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<blockquote data-quote="Big Bad Kitty" data-source="post: 143660" data-attributes="member: 3647"><p>Linda,</p><p>My mother was on Prednisone for a little over 2 years (she has MS, fibromyalgia, CFS, and migraines) and she <em>did</em> manage to eventually get off of the steroids.</p><p></p><p>While she felt she had gotten her life back, she was also suffering from fatty liver, as well as serious weight gain (mostly bloating, her face looked like a balloon) and her bones were beginning to brittle. </p><p></p><p>I don't know the similarities between my mom's health issues and yours, but I know they are in the same auto immune category. She titrated off the prednisone SOOO slowly, the doctors made fun of her. Not in a mean way, but kind of picking on her. Well, guess what. She did it without getting sick.</p><p></p><p>This was over 10 years ago. At this point, she does not take prednisone at all anymore, but she takes Decadron, in a different manner. Once a month, she takes it for a few days. She has even used what pills she has for those few days and fiddled with them by taking half the dose for more days, to see how that works. She finally has a combination that works well for her. So now, she knows that in any given month, she knows that she can count on having one GOOD week. She plans when she takes her "megapills" as she calls them around family events, holidays, and the like.</p><p></p><p>I hope that this helps you some. Fell free at any time to ask me about what my mom went through; I of course gave you the abridged version.</p></blockquote><p></p>
[QUOTE="Big Bad Kitty, post: 143660, member: 3647"] Linda, My mother was on Prednisone for a little over 2 years (she has MS, fibromyalgia, CFS, and migraines) and she [I]did[/I] manage to eventually get off of the steroids. While she felt she had gotten her life back, she was also suffering from fatty liver, as well as serious weight gain (mostly bloating, her face looked like a balloon) and her bones were beginning to brittle. I don't know the similarities between my mom's health issues and yours, but I know they are in the same auto immune category. She titrated off the prednisone SOOO slowly, the doctors made fun of her. Not in a mean way, but kind of picking on her. Well, guess what. She did it without getting sick. This was over 10 years ago. At this point, she does not take prednisone at all anymore, but she takes Decadron, in a different manner. Once a month, she takes it for a few days. She has even used what pills she has for those few days and fiddled with them by taking half the dose for more days, to see how that works. She finally has a combination that works well for her. So now, she knows that in any given month, she knows that she can count on having one GOOD week. She plans when she takes her "megapills" as she calls them around family events, holidays, and the like. I hope that this helps you some. Fell free at any time to ask me about what my mom went through; I of course gave you the abridged version. [/QUOTE]
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