 or 4 if possible) then it won't really help. Even my older kids improved a lot after a couple of months of brushing therapy a couple of times a day. The other aspect to Sensory Integration Disorder (SID) treatment is providing a sensory diet. Sometimes wehn a kid is about to meltdown or is melting down, taking a break to do a soothing sensory activity (a sensory break) can turn things around 180 degrees. Many of our elem students have sensory breaks written into their IEP's and it makes a big difference. The best book on providing the sensory input that your child may need is The Out of Sync Child has Fun by Kranowitz. It is all activities and what sensory needs they can fill, ways to modify them to fit your needs and ways to do them for little or no moeny! I urge to to find an Occupational Therapist to evaluate your child's sensory issues and then to do what you can to provide the sensory diet he needs so that he can learn how to manage this and not have to be managed by it. SOrry so long but it got away from me. Welcome to our group! [/QUOTE]
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