Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
Healthful Living / Natural Treatments
Have any of you .......
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="dreamer" data-source="post: 143640" data-attributes="member: 1697"><p>I have now been on pred 2 years. It DID give me back a life, becuz before the pred, I could not use hands, feet, arms or legs AT ALL, and sometimes my illness affected my rib cartilage and my hyoid cartilage (and then I could not swallow) </p><p>BUT the pred has recently given me---high blood pressure, high triglycerides, and diabetes. (and one of my other medications has harmed my liver- my other RA/Lupus medication) Caused liver damage and fatty liver. </p><p></p><p>I have been trying for a few months to reduce the pred, but I am haveing ZERO louck, as soon as it is reduced even the slightest amount, my old symptoms seem to be lurking and jumping in to say AHA! So, it is a struggle, and there is this fine line of haveing to choose which I will better be able to live with for ME. </p><p></p><p>Marg and I are both working very hard with these new very serious health issues----we have a thread going here where we have been discussing some dietary changes to help us. I also posted about a book I recently picked up that discusses various foods and food products and how they affect the body. (and how they work for or against certain symptoms etc) THis is in addition to several other books I got recently to help me cope with the pred induced diabetes. </p><p>I did think it might be helpful info for many here, becuz seroquel caused my difficult children blood sugar to go beserk....and she also looks like she is starting up with some type of auto immune something, as well.....and her blood pressure has always been high (bad genetics and the anxiety issues) And my difficult child is not one who can tolerate going to doctor even just for a throat swab/culture. She very literally would rather die. UG! </p><p></p><p>Maybe you might like to join Marg and I.we are working VERY hard and I am afraid she is much more knowledgeable than I am about the dietary things, but I am learning. ANd of course both Marg and I do also have mobility issues that make us have to be more creative. </p><p></p><p>Go take a peek at our thread- I think Marg started it, I think the subject line is something like "extreme diet continues" Maybe we can grab ahold of your hand and you can grab hold of ours (VERY gently, tho, please, my fingers now look like gnarled branches) and maybe we can do our best to be doing this with each others help? </p><p></p><p>I am sory you are haveing to cope with this- I know first hand how hard it all can be. I really hate what my auto immune illness has done to my life most of the time, BUT somehow, I have also found little bits and peices to it that I do have to give it credit for. (If I had not almost died and been SO ill for so long, I would no doubt be working away from the house very very long hours, like I used to becuz we were low income BEFORE I got so sick, and we depended on MY income to support us all) BUT being home with my husband and my kids has helped them and their challenges enormously. AND it has permitted me to homeschool them AND to strengthen our parent child bonds in ways I never ever dreamed possible. ANd I personally do believe it has made all of my kids far more compassionate and careing people. </p><p></p><p>Come hold our hand, see if any of what we are doing is any help- or maybe come bring us MORE ideas! </p><p>Good luck!</p></blockquote><p></p>
[QUOTE="dreamer, post: 143640, member: 1697"] I have now been on pred 2 years. It DID give me back a life, becuz before the pred, I could not use hands, feet, arms or legs AT ALL, and sometimes my illness affected my rib cartilage and my hyoid cartilage (and then I could not swallow) BUT the pred has recently given me---high blood pressure, high triglycerides, and diabetes. (and one of my other medications has harmed my liver- my other RA/Lupus medication) Caused liver damage and fatty liver. I have been trying for a few months to reduce the pred, but I am haveing ZERO louck, as soon as it is reduced even the slightest amount, my old symptoms seem to be lurking and jumping in to say AHA! So, it is a struggle, and there is this fine line of haveing to choose which I will better be able to live with for ME. Marg and I are both working very hard with these new very serious health issues----we have a thread going here where we have been discussing some dietary changes to help us. I also posted about a book I recently picked up that discusses various foods and food products and how they affect the body. (and how they work for or against certain symptoms etc) THis is in addition to several other books I got recently to help me cope with the pred induced diabetes. I did think it might be helpful info for many here, becuz seroquel caused my difficult children blood sugar to go beserk....and she also looks like she is starting up with some type of auto immune something, as well.....and her blood pressure has always been high (bad genetics and the anxiety issues) And my difficult child is not one who can tolerate going to doctor even just for a throat swab/culture. She very literally would rather die. UG! Maybe you might like to join Marg and I.we are working VERY hard and I am afraid she is much more knowledgeable than I am about the dietary things, but I am learning. ANd of course both Marg and I do also have mobility issues that make us have to be more creative. Go take a peek at our thread- I think Marg started it, I think the subject line is something like "extreme diet continues" Maybe we can grab ahold of your hand and you can grab hold of ours (VERY gently, tho, please, my fingers now look like gnarled branches) and maybe we can do our best to be doing this with each others help? I am sory you are haveing to cope with this- I know first hand how hard it all can be. I really hate what my auto immune illness has done to my life most of the time, BUT somehow, I have also found little bits and peices to it that I do have to give it credit for. (If I had not almost died and been SO ill for so long, I would no doubt be working away from the house very very long hours, like I used to becuz we were low income BEFORE I got so sick, and we depended on MY income to support us all) BUT being home with my husband and my kids has helped them and their challenges enormously. AND it has permitted me to homeschool them AND to strengthen our parent child bonds in ways I never ever dreamed possible. ANd I personally do believe it has made all of my kids far more compassionate and careing people. Come hold our hand, see if any of what we are doing is any help- or maybe come bring us MORE ideas! Good luck! [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
Healthful Living / Natural Treatments
Have any of you .......
Top